Uploaded December 2021 | Updated September 2026, 2 weeks ago
EB Research Partnership is on a mission to be the guiding light for families living with and navigating EB. AWS and EBRP have partnered to create a first-of-its-kind data platform to uniting the medical and patient communities to share data, collaborate, and work together to accelerate treatments and cures - first for EB, and followed by the 7,000 rare diseases that impact 10% of the global population.
Learn more about EBRP's mission to heal EB at https://www.ebresearch.org.
Make your donation for life-saving research at give.ebresearch.org/donate.
Together, we will #healEB.
EB Research Partnership is on a mission to be the guiding light for families living with and navigating EB. AWS and EBRP have partnered to create a first-of-its-kind data platform to uniting the medical and patient communities to share data, collaborate, and work together to accelerate treatments and cures - first for EB, and followed by the 7,000 rare diseases that impact 10% of the global population.
Learn more about EBRP's mission to heal EB at https://www.ebresearch.org.
Make your donation for life-saving research at give.ebresearch.org/donate.
Together, we will #healEB.
