Annie Elainey | How I Get Around w/ Ehlers-Danlos Syndrome #ThisIsMyEDS [CC] @theannieelainey | Uploaded May 2017 | Updated October 2024, 4 minutes ago.
I have a genetic degenerative condition called Ehlers-Danlos Syndrome, it affects/weakens the joints, skin, blood vessels, and internal organs; within the past few years, my standing/walking limits have steadily declined. Due to chronic pain, joint hypermobility (or laxity/weakness), the risk of injury, dysautonomia, and cardiovascular issues I can only stand/walk for a few seconds to a few minutes (average of 60 seconds) at a time depending on my symptoms, injury, etc. Currently, in order to walk I need very specific circumstances, I need places to sit consistently available to me, guarantees of only having to walk in short bursts, as well as the security of knowing the layout of a place in order to avoid injury. The rest of the time I am a wheelchair user, it is the safest, least painful, most independent, and most efficient way for me to be mobile. In this video, I speak candidly about the mobility aids I use and when I use them.
To learn more about what is actually happening inside my body with EDS check out my previous video "Draw My Body #ThisIsMyEDS"
youtube.com/watch?v=bU6ZgIEX0DQ
As well as "What EDS Is like on MY Body #ThisIsMyEDS" where I speak about how it affects my daily life:
youtube.com/watch?v=qMk-JpMauPw
SUPPORT THIS CREATOR
If you enjoy my videos, please consider supporting this channel!
Patreon: patreon.com/annieelainey
PayPal: paypal.me/annieelainey
Amazon Wish List: http://a.co/gyCgqsf
CONTRIBUTE CAPTIONS/SUBTITLES FOR THIS VIDEO
-Click on the gear in the lower-right corner of the video
-Click "Subtitles/CC"
-Click "Add subtitles/CC
-You can contribute Closed Captions in English or subtitles in ANY other language
LIST OF VIDEOS YET TO BE CAPTIONED
youtube.com/timedtext_cs_panel?tab=2&c=UCznS4Pk3VcTIfDUuWrQtdzQ
FIND ME ON THE INTERNET
facebook.com/ann.e.segarra
annieelainey.tumblr.com
twitter.com/annieelainey
instagram.com/annieelainey
snapchat.com/add/annieelainey
Periscope: AnnieElainey
IN THIS VIDEO
Mic used: amzn.to/2ahAuT5
Camera used: amzn.to/2a5jPCq
My Associate Store: astore.amazon.com/annielai-20
CHANNEL DESCRIPTION
Annie Segarra (Annie Elainey) creates mainly first-person videos on introspective topics, social topics, sharing her experiences and thoughts on disability, body image, LGBT topics, gender equality, etc, as well as creative content; a variety of music/artistic media and short films. Annie identifies as a queer disabled (Ehlers-Danlos Syndrome) Latinx woman and uses she and they pronouns.
I have a genetic degenerative condition called Ehlers-Danlos Syndrome, it affects/weakens the joints, skin, blood vessels, and internal organs; within the past few years, my standing/walking limits have steadily declined. Due to chronic pain, joint hypermobility (or laxity/weakness), the risk of injury, dysautonomia, and cardiovascular issues I can only stand/walk for a few seconds to a few minutes (average of 60 seconds) at a time depending on my symptoms, injury, etc. Currently, in order to walk I need very specific circumstances, I need places to sit consistently available to me, guarantees of only having to walk in short bursts, as well as the security of knowing the layout of a place in order to avoid injury. The rest of the time I am a wheelchair user, it is the safest, least painful, most independent, and most efficient way for me to be mobile. In this video, I speak candidly about the mobility aids I use and when I use them.
To learn more about what is actually happening inside my body with EDS check out my previous video "Draw My Body #ThisIsMyEDS"
youtube.com/watch?v=bU6ZgIEX0DQ
As well as "What EDS Is like on MY Body #ThisIsMyEDS" where I speak about how it affects my daily life:
youtube.com/watch?v=qMk-JpMauPw
SUPPORT THIS CREATOR
If you enjoy my videos, please consider supporting this channel!
