Annie Elainey | Autism Q&A [CC] @theannieelainey | Uploaded April 2021 | Updated October 2024, 1 hour ago.
If you asked me an autism-related question last year after my coming out video, it may be in this video! Timestamps below for easier navigation! Resources and other links as well! Beneath it all are links to help support my content!
Timestamps:
Do you have autistic relatives? 1:27
What’s it like having an autistic sibling? Do you have better communication? 2:21
“Why do you call yourself autistic versus a person with autism?” 3:47
"I wouldn't think you're autistic + Not saying you're not + Everyone can relate, specifically with the anxiety part" 5:35
"What are some ways you used to learn how to mask?" 9:49
"What is stimming?" 12:36
"How does one get a diagnosis?" 16:17
“Does your physical disability affect how you experience your autism?” 24:39
"Have you ever experienced meltdowns?" 25:54
"What’s something you think is really cool about your autism?" 26:15
"Is there something that makes conversations/emails more accessible to you?" 27:45
"What do you wish strangers would be more conscious of?" 28:57
"Advice for teachers?" 30:46
I also forgot "masking" was another vocab word. Masking is a complex and costly survival strategy for autistic people. It generally involves intentionally learning neurotypical behaviors and mimicking them in social situations. Sometimes masking focuses on hiding behaviors that people feel won't be accepted.
IFL vs PFL video
youtube.com/watch?v=SMKKze48Qbo
Pre-Diagnosis Support
autism.org.uk/advice-and-guidance/topics/diagnosis/pre-diagnosis/adults
**REMINDER “Aspergers” is no longer used. It is just Autism, autism is a giant spectrum.**
Some screening tests.
aspietests.org
rdos.net/eng/Aspie-quiz.php
Diagnosis
A Guide To Autism Diagnosis For Adults
autismawarenesscentre.com/am-i-autistic-a-guide-to-diagnosis-for-adults
I Self-Diagnosed My Autism Because No One Else Would. Heere's Why That Needs To Change
theswaddle.com/i-self-diagnosed-my-autism-because-nobody-else-would-heres-why-that-needs-to-change
Autism in Women
scientificamerican.com/article/autism-it-s-different-in-girls
the-art-of-autism.com/females-and-aspergers-a-checklist
childmind.org/article/autistic-girls-overlooked-undiagnosed-autism
healthline.com/health/autism-in-women
autism.org.uk/womensday
spectrumnews.org/features/deep-dive/costs-camouflaging-autism
aane.org/women-asperger-profiles
sciencedaily.com/releases/2018/01/180104160813.htm
verywellhealth.com/signs-of-autism-in-girls-260304
autism.org.uk/womensday
spectrumnews.org/features/deep-dive/costs-camouflaging-autism
nytimes.com/2007/08/05/magazine/05autism-t.html
iancommunity.org/ssc/girls-autism-hiding-plain-sight
wired.co.uk/article/underdiagnosis-autism-women-and-girls
spectrumwomen.com/general/the-chameleons-women-with-autism
Ehlers-Danlos Syndrome and Autism
autism.org/researchers-have-identified-a-relationship-between-ehlers-danlos-syndrome-and-autism
ncbi.nlm.nih.gov/pmc/articles/PMC7711487
ehlers-danlos.com/wp-content/uploads/2020vsc_caroline_baeza-velasco.pdf
researchgate.net/publication/346526195_The_Relationship_between_Autism_and_Ehlers-Danlos_SyndromesHypermobility_Spectrum_Disorders
Please consider supporting my content via the links below, it would help me greatly to delegate some of the processes of content creation to editors, captioners, etc.
