Uploaded July 2019 | Updated September 2026, 2 weeks ago
Filmed in 2019, this heartfelt moment would go on to inspire the award-winning documentary Matter of Time. Eli and his sister Lily are inviting the world to #ComeSayHi — because they know that the more we understand and celebrate our differences, the better the world becomes.
Their simple two-letter message — “hi” — can open doors, spark compassion, raise awareness, and help us find a cure for EB.
This story touched countless hearts, including Eddie Vedder, who helped share Eli’s message of kindness and hope with the world.
Special thanks to our friends at Door Knocker Media for helping bring this project to life.
See Eli’s story in the award-winning documentary Matter of Time, now playing at select film festivals around the world.
About EB Research Partnership
ebresearch.org
Founded in 2010 by a group of dedicated parents and Jill and Eddie Vedder of Pearl Jam, EB Research Partnership is the largest 501c3 nonprofit funding research to find a cure for Epidermolysis Bullosa (EB). EB is a group of devastating and life-threatening genetic skin disorders that affect children from birth.
ebresearch.org
Filmed in 2019, this heartfelt moment would go on to inspire the award-winning documentary Matter of Time. Eli and his sister Lily are inviting the world to #ComeSayHi — because they know that the more we understand and celebrate our differences, the better the world becomes.
Their simple two-letter message — “hi” — can open doors, spark compassion, raise awareness, and help us find a cure for EB.
This story touched countless hearts, including Eddie Vedder, who helped share Eli’s message of kindness and hope with the world.
Special thanks to our friends at Door Knocker Media for helping bring this project to life.
See Eli’s story in the award-winning documentary Matter of Time, now playing at select film festivals around the world.
About EB Research Partnership
ebresearch.org
Founded in 2010 by a group of dedicated parents and Jill and Eddie Vedder of Pearl Jam, EB Research Partnership is the largest 501c3 nonprofit funding research to find a cure for Epidermolysis Bullosa (EB). EB is a group of devastating and life-threatening genetic skin disorders that affect children from birth.
ebresearch.org