Patreon: patreon.com/annieelainey
PayPal: paypal.me/annieelainey
Amazon Wish List: http://a.co/gyCgqsf
CONTRIBUTE CAPTIONS/SUBTITLES FOR THIS VIDEO
-Click on the gear in the lower-right corner of the video
-Click "Subtitles/CC"
-Click "Add subtitles/CC
-You can contribute Closed Captions in English or subtitles in ANY other language
LIST OF VIDEOS YET TO BE CAPTIONED
youtube.com/timedtext_cs_panel?tab=2&c=UCznS4Pk3VcTIfDUuWrQtdzQ
FIND ME ON THE INTERNET
facebook.com/ann.e.segarra
annieelainey.tumblr.com
twitter.com/annieelainey
instagram.com/annieelainey
snapchat.com/add/annieelainey
Periscope: AnnieElainey
IN THIS VIDEO
Mic used: amzn.to/2ahAuT5
Camera used: amzn.to/2a5jPCq
My Associate Store: astore.amazon.com/annielai-20
CHANNEL DESCRIPTION
Annie Segarra (Annie Elainey) creates mainly first-person videos on introspective topics, social topics, sharing her experiences and thoughts on disability, body image, LGBT topics, gender equality, etc, as well as creative content; a variety of music/artistic media and short films. Annie identifies as a queer disabled (Ehlers-Danlos Syndrome) Latinx woman and uses she and they pronouns.
![How I Get Around w/ Ehlers-Danlos Syndrome #ThisIsMyEDS [CC]](https://i.ytimg.com/vi/qxGQ9UMHKBk/hqdefault.jpg "How I Get Around w/ Ehlers-Danlos Syndrome #ThisIsMyEDS [CC]
I have a genetic degenerative condition called Ehlers-Danlos Syndrome, it affects/weakens the joints, skin, blood vessels, and internal organs; within the past few years, my standing/walking limits have steadily declined. Due to chronic pain, joint hypermobility (or laxity/weakness), the risk of injury, dysautonomia, and cardiovascular issues I can only stand/walk for a few seconds to a few minutes (average of 60 seconds) at a time depending on my symptoms, injury, etc. Currently, in order to walk I need very specific circumstances, I need places to sit consistently available to me, guarantees of only having to walk in short bursts, as well as the security of knowing the layout of a place in order to avoid injury. The rest of the time I am a wheelchair user, it is the safest, least painful, most independent, and most efficient way for me to be mobile. In this video, I speak candidly about the mobility aids I use and when I use them.
To learn more about what is actually happening inside my body with EDS check out my previous video Draw My Body #ThisIsMyEDS
https://www.youtube.com/watch?v=bU6ZgIEX0DQ
As well as What EDS Is like on MY Body #ThisIsMyEDS where I speak about how it affects my daily life:
https://www.youtube.com/watch?v=qMk-JpMauPw
SUPPORT THIS CREATOR
If you enjoy my videos, please consider supporting this channel!
Patreon: https://www.patreon.com/annieelainey
PayPal: http://paypal.me/annieelainey
Amazon Wish List: http://a.co/gyCgqsf
CONTRIBUTE CAPTIONS/SUBTITLES FOR THIS VIDEO
-Click on the gear in the lower-right corner of the video
-Click Subtitles/CC
-Click Add subtitles/CC
-You can contribute Closed Captions in English or subtitles in ANY other language
LIST OF VIDEOS YET TO BE CAPTIONED
https://www.youtube.com/timedtext_cs_panel?tab=2&c=UCznS4Pk3VcTIfDUuWrQtdzQ
FIND ME ON THE INTERNET
http://www.facebook.com/ann.e.segarra
http://annieelainey.tumblr.com
http://twitter.com/annieelainey
http://instagram.com/annieelainey
http://snapchat.com/add/annieelainey
Periscope: AnnieElainey
IN THIS VIDEO
Mic used: http://amzn.to/2ahAuT5
Camera used: http://amzn.to/2a5jPCq
My Associate Store: http://astore.amazon.com/annielai-20
CHANNEL DESCRIPTION
Annie Segarra (Annie Elainey) creates mainly first-person videos on introspective topics, social topics, sharing her experiences and thoughts on disability, body image, LGBT topics, gender equality, etc, as well as creative content; a variety of music/artistic media and short films. Annie identifies as a queer disabled (Ehlers-Danlos Syndrome) Latinx woman and uses she and they pronouns.")
![Queer and Disabled Pt. 2 | Representation and Accessibility [CC]](https://i.ytimg.com/vi/re5-d3xb750/hqdefault.jpg "Queer and Disabled Pt. 2 | Representation and Accessibility [CC]
[CC Available, CW: for reclaimed use of the q-slur] In this series four young women, including myself, answer several questions about the intersection of identifying as queer and being disabled. This week’s questions, Do you think media representation of queer disabled folks affects how we are percepted in real life? and Do you feel like LGBTQ+ spaces are accessible to you? Do you feel welcome in those spaces and in queer culture in general?