SUPPORT THIS CREATOR
Patreon: patreon.com/annieelainey
Wishlist: http://a.co/dbJlD3F
Merch: teepublic.com/user/annieelainey
One-time Donations
Paypal: paypal.me/annieelainey
Ko-fi: ko-fi.com/annieelainey
Venmo: venmo.com/annieelainey
Cash: cash.me/$annieelainey
FIND ME ON THE INTERNET
Facebook facebook.com/ann.e.segarra
Twitter twitter.com/annieelainey
Instagram instagram.com/annieelainey
Tumblr annieelainey.tumblr.com
YouNow: AnnieElainey
CONTRIBUTE CAPTIONS/SUBTITLES FOR THIS VIDEO
-Click on the gear in the lower-right corner of the video
-Click "Subtitles/CC"
-Click "Add subtitles/CC
-You can contribute Closed Captions in English or subtitles in ANY other language
LIST OF VIDEOS YET TO BE CAPTIONED
youtube.com/timedtext_cs_panel?tab=2&c=UCznS4Pk3VcTIfDUuWrQtdzQ
My Associate Store: astore.amazon.com/annielai-20
CHANNEL DESCRIPTION
Annie Segarra (Annie Elainey) creates mainly first-person videos on introspective topics, social topics, sharing her experiences and thoughts on disability, body image, LGBT topics, gender equality, etc, as well as creative content; a variety of music/artistic media and short films. Annie identifies as a queer disabled (Ehlers-Danlos Syndrome) Latinx woman and uses she and they pronouns.
If you asked me an autism-related question last year after my coming out video, it may be in this video! Timestamps below for easier navigation! Resources and other links as well! Beneath it all are links to help support my content!
Timestamps:
Do you have autistic relatives? 1:27
What’s it like having an autistic sibling? Do you have better communication? 2:21
“Why do you call yourself autistic versus a person with autism?” 3:47
"I wouldn't think you're autistic + Not saying you're not + Everyone can relate, specifically with the anxiety part" 5:35
"What are some ways you used to learn how to mask?" 9:49
"What is stimming?" 12:36
"How does one get a diagnosis?" 16:17
“Does your physical disability affect how you experience your autism?” 24:39
"Have you ever experienced meltdowns?" 25:54
"What’s something you think is really cool about your autism?" 26:15
"Is there something that makes conversations/emails more accessible to you?" 27:45
"What do you wish strangers would be more conscious of?" 28:57
"Advice for teachers?" 30:46
I also forgot "masking" was another vocab word. Masking is a complex and costly survival strategy for autistic people. It generally involves intentionally learning neurotypical behaviors and mimicking them in social situations. Sometimes masking focuses on hiding behaviors that people feel won't be accepted.
IFL vs PFL video
youtube.com/watch?v=SMKKze48Qbo
Pre-Diagnosis Support
autism.org.uk/advice-and-guidance/topics/diagnosis/pre-diagnosis/adults
**REMINDER “Aspergers” is no longer used. It is just Autism, autism is a giant spectrum.**
Some screening tests.
aspietests.org
rdos.net/eng/Aspie-quiz.php
Diagnosis
A Guide To Autism Diagnosis For Adults
autismawarenesscentre.com/am-i-autistic-a-guide-to-diagnosis-for-adults
I Self-Diagnosed My Autism Because No One Else Would. Heere's Why That Needs To Change
theswaddle.com/i-self-diagnosed-my-autism-because-nobody-else-would-heres-why-that-needs-to-change
Autism in Women
scientificamerican.com/article/autism-it-s-different-in-girls
the-art-of-autism.com/females-and-aspergers-a-checklist
childmind.org/article/autistic-girls-overlooked-undiagnosed-autism
healthline.com/health/autism-in-women
autism.org.uk/womensday
spectrumnews.org/features/deep-dive/costs-camouflaging-autism
aane.org/women-asperger-profiles
sciencedaily.com/releases/2018/01/180104160813.htm
verywellhealth.com/signs-of-autism-in-girls-260304
autism.org.uk/womensday
spectrumnews.org/features/deep-dive/costs-camouflaging-autism
nytimes.com/2007/08/05/magazine/05autism-t.html
iancommunity.org/ssc/girls-autism-hiding-plain-sight
wired.co.uk/article/underdiagnosis-autism-women-and-girls
spectrumwomen.com/general/the-chameleons-women-with-autism
Ehlers-Danlos Syndrome and Autism
autism.org/researchers-have-identified-a-relationship-between-ehlers-danlos-syndrome-and-autism
ncbi.nlm.nih.gov/pmc/articles/PMC7711487
ehlers-danlos.com/wp-content/uploads/2020vsc_caroline_baeza-velasco.pdf
researchgate.net/publication/346526195_The_Relationship_between_Autism_and_Ehlers-Danlos_SyndromesHypermobility_Spectrum_Disorders
Please consider supporting my content via the links below, it would help me greatly to delegate some of the processes of content creation to editors, captioners, etc.
