@theannieelainey
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Annie Elainey | What EDS is like on MY Body #ThisIsMyEDS Tag [CC] @theannieelainey | Uploaded May 2017 | Updated October 2024, 2 hours ago.
Not only are a lot of people still unaware about Ehlers-Danlos Syndrome (EDS) but many who do know about it actually have great misconceptions or misinformation about it; assuming it only looks and acts one way when it actually manifests itself on a wide spectrum, with various symptoms that differ from person to person and can even be fluid. I’d like to use this #EDSAwarenessMonth to uplift the diverse identities and narratives of people with EDS with this tag.

#ThisIsMyEDS Tag for EDS Awareness Month
docs.google.com/document/d/1c_UA0QbuxGZnnC49oL9sOl1QZXLitfVtstyfsha6S38/edit?usp=sharing

EDS T-shirts available until May 16th!
bonfire.com/ehlers-danlos-zebra-swatch

BTS: Throughout this video my lower back was killing me which is why I was shifting around a lot.

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CHANNEL DESCRIPTION
Annie Segarra (Annie Elainey) creates mainly first-person videos on introspective topics, social topics, sharing her experiences and thoughts on disability, body image, LGBT topics, gender equality, etc, as well as creative content; a variety of music/artistic media and short films. Annie identifies as a queer Latinx disabled woman and uses she and they pronouns.
What EDS is like on MY Body #ThisIsMyEDS Tag [CC]I’m autistic [CC]How I Get Around w/ Ehlers-Danlos Syndrome #ThisIsMyEDS [CC]Queer and Disabled Pt. 2 | Representation and Accessibility [CC]How To Improve Accessibility At Your Event [CC]Less Than Famous Audition 2017 | Annie Elainey  [CC]Disability Misconceptions Tag (EDS) [CC]Reflecting on Violence Against Identity (Part 2/4) [CC]Sometimes No One is Going to Have Your Back [CC]Small YouTuber Tag + THANK YOU 5K SUBS! [CC]ASMR Sleepy Broadway Lullabies w/ Rain Sounds | VLOGMAS DAY 14 [CC]Creating My Medical Record Binder [CC]

What EDS is like on MY Body #ThisIsMyEDS Tag [CC] @theannieelainey

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