PART 1: http://bit.ly/1T7ye1a
FOLLOW/SUB:
Rachel: http://bit.ly/1MoEA5J
Robyn: http://bit.ly/1VowZLM
Erin: http://bit.ly/1U92qui
New Videos Monday-Friday #WithCaptions Subscribe!
HELP ME GET TO VIDCON: http://bit.ly/1XI8Ez6
If you enjoy my videos, please consider supporting this channel and/or my medical funds:
Patreon: https://www.patreon.com/annieelainey
Medical Expenses, Pain Relief, and Mobility Devices: http://bit.ly/1U62Kti
PayPal: http://bit.ly/1D7QYW2
ABOUT ME
Hello, hello! My name is Annie, my pronouns are she/her, and Im a QWoC, body positive, disabled spoonie. I create videos five days a week (as long as my health allows) usually introspective topics, social topics, disability, body image, sex/gender/dating, feminism, etc, as well as a variety of music/artistic media, tags/challenges, and day-in-the-life vlogs.
*Currently working on captioning ALL videos, contributions are welcome!
CONTRIBUTE SUBTITLES FOR THIS VIDEO
-Click on the gear in the lower-right corner of the video
-Click Subtitles/CC
-Click Add subtitles/CC
-You can contribute Closed Captions in English or subtitles in ANY other language.
FIND ME ON THE INTERNET AND LETS BE FRIENDS!
http://annieelainey.tumblr.com
http://instagram.com/annieelainey
http://twitter.com/annieelainey
http://facebook.com/annesegarra
Snapchat: AnnieElainey
Periscope: AnnieElainey")
![How To Improve Accessibility At Your Event [CC]](https://i.ytimg.com/vi/roCg5oNNMcY/hqdefault.jpg "How To Improve Accessibility At Your Event [CC]
I am a chronically ill wheelchair user and after attending a large convention and facing a lot of obstacles due to inaccessibility, I wanted to share some possible improvements based on my observations and experiences. Email available on channel page for business inquiries.
New Videos Monday-Friday ‪#‎WithCaptions‬ Subscribe!
If you enjoy my videos, please consider supporting this channel and/or my medical funds:
Patreon: https://www.patreon.com/annieelainey
Medical Expenses, Pain Relief, and Mobility Devices: http://bit.ly/1U62Kti
PayPal: http://bit.ly/1D7QYW2
FIND ME ON THE INTERNET AND LETS BE FRIENDS!
http://facebook.com/annesegarra
http://annieelainey.tumblr.com
http://instagram.com/annieelainey
http://twitter.com/annieelainey
http://snapchat.com/add/annieelainey
Periscope: AnnieElainey
ABOUT ME
Hello, hello! My name is Annie, my pronouns are she/her, and Im a QWoC, body positive, wheelchair user, disabled and chronically ill person (or spoonie).
I create videos five days a week (as long as my health allows) usually introspective topics, social topics, sharing my experiences and point of view with/on disability, body image, sex/gender/dating, gender equality, etc, as well as a variety of music/artistic media, tags/challenges, and day-in-the-life vlogs.
*Currently working on captioning ALL videos, contributions are welcome!
CONTRIBUTE SUBTITLES FOR THIS VIDEO
-Click on the gear in the lower-right corner of the video
-Click Subtitles/CC
-Click Add subtitles/CC
-You can contribute Closed Captions in English or subtitles in ANY other language.")
![Less Than Famous Audition 2017 | Annie Elainey [CC]](https://i.ytimg.com/vi/rpVdU1nvdVs/hqdefault.jpg "Less Than Famous Audition 2017 | Annie Elainey [CC]
How do you stick out in a sea of creators?
Im just someone in the crowd.
How do you find community/friends/purpose on YouTube?
Sharing my stories, sharing my observations, perspective, and experiences as a disabled queer person of color and finding people who relate to these experiences or want to hear about them.
What does success on YouTube mean to you?
As a chronically ill person, I often have to push myself to do the things I love, I have to push myself to create, so as Ive said before, hitting that publish button gives me great feelings of success. Creative fulfillment and community are the two main ways I get to feel successful, making connections and being visible, sharing in conversations with members of my communities, and enlightening those who are not.
LYRICS:
Look at the invitation
You’ve got the web address
Do you think you’re Less than Famous?