SUPPORT THIS CREATOR
Patreon: patreon.com/annieelainey
Wishlist: http://a.co/dbJlD3F
Merch: teepublic.com/user/annieelainey
One-time Donations
Paypal: paypal.me/annieelainey
Ko-fi: ko-fi.com/annieelainey
Venmo: venmo.com/annieelainey
Cash: cash.me/$annieelainey
FIND ME ON THE INTERNET
Facebook facebook.com/ann.e.segarra
Twitter twitter.com/annieelainey
Instagram instagram.com/annieelainey
Tumblr annieelainey.tumblr.com
YouNow: AnnieElainey
CONTRIBUTE CAPTIONS/SUBTITLES FOR THIS VIDEO
-Click on the gear in the lower-right corner of the video
-Click "Subtitles/CC"
-Click "Add subtitles/CC
-You can contribute Closed Captions in English or subtitles in ANY other language
LIST OF VIDEOS YET TO BE CAPTIONED
youtube.com/timedtext_cs_panel?tab=2&c=UCznS4Pk3VcTIfDUuWrQtdzQ
My Associate Store: astore.amazon.com/annielai-20
CHANNEL DESCRIPTION
Annie Segarra (Annie Elainey) creates mainly first-person videos on introspective topics, social topics, sharing her experiences and thoughts on disability, body image, LGBT topics, gender equality, etc, as well as creative content; a variety of music/artistic media and short films. Annie identifies as a queer disabled (Ehlers-Danlos Syndrome) Latinx woman and uses she and they pronouns.
![Autism Q&A [CC]](https://i.ytimg.com/vi/pKM77S5hGQw/hqdefault.jpg "Autism Q&A [CC]
If you asked me an autism-related question last year after my coming out video, it may be in this video! Timestamps below for easier navigation! Resources and other links as well! Beneath it all are links to help support my content!
Timestamps:
Do you have autistic relatives? 1:27
What’s it like having an autistic sibling? Do you have better communication? 2:21
“Why do you call yourself autistic versus a person with autism?” 3:47
I wouldnt think youre autistic + Not saying youre not + Everyone can relate, specifically with the anxiety part 5:35
What are some ways you used to learn how to mask? 9:49
What is stimming? 12:36
How does one get a diagnosis? 16:17
“Does your physical disability affect how you experience your autism?” 24:39
Have you ever experienced meltdowns? 25:54
What’s something you think is really cool about your autism? 26:15
Is there something that makes conversations/emails more accessible to you? 27:45
What do you wish strangers would be more conscious of? 28:57
Advice for teachers? 30:46
I also forgot masking was another vocab word. Masking is a complex and costly survival strategy for autistic people. It generally involves intentionally learning neurotypical behaviors and mimicking them in social situations. Sometimes masking focuses on hiding behaviors that people feel wont be accepted.
IFL vs PFL video
https://www.youtube.com/watch?v=SMKKze48Qbo
Pre-Diagnosis Support
https://www.autism.org.uk/advice-and-guidance/topics/diagnosis/pre-diagnosis/adults
**REMINDER “Aspergers” is no longer used. It is just Autism, autism is a giant spectrum.**
Some screening tests.
