Uploaded November 2021 | Updated September 2026, 2 weeks ago

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"Lylah Scott deserves a life free of pain," says Sofia Carson. Lylah is a young girl living with Epidermolysis Bullosa (EB) in Australia. Despite the challenges of living with this devastating disorder, Lylah radiates joy, courage, and an innocent optimism we can all learn from. No child should have to feel pain from simply wearing a pair of shoes. Help us find a cure for Lylah and all others living with EB by making a donation to innovative research at give.ebresearch.org/donate.