The answers always yes
Your video submission
Could be the one they’re waiting for
Just push a bit more
Today were on a mission
Today’s the casting call
Are you ready to audition?
Oh, God, help us all
You make the right impression
Then evrybody knows your name
It’s Annie Elainey
Less Than Famous Panel has some things they need to know
Like what success on YouTube means to you?
Less Than Famous panel is where you wanna go
Just tell them all about community
(Tell them all about community)
You’re intersectional
And a tad musical
Disabled, PoC, LGBT
And with the stuff you make...
I do love to create
Youve got to go apply
[Whisper] for LTF panel!
The LTF panel!
Based on original song: Someone in the Crowd - La La Land
SUPPORT THIS CREATOR
If you enjoy my videos, please consider supporting this channel!
Patreon: https://www.patreon.com/annieelainey
PayPal: http://paypal.me/annieelainey
Amazon Wish List: http://a.co/gyCgqsf
CONTRIBUTE CAPTIONS/SUBTITLES FOR THIS VIDEO
-Click on the gear in the lower-right corner of the video
-Click Subtitles/CC
-Click Add subtitles/CC
-You can contribute Closed Captions in English or subtitles in ANY other language
LIST OF VIDEOS YET TO BE CAPTIONED
https://www.youtube.com/timedtext_cs_panel?tab=2&c=UCznS4Pk3VcTIfDUuWrQtdzQ
FIND ME ON THE INTERNET
http://www.facebook.com/ann.e.segarra
http://annieelainey.tumblr.com
http://twitter.com/annieelainey
http://instagram.com/annieelainey
http://snapchat.com/add/annieelainey
Periscope: AnnieElainey
IN THIS VIDEO
Mic used: http://amzn.to/2ahAuT5
Camera used: http://amzn.to/2a5jPCq
My Associate Store: http://astore.amazon.com/annielai-20
CHANNEL DESCRIPTION
Annie Segarra (Annie Elainey) creates mainly first-person videos on introspective topics, social topics, sharing her experiences and thoughts on disability, body image, LGBT topics, gender equality, etc, as well as creative content; a variety of music/artistic media and short films. Annie identifies as a queer Latinx disabled woman and uses she and they pronouns.")
![Disability Misconceptions Tag (EDS) [CC]](https://i.ytimg.com/vi/sBSzm9RbXAY/hqdefault.jpg "Disability Misconceptions Tag (EDS) [CC]
This is the Disability Misconceptions Tag! Lets talk about how EDS impacts my daily life, how not all of us are gonna look like the textbook images (ie contortionists and severe stretchy skin), how ambulatory wheelchair users and fluid disabilities exist, the harm misconceptions can bring and how we can combat these misconceptions.
T-shirt Im wearing:
My TeePublic store https://www.teepublic.com/t-shirt/2786490-nobody-knows-i-have-eds
Or you can sign up to be notified when the Bonfire campaign comes back http://bonfire.com/nobody-knows-i-have-eds
My EDS Playlist: https://www.youtube.com/watch?v=moGxnPIsu6k&list=PLzbLZiJEtlO6NE3AtdWkm2gZKiMcfhw_X
Tagged by FashionEyesta https://www.youtube.com/watch?v=a48x-jJIdpw&t
Questions for the tag:
What is your disability and how does it impact you?
What is the most common misconception that you experience in regards to your disability?
Which misconception annoys you the most?
Do you do anything to combat these misconceptions?
What more do you think can be done to combat the misconception around your disability?
SUPPORT THIS CREATOR
If you enjoy my videos, please consider supporting this channel!
Patreon: https://www.patreon.com/annieelainey
PayPal: http://paypal.me/annieelainey
Amazon Wish List: http://a.co/gyCgqsf
CONTRIBUTE CAPTIONS/SUBTITLES FOR THIS VIDEO
-Click on the gear in the lower-right corner of the video
-Click Subtitles/CC
-Click Add subtitles/CC
-You can contribute Closed Captions in English or subtitles in ANY other language
LIST OF VIDEOS YET TO BE CAPTIONED
https://www.youtube.com/timedtext_cs_panel?tab=2&c=UCznS4Pk3VcTIfDUuWrQtdzQ
FIND ME ON THE INTERNET
Facebook http://www.facebook.com/ann.e.segarra
Tumblr http://annieelainey.tumblr.com
Twitter http://twitter.com/annieelainey
Instagram http://instagram.com/annieelainey
Snapchat http://snapchat.com/add/annieelainey
Periscope AnnieElainey
My Associate Store: http://astore.amazon.com/annielai-20
CHANNEL DESCRIPTION
Annie Segarra (Annie Elainey) creates mainly first-person videos on introspective topics, social topics, sharing her experiences and thoughts on disability, body image, LGBT topics, gender equality, etc, as well as creative content; a variety of music/artistic media and short films. Annie identifies as a queer disabled (Ehlers-Danlos Syndrome) Latinx woman and uses she and they pronouns.")