https://www.aspietests.org/
http://rdos.net/eng/Aspie-quiz.php
Diagnosis
A Guide To Autism Diagnosis For Adults
https://autismawarenesscentre.com/am-i-autistic-a-guide-to-diagnosis-for-adults/
I Self-Diagnosed My Autism Because No One Else Would. Heeres Why That Needs To Change
https://theswaddle.com/i-self-diagnosed-my-autism-because-nobody-else-would-heres-why-that-needs-to-change/
Autism in Women
https://www.scientificamerican.com/article/autism-it-s-different-in-girls/
https://the-art-of-autism.com/females-and-aspergers-a-checklist/
https://childmind.org/article/autistic-girls-overlooked-undiagnosed-autism/
https://www.healthline.com/health/autism-in-women
https://www.autism.org.uk/womensday
https://www.spectrumnews.org/features/deep-dive/costs-camouflaging-autism/
https://www.aane.org/women-asperger-profiles/
https://www.sciencedaily.com/releases/2018/01/180104160813.htm
https://www.verywellhealth.com/signs-of-autism-in-girls-260304
https://www.autism.org.uk/womensday
https://www.spectrumnews.org/features/deep-dive/costs-camouflaging-autism/
https://www.nytimes.com/2007/08/05/magazine/05autism-t.html
https://iancommunity.org/ssc/girls-autism-hiding-plain-sight
https://www.wired.co.uk/article/underdiagnosis-autism-women-and-girls
http://www.spectrumwomen.com/general/the-chameleons-women-with-autism/
Ehlers-Danlos Syndrome and Autism
https://www.autism.org/researchers-have-identified-a-relationship-between-ehlers-danlos-syndrome-and-autism/
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7711487/
https://www.ehlers-danlos.com/wp-content/uploads/2020vsc_caroline_baeza-velasco.pdf
https://www.researchgate.net/publication/346526195_The_Relationship_between_Autism_and_Ehlers-Danlos_SyndromesHypermobility_Spectrum_Disorders
Please consider supporting my content via the links below, it would help me greatly to delegate some of the processes of content creation to editors, captioners, etc.
SUPPORT THIS CREATOR
Patreon: https://www.patreon.com/annieelainey
Wishlist: http://a.co/dbJlD3F
Merch: http://teepublic.com/user/annieelainey
One-time Donations
Paypal: https://www.paypal.me/annieelainey
Ko-fi: https://ko-fi.com/annieelainey
Venmo: https://venmo.com/annieelainey
Cash: https://cash.me/$annieelainey
FIND ME ON THE INTERNET
Facebook http://www.facebook.com/ann.e.segarra
Twitter http://twitter.com/annieelainey
Instagram http://instagram.com/annieelainey
Tumblr http://annieelainey.tumblr.com
YouNow: AnnieElainey
CONTRIBUTE CAPTIONS/SUBTITLES FOR THIS VIDEO
-Click on the gear in the lower-right corner of the video
-Click Subtitles/CC
-Click Add subtitles/CC
-You can contribute Closed Captions in English or subtitles in ANY other language
LIST OF VIDEOS YET TO BE CAPTIONED
https://www.youtube.com/timedtext_cs_panel?tab=2&c=UCznS4Pk3VcTIfDUuWrQtdzQ
My Associate Store: http://astore.amazon.com/annielai-20
CHANNEL DESCRIPTION
Annie Segarra (Annie Elainey) creates mainly first-person videos on introspective topics, social topics, sharing her experiences and thoughts on disability, body image, LGBT topics, gender equality, etc, as well as creative content; a variety of music/artistic media and short films. Annie identifies as a queer disabled (Ehlers-Danlos Syndrome) Latinx woman and uses she and they pronouns.")
![15 CHEESY WHEELCHAIR PICK UP LINES [CC]](https://i.ytimg.com/vi/pXFOHK1o6tQ/hqdefault.jpg "15 CHEESY WHEELCHAIR PICK UP LINES [CC]
If you thought as a wheelchair user that we were excluded from cheesy pick-up lines... youd be wrong. Im just as surprised. Some of them are pretty cringe-worthy, some I find moderately funny! Do you know of any more pick up lines? [CLICK TO READ MORE]
New Videos Monday-Friday #WithCaptions Subscribe!
HELP ME GET TO VIDCON: http://bit.ly/1XI8Ez6
If you enjoy my videos, please consider supporting this channel and/or my medical funds:
Patreon: https://www.patreon.com/annieelainey
Medical Expenses, Pain Relief, and Mobility Devices: http://bit.ly/1U62Kti
PayPal: http://bit.ly/1D7QYW2
ABOUT ME
Hello, hello! My name is Annie, my pronouns are she/her, and Im a QWoC, body positive, disabled spoonie. I create videos five days a week (as long as my health allows) usually introspective topics, social topics, disability, body image, sex/gender/dating, feminism, etc, as well as a variety of music/artistic media, tags/challenges, and day-in-the-life vlogs.
