Uploaded February 2025 | Updated September 2026, 2 weeks ago
What if your skin was as fragile as a butterfly’s wing? That’s the reality for kids with Epidermolysis Bullosa (EB)—a rare, life-threatening disease that causes unbearable pain and wounds that never heal.
But there’s hope.
For Rare Disease Day, some of the biggest names—Eddie Vedder, Tom Holland, Olivia Rodrigo, Keanu Reeves, Billie Eilish, Ed Sheeran, and Kristen Bell—are coming together to shine a light on EB and ask YOU to join the fight.
🚀 The Cure is Within Reach. EB Research Partnership (EBRP) is leading the way with a revolutionary approach called funding treatments that could not only cure EB but pave the way for thousands of other rare diseases.
Watch.
Share.
Donate.
Be part of history.
Every view, every share, every dollar brings us closer to the cure.
DONATE NOW: EBResearch.org/Rare
Learn More: ebresearch.org
#CureEB #RareDiseaseDay #EBResearch #ButterflyChildren #EndEB #HealEB
What if your skin was as fragile as a butterfly’s wing? That’s the reality for kids with Epidermolysis Bullosa (EB)—a rare, life-threatening disease that causes unbearable pain and wounds that never heal.
But there’s hope.
For Rare Disease Day, some of the biggest names—Eddie Vedder, Tom Holland, Olivia Rodrigo, Keanu Reeves, Billie Eilish, Ed Sheeran, and Kristen Bell—are coming together to shine a light on EB and ask YOU to join the fight.
🚀 The Cure is Within Reach. EB Research Partnership (EBRP) is leading the way with a revolutionary approach called funding treatments that could not only cure EB but pave the way for thousands of other rare diseases.
Watch.
Share.
Donate.
Be part of history.
Every view, every share, every dollar brings us closer to the cure.
DONATE NOW: EBResearch.org/Rare
Learn More: ebresearch.org
#CureEB #RareDiseaseDay #EBResearch #ButterflyChildren #EndEB #HealEB