![Reflecting on Violence Against Identity (Part 2/4) [CC]](https://i.ytimg.com/vi/sH5b_RtejDY/hqdefault.jpg "Reflecting on Violence Against Identity (Part 2/4) [CC]
PART 3: https://www.youtube.com/watch?v=55_UWVYB8JY
The attack on Pulse last weekend was actually among other events and circumstances that currently leave me feeling pain about my identities, feeling hyper aware of the kind of hatred I risk facing in my day to day life, so here are some of my current feelings as I process everything.
New Videos Monday-Friday #WithCaptions Subscribe!
If you enjoy my videos, please consider supporting this channel and/or my medical funds:
Patreon: https://www.patreon.com/annieelainey
Medical Expenses, Pain Relief, and Mobility Devices: http://bit.ly/1U62Kti
PayPal: http://bit.ly/1D7QYW2
FIND ME ON THE INTERNET AND LETS BE FRIENDS!
http://facebook.com/annesegarra
http://annieelainey.tumblr.com
http://instagram.com/annieelainey
http://twitter.com/annieelainey
http://snapchat.com/add/annieelainey
Periscope: AnnieElainey
ABOUT ME
Hello, hello! My name is Annie, my pronouns are she/her, and Im a QWoC, body positive, wheelchair user, disabled and chronically ill person (or spoonie).
I create videos five days a week (as long as my health allows) usually introspective topics, social topics, sharing my experiences and point of view with/on disability, body image, sex/gender/dating, gender equality, etc, as well as a variety of music/artistic media, tags/challenges, and day-in-the-life vlogs.
*Currently working on captioning ALL videos, contributions are welcome!
CONTRIBUTE SUBTITLES FOR THIS VIDEO
-Click on the gear in the lower-right corner of the video
-Click Subtitles/CC
-Click Add subtitles/CC
-You can contribute Closed Captions in English or subtitles in ANY other language.")
![Sometimes No One is Going to Have Your Back [CC]](https://i.ytimg.com/vi/sSx98ClmkGg/hqdefault.jpg "Sometimes No One is Going to Have Your Back [CC]
When youre vulnerable enough to admit that you need help, but then find that its not possible for anyone to help you, keep fighting, fights once thought to be impossible have been won before, and you can win this thing! If you enjoy my videos, please consider supporting this channel and/or my medical funds:
Patreon: https://www.patreon.com/annieelainey
Medical Expenses, Pain Relief, and Mobility Devices: http://bit.ly/1U62Kti
PayPal: http://bit.ly/1D7QYW2
FIND ME ON THE INTERNET AND LETS BE FRIENDS!
http://annieelainey.tumblr.com
http://instagram.com/annieelainey
http://twitter.com/annieelainey
http://facebook.com/annesegarra
Snapchat: annieelainey
PLEASE SUBSCRIBE AND CHECK OUT MORE VIDEOS
http://youtube.com/theannieelainey")
![Small YouTuber Tag + THANK YOU 5K SUBS! [CC]](https://i.ytimg.com/vi/smA3gaqf7TU/hqdefault.jpg "Small YouTuber Tag + THANK YOU 5K SUBS! [CC]
Small YouTuber Tag to celebrate 5k!! Thank you so much for subscribing and all your support and for sharing things with me and engaging in dialogue! I love our little fam!!
New Videos Monday-Friday #WithCaptions Subscribe!
READ MORE BELOW!
1. what inspired you to start making videos?
2. how long have you been on YouTube, and have you had other channels?
3. where do you see yourself (and your YouTube channel) in 5 years?
4. what message are you trying to get across with your videos?
5. do people from school find your channel?
6. what does your username mean?
7. favorite “small” YouTuber?
***IN THIS VIDEO***
Mic used: http://amzn.to/2ahAuT5
Camera used: http://amzn.to/2a5jPCq
My Associate Store: http://astore.amazon.com/annielai-20
***SUPPORT THIS CREATOR***
If you enjoy my videos, please consider supporting this channel and/or my medical funds:
Patreon: https://www.patreon.com/annieelainey
PayPal: http://bit.ly/1D7QYW2
*Currently working on captioning ALL videos, contributions are welcome!