*Currently working on captioning ALL videos, contributions are welcome!
CONTRIBUTE SUBTITLES FOR THIS VIDEO
-Click on the gear in the lower-right corner of the video
-Click Subtitles/CC
-Click Add subtitles/CC
-You can contribute Closed Captions in English or subtitles in ANY other language.
FIND ME ON THE INTERNET AND LETS BE FRIENDS!
http://annieelainey.tumblr.com
http://instagram.com/annieelainey
http://twitter.com/annieelainey
http://facebook.com/annesegarra
Snapchat: AnnieElainey
Periscope: AnnieElainey")
![3 Messages For Caption Contributors | #NoMoreCraptions [CC]](https://i.ytimg.com/vi/pZ0H9YaNjVE/hqdefault.jpg "3 Messages For Caption Contributors | #NoMoreCraptions [CC]
This video is part of my participation in the #NoMoreCraptions campaign for the original video click here: https://www.youtube.com/watch?v=apKbZOHZF7o
CLICK BELOW FOR VIDEOS MENTIONED:
- How To Contribute Captions https://www.youtube.com/watch?annotation_id=annotation_1444710283&feature=iv&src_vid=ZYWSZjUeFDE&v=b9cKgwnFIAw
-Stop Adding Jokes and Useless Commentary Into YouTubers Captions! By Rikki Poynter https://www.youtube.com/watch?v=QLQ-85Td2Gs
3 Ways To Caption Your Videos: https://www.youtube.com/watch?v=PH_l1qYKssA
3 Methods for DIY Captions: https://www.youtube.com/watch?v=5UxFXD8Hmcc
3 Tips for DIY Captions: https://www.youtube.com/watch?v=hPVln5IUGNs
3 Ways to Pay for Captions: https://www.youtube.com/watch?v=Zm4QFtfzyB8
3 Messages for Caption Contributors: https://www.youtube.com/watch?v=pZ0H9YaNjVE
New Videos Monday-Friday #WithCaptions Subscribe!
READ MORE BELOW!
***IN THIS VIDEO***
Mic used: http://amzn.to/2ahAuT5
Camera used: http://amzn.to/2a5jPCq
My Associate Store: http://astore.amazon.com/annielai-20
***SUPPORT THIS CREATOR***
If you enjoy my videos, please consider supporting this channel and/or my medical funds:
Patreon: https://www.patreon.com/annieelainey
PayPal: http://bit.ly/1D7QYW2
*Currently working on captioning ALL videos, contributions are welcome!
CONTRIBUTE SUBTITLES FOR THIS VIDEO
-Click on the gear in the lower-right corner of the video
-Click Subtitles/CC
-Click Add subtitles/CC
-You can contribute Closed Captions in English or subtitles in ANY other language.
***FIND ME ON THE INTERNET AND LETS BE FRIENDS!***
http://facebook.com/annesegarra
http://annieelainey.tumblr.com
http://instagram.com/annieelainey
http://twitter.com/annieelainey
http://snapchat.com/add/annieelainey
Periscope: AnnieElainey
***ABOUT ME***
Hello, hello! My name is Annie, my pronouns are she/her, and Im a QWoC, body positive, wheelchair user, disabled and chronically ill person (or spoonie).
I create videos five days a week (as long as my health allows) usually introspective topics, social topics, sharing my experiences and point of view with/on disability, body image, sex/gender/dating, gender equality, etc, as well as a variety of music/artistic media, tags/challenges, and day-in-the-life vlogs.")
