Uploaded December 2024 | Updated September 2026, 2 weeks ago
Welcome to our 12 Days of Gratitude! As we reflect on 2024, we’re filled with appreciation for this incredible community driving toward our bold mission to accelerate treatments and a cure for EB. Together, we’re creating a butterfly effect that will transform the lives of those impacted by EB and 10,000+ other rare diseases.
We’re so thankful for the brilliant medical experts working tirelessly to find a cure, our visionary Board and Co-Founders, Jill and Eddie Vedder, for their leadership, our generous supporters for fueling this journey, and the courageous families facing EB who inspire us every single day. 💙
Let’s celebrate the progress we’ve made and the hope we share for the future! See more about our #12DaysOfGratitude at ebresearch.org/2024
Welcome to our 12 Days of Gratitude! As we reflect on 2024, we’re filled with appreciation for this incredible community driving toward our bold mission to accelerate treatments and a cure for EB. Together, we’re creating a butterfly effect that will transform the lives of those impacted by EB and 10,000+ other rare diseases.
We’re so thankful for the brilliant medical experts working tirelessly to find a cure, our visionary Board and Co-Founders, Jill and Eddie Vedder, for their leadership, our generous supporters for fueling this journey, and the courageous families facing EB who inspire us every single day. 💙
Let’s celebrate the progress we’ve made and the hope we share for the future! See more about our #12DaysOfGratitude at ebresearch.org/2024