CONTRIBUTE SUBTITLES FOR THIS VIDEO
-Click on the gear in the lower-right corner of the video
-Click Subtitles/CC
-Click Add subtitles/CC
-You can contribute Closed Captions in English or subtitles in ANY other language.
***FIND ME ON THE INTERNET AND LETS BE FRIENDS!***
http://facebook.com/annesegarra
http://annieelainey.tumblr.com
http://instagram.com/annieelainey
http://twitter.com/annieelainey
http://snapchat.com/add/annieelainey
Periscope: AnnieElainey
***ABOUT ME***
Hello, hello! My name is Annie, my pronouns are she/her, and Im a QWoC, body positive, wheelchair user, disabled and chronically ill person (or spoonie).
I create videos five days a week (as long as my health allows) usually introspective topics, social topics, sharing my experiences and point of view with/on disability, body image, sex/gender/dating, gender equality, etc, as well as a variety of music/artistic media, tags/challenges, and day-in-the-life vlogs.")
![ASMR Sleepy Broadway Lullabies w/ Rain Sounds | VLOGMAS DAY 14 [CC]](https://i.ytimg.com/vi/tWeeCObXn60/hqdefault.jpg "ASMR Sleepy Broadway Lullabies w/ Rain Sounds | VLOGMAS DAY 14 [CC]
Water lamp on the ceiling, rain sounds, and Broadway lullabies for falling asleep. Check below for time stamps and further video explanation;
1) Not While Im Around - Sweeney Todd 0:00-1:18
2) Dear Theodosia - Hamilton 1:27-4:36
3) Distant Melody - Peter Pan 4:41-6:22
4) Breeze Off The River - The Full Monty 6:26-8:46
5) Stay With Me - Into the Woods 8:50-10:23
6) You WIll Be Found - Dear Evan Hansen 10:28-15:15
Struggling to keep up with errands/physical activities and still record a daily video, chronic fatigue and chronic pain have me down for the count after pushing hard with all the daily tasks so although ASMR is not something I typically do, here is something I attempted and put together before bed last night.
SUPPORT THIS CREATOR
If you enjoy my videos, please consider supporting this channel!
Patreon: https://www.patreon.com/annieelainey
PayPal: http://paypal.me/annieelainey
Amazon Wish List: http://a.co/gyCgqsf
CONTRIBUTE CAPTIONS/SUBTITLES FOR THIS VIDEO
-Click on the gear in the lower-right corner of the video
-Click Subtitles/CC
-Click Add subtitles/CC
-You can contribute Closed Captions in English or subtitles in ANY other language
LIST OF VIDEOS YET TO BE CAPTIONED
https://www.youtube.com/timedtext_cs_panel?tab=2&c=UCznS4Pk3VcTIfDUuWrQtdzQ
FIND ME ON THE INTERNET
Facebook http://www.facebook.com/ann.e.segarra
Tumblr http://annieelainey.tumblr.com
Twitter http://twitter.com/annieelainey
Instagram http://instagram.com/annieelainey
Snapchat http://snapchat.com/add/annieelainey
Periscope AnnieElainey
IN THIS VIDEO
Mic used: http://amzn.to/2ahAuT5
Camera used: http://amzn.to/2a5jPCq
My Associate Store: http://astore.amazon.com/annielai-20
CHANNEL DESCRIPTION
Annie Segarra (Annie Elainey) creates mainly first-person videos on introspective topics, social topics, sharing her experiences and thoughts on disability, body image, LGBT topics, gender equality, etc, as well as creative content; a variety of music/artistic media and short films. Annie identifies as a queer disabled (Ehlers-Danlos Syndrome) Latinx woman and uses she and they pronouns.")
![Creating My Medical Record Binder [CC]](https://i.ytimg.com/vi/tYpEJnxKYdU/hqdefault.jpg "Creating My Medical Record Binder [CC]
Its #WhyNotWednesday! As s spoonie, Ive learned its important to start to keep all medical documents of my journey organized and accessible! So today were gonna try to make a Spoonie Binder because #WhyNot? Materials you will need are below!