![What EDS is like on MY Body #ThisIsMyEDS Tag [CC]](https://i.ytimg.com/vi/qMk-JpMauPw/hqdefault.jpg "What EDS is like on MY Body #ThisIsMyEDS Tag [CC]
Not only are a lot of people still unaware about Ehlers-Danlos Syndrome (EDS) but many who do know about it actually have great misconceptions or misinformation about it; assuming it only looks and acts one way when it actually manifests itself on a wide spectrum, with various symptoms that differ from person to person and can even be fluid. I’d like to use this #EDSAwarenessMonth to uplift the diverse identities and narratives of people with EDS with this tag.
#ThisIsMyEDS Tag for EDS Awareness Month
https://docs.google.com/document/d/1c_UA0QbuxGZnnC49oL9sOl1QZXLitfVtstyfsha6S38/edit?usp=sharing
EDS T-shirts available until May 16th!
http://bonfire.com/ehlers-danlos-zebra-swatch
BTS: Throughout this video my lower back was killing me which is why I was shifting around a lot.
SUPPORT THIS CREATOR
If you enjoy my videos, please consider supporting this channel!
Patreon: https://www.patreon.com/annieelainey
PayPal: http://paypal.me/annieelainey
Amazon Wish List: http://a.co/gyCgqsf
CONTRIBUTE CAPTIONS/SUBTITLES FOR THIS VIDEO
-Click on the gear in the lower-right corner of the video
-Click Subtitles/CC
-Click Add subtitles/CC
-You can contribute Closed Captions in English or subtitles in ANY other language
LIST OF VIDEOS YET TO BE CAPTIONED
https://www.youtube.com/timedtext_cs_panel?tab=2&c=UCznS4Pk3VcTIfDUuWrQtdzQ
FIND ME ON THE INTERNET
http://www.facebook.com/ann.e.segarra
http://annieelainey.tumblr.com
http://twitter.com/annieelainey
http://instagram.com/annieelainey
http://snapchat.com/add/annieelainey
Periscope: AnnieElainey
IN THIS VIDEO
Mic used: http://amzn.to/2ahAuT5
Camera used: http://amzn.to/2a5jPCq
My Associate Store: http://astore.amazon.com/annielai-20
CHANNEL DESCRIPTION
Annie Segarra (Annie Elainey) creates mainly first-person videos on introspective topics, social topics, sharing her experiences and thoughts on disability, body image, LGBT topics, gender equality, etc, as well as creative content; a variety of music/artistic media and short films. Annie identifies as a queer Latinx disabled woman and uses she and they pronouns.")
![I’m autistic [CC]](https://i.ytimg.com/vi/qXynK-rfAnA/hqdefault.jpg "I’m autistic [CC]
This feels pretty vulnerable to talk about… This is something that is just simply a part of my life, where ableism/internalized ableism have left me with trauma to work through (and I AM working through it) and that I couldve continued to keep private for just those closest to me to know.... (cont.)
What opening up about it now means for me is that I officially claim it, I have taken that step forward out of the shadow of shame & internalized ableism. I will practice not being afraid of asking for the clarifications I need or excusing myself when over-stimulated or fatigued. I will not be embarrassed of my stims or when I need to pause to process something or work on my words…
When I speak, there is so much happening internally to get words to come out. I picture these collections of words and phrases that fly around above my head, and as I speak I am working speedily to try to crochet these words into a proper quilted sentence. Every time I successfully do it, I surprise myself, it feels impossible while its happening.
One time I out-louded this visual because I had to say, “The words are floating so slowly now... I try to pull them towards my mind but the processing is taking forever. I’ll get half a sentence out and then find that there are no words left.. I lost my thought.”
My friends and my therapist have all been very encouraging and they have motivated me to share this part of myself hoping that it could do some good for someone else. I hope this video and anything that I share about my experiences can be used as a tool to help others.