Youll need:
Heavy Duty, One-Touch Binder:
-Large: http://amzn.to/2e6LB1F
-Extra Large: http://amzn.to/2dacwru
Dividers
-5 tabs: http://amzn.to/2dae2JV
-8 tabs: http://amzn.to/2dtN4hq
-10 tabs: http://amzn.to/2ecrxi1
-12 tabs: http://amzn.to/2dGRJiR
-26 (alphabet tabs): http://amzn.to/2dtMikI
Business Card Pages (Medical Contacts): http://amzn.to/2dGRzZ8
Clear Sheet Protectors (To avoid hole punching docs): http://amzn.to/2dT1PvQ
Clear CD Pages (X-Rays. MRI + other results) : http://amzn.to/2dafBHP
Christine Miserandinos Spoon Theory:
http://www.butyoudontlooksick.com
http://www.thespoontheory.com
WHAT IS A SPOONIE? http://bit.ly/1S5rrjK
New Videos Monday-Friday #WithCaptions Subscribe!
If you enjoy my videos, please consider supporting this channel and/or my medical funds:
Patreon: https://www.patreon.com/annieelainey
Paypal: http://paypal.me/annieelainey
Medical Expenses, Pain Relief, and Mobility Devices: http://bit.ly/1U62Kti
ABOUT ME
Hello, hello! My name is Annie, my pronouns are she/her, and Im a QWoC, body positive, disabled spoonie. I create videos five days a week (as long as my health allows) usually introspective topics, social topics, disability, body image, sex/gender/dating, feminism, etc, as well as a variety of music/artistic media, tags/challenges, and day-in-the-life vlogs.
*Currently working on captioning ALL videos, contributions are welcome!
CONTRIBUTE SUBTITLES FOR THIS VIDEO
-Click on the gear in the lower-right corner of the video
-Click Subtitles/CC
-Click Add subtitles/CC
-You can contribute Closed Captions in English or subtitles in ANY other language.
FIND ME ON THE INTERNET AND LETS BE FRIENDS!
http://annieelainey.tumblr.com
http://instagram.com/annieelainey
http://twitter.com/annieelainey
http://facebook.com/annesegarra
Snapchat: AnnieElainey
Periscope: AnnieElainey")
![Make The Internet Accessible [CC]](https://i.ytimg.com/vi/u6-9JVWZGXc/hqdefault.jpg "Make The Internet Accessible [CC]
#ICYMI the internet, like most of the world, is catered to people who can see and hear and are neurotypical. Lets talk about online accessiblity! Captions, image descriptions, audio descriptions, transcripts, and inclusive web design. Please share this video with any site or creator (YouTubers, Bloggers, Musicians, Film makers, etc) who you would like to see become a more inclusive online presence!
Your YouTube Videos Need Captions #NoMoreCraptions https://www.youtube.com/watch?v=apKbZOHZF7o
Why Do People Use Image Descriptions? https://www.youtube.com/watch?v=OiCKY2Q8Xg4
TRANSCRIPT AVAILABLE: http://bit.ly/1Sfjet3
Haben Girma’s TEDTalk http://bit.ly/1OvaZMs
How To Caption YouTube Videos (TEXT) http://bit.ly/1tS9WsW
How to Caption YouTube Videos (VIDEO) http://bit.ly/1htSjON
How to Adjust How You See YouTube Captions - Color, font, etc. (TEXT) http://bit.ly/1oCtST9
How To Contribute YouTube Captions/Subtitles (TEXT) http://bit.ly/1LyF3aC
How To Add Image Descriptions (TEXT) http://bit.ly/2083JJB
More on Image Descriptions (TEXT) http://stanford.io/1PVmMze
How to Add Transcripts (TEXT) http://bit.ly/1Scq6aA
Intro to Accessible Web Design (TEXT) http://bit.ly/1PxbG3w
Web Accessibility Guidelines (TEXT) http://bit.ly/1Tgfqfx
Rikki Poynter on Captions (VIDEO) http://bit.ly/1Dtfcck
Rikki Poynter Easiest Way To Caption (VIDEO) http://bit.ly/1NavrOp
James Rath on Audio Descriptions (VIDEO) http://bit.ly/1Yguief
Tim Noonan on Web Inclusivisivity (Accessible Web Design) (VIDEO) http://bit.ly/1VzNvIy
New Videos Monday-Friday #WithCaptions Subscribe!
HELP ME GET TO VIDCON: http://bit.ly/1XI8Ez6
If you enjoy my videos, please consider supporting this channel and/or my medical funds:
Patreon: https://www.patreon.com/annieelainey
Medical Expenses, Pain Relief, and Mobility Devices: http://bit.ly/1U62Kti
PayPal: http://bit.ly/1D7QYW2
ABOUT ME
Hello, hello! My name is Annie, my pronouns are she/her, and Im a QWoC, body positive, disabled spoonie. I create videos five days a week (as long as my health allows) usually introspective topics, social topics, disability, body image, sex/gender/dating, feminism, etc, as well as a variety of music/artistic media, tags/challenges, and day-in-the-life vlogs.
*Currently working on captioning ALL videos, contributions are welcome!
CONTRIBUTE SUBTITLES FOR THIS VIDEO
-Click on the gear in the lower-right corner of the video
-Click Subtitles/CC
-Click Add subtitles/CC
-You can contribute Closed Captions in English or subtitles in ANY other language.
FIND ME ON THE INTERNET AND LETS BE FRIENDS!
http://annieelainey.tumblr.com
http://instagram.com/annieelainey
http://twitter.com/annieelainey
http://facebook.com/annesegarra
Snapchat: AnnieElainey
Periscope: AnnieElainey")
![Straw Bans Are DANGEROUS For Disabled People [CC]](https://i.ytimg.com/vi/uRy_0IEwxMw/hqdefault.jpg "Straw Bans Are DANGEROUS For Disabled People [CC]
Plastic straws are necessary medical tools and creating legal bans endangers the lives of disabled people. In this video I talk about the history of its use, why alternatives do not work, the variety of ways banning them is dangerous and stigmatizing, and my hope that environmentalism becomes more intersectional and acknowledges the needs of disabled people without dismissing them as lazy or wasteful.
Illustrations by Ashe Walker
http://instagram.com/marsupialpudding
http://youtube.com/marsupialpudding
VIDEO SOURCES:
Straw Twitter Moments: https://mobile.twitter.com/i/moments/1024935203666624513
Straw Chart: https://twitter.com/rollwthepunches/status/1022355150554492929?s=20
Santa Barbara: https://reason.com/blog/2018/07/19/santa-barbara-bans-plastic-straws-proscr
Straw Denial: https://www.yahoo.com/lifestyle/viral-tweet-thread-shows-straw-230822656.html
Plastic straw statistic: https://phys.org/news/2018-04-science-amount-straws-plastic-pollution.html
Alternative Straws More Wasteful: https://nypost.com/2018/08/02/your-10-reusable-steel-straw-may-be-creating-more-waste/
Alternative Straws Terrible Solution: https://www.sfchronicle.com/restaurants/article/Why-nonplastic-straws-are-a-terrible-solution-to-14432654.php?t=7a12bec1c5
Anaphylactic attack due to biodegradable plastic straw: https://twitter.com/somesaylezzels/status/1171221293959507968?s=21
Woman impaled by metal straw: https://www.nytimes.com/2019/07/11/world/europe/metal-straws-death.html
SUPPORT THIS CREATOR
Patreon: https://www.patreon.com/annieelainey
Wishlist: http://a.co/dbJlD3F
Merch: http://teepublic.com/user/annieelainey
One-time Donations
Paypal: https://www.paypal.me/annieelainey
Ko-fi: https://ko-fi.com/annieelainey
Venmo: https://venmo.com/annieelainey
Cash: https://cash.me/$annieelainey
FIND ME ON THE INTERNET
Facebook http://www.facebook.com/ann.e.segarra
Twitter http://twitter.com/annieelainey
Instagram http://instagram.com/annieelainey
Tumblr http://annieelainey.tumblr.com
YouNow: AnnieElainey
CONTRIBUTE CAPTIONS/SUBTITLES FOR THIS VIDEO
-Click on the gear in the lower-right corner of the video
-Click Subtitles/CC
-Click Add subtitles/CC
-You can contribute Closed Captions in English or subtitles in ANY other language
LIST OF VIDEOS YET TO BE CAPTIONED
https://www.youtube.com/timedtext_cs_panel?tab=2&c=UCznS4Pk3VcTIfDUuWrQtdzQ
My Associate Store: http://astore.amazon.com/annielai-20
CHANNEL DESCRIPTION
Annie Segarra (Annie Elainey) creates mainly first-person videos on introspective topics, social topics, sharing her experiences and thoughts on disability, body image, LGBT topics, gender equality, etc, as well as creative content; a variety of music/artistic media and short films. Annie identifies as a queer disabled (Ehlers-Danlos Syndrome) Latinx woman and uses she and they pronouns.")