Autism spectrum graph by https://my.vanderbilt.edu/autismandinnovation/understanding-the-spectrum/
Tweet by Imani_Barbarin https://twitter.com/Imani_Barbarin/status/1283778600014159876?s=20
SUPPORT THIS CREATOR
Patreon: https://www.patreon.com/annieelainey
Wishlist: http://a.co/dbJlD3F
Merch: http://teepublic.com/user/annieelainey
One-time Donations
Paypal: https://www.paypal.me/annieelainey
Ko-fi: https://ko-fi.com/annieelainey
Venmo: https://venmo.com/annieelainey
Cash: https://cash.me/$annieelainey
FIND ME ON THE INTERNET
Facebook http://www.facebook.com/ann.e.segarra
Twitter http://twitter.com/annieelainey
Instagram http://instagram.com/annieelainey
Tumblr http://annieelainey.tumblr.com
YouNow: AnnieElainey
CONTRIBUTE CAPTIONS/SUBTITLES FOR THIS VIDEO
-Click on the gear in the lower-right corner of the video
-Click Subtitles/CC
-Click Add subtitles/CC
-You can contribute Closed Captions in English or subtitles in ANY other language
LIST OF VIDEOS YET TO BE CAPTIONED
https://www.youtube.com/timedtext_cs_panel?tab=2&c=UCznS4Pk3VcTIfDUuWrQtdzQ
My Associate Store: http://astore.amazon.com/annielai-20
CHANNEL DESCRIPTION
Annie Segarra (Annie Elainey) creates mainly first-person videos on introspective topics, social topics, sharing her experiences and thoughts on disability, body image, LGBT topics, gender equality, etc, as well as creative content; a variety of music/artistic media and short films. Annie identifies as a queer disabled (Ehlers-Danlos Syndrome) Latinx woman and uses she and they pronouns.")
![How I Get Around w/ Ehlers-Danlos Syndrome #ThisIsMyEDS [CC]](https://i.ytimg.com/vi/qxGQ9UMHKBk/hqdefault.jpg "How I Get Around w/ Ehlers-Danlos Syndrome #ThisIsMyEDS [CC]
I have a genetic degenerative condition called Ehlers-Danlos Syndrome, it affects/weakens the joints, skin, blood vessels, and internal organs; within the past few years, my standing/walking limits have steadily declined. Due to chronic pain, joint hypermobility (or laxity/weakness), the risk of injury, dysautonomia, and cardiovascular issues I can only stand/walk for a few seconds to a few minutes (average of 60 seconds) at a time depending on my symptoms, injury, etc. Currently, in order to walk I need very specific circumstances, I need places to sit consistently available to me, guarantees of only having to walk in short bursts, as well as the security of knowing the layout of a place in order to avoid injury. The rest of the time I am a wheelchair user, it is the safest, least painful, most independent, and most efficient way for me to be mobile. In this video, I speak candidly about the mobility aids I use and when I use them.
To learn more about what is actually happening inside my body with EDS check out my previous video Draw My Body #ThisIsMyEDS
https://www.youtube.com/watch?v=bU6ZgIEX0DQ
As well as What EDS Is like on MY Body #ThisIsMyEDS where I speak about how it affects my daily life:
https://www.youtube.com/watch?v=qMk-JpMauPw
SUPPORT THIS CREATOR
If you enjoy my videos, please consider supporting this channel!
Patreon: https://www.patreon.com/annieelainey
PayPal: http://paypal.me/annieelainey
Amazon Wish List: http://a.co/gyCgqsf
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LIST OF VIDEOS YET TO BE CAPTIONED
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Periscope: AnnieElainey
IN THIS VIDEO
Mic used: http://amzn.to/2ahAuT5
Camera used: http://amzn.to/2a5jPCq
My Associate Store: http://astore.amazon.com/annielai-20
CHANNEL DESCRIPTION
Annie Segarra (Annie Elainey) creates mainly first-person videos on introspective topics, social topics, sharing her experiences and thoughts on disability, body image, LGBT topics, gender equality, etc, as well as creative content; a variety of music/artistic media and short films. Annie identifies as a queer disabled (Ehlers-Danlos Syndrome) Latinx woman and uses she and they pronouns.")
![Queer and Disabled Pt. 2 | Representation and Accessibility [CC]](https://i.ytimg.com/vi/re5-d3xb750/hqdefault.jpg "Queer and Disabled Pt. 2 | Representation and Accessibility [CC]
[CC Available, CW: for reclaimed use of the q-slur] In this series four young women, including myself, answer several questions about the intersection of identifying as queer and being disabled. This week’s questions, Do you think media representation of queer disabled folks affects how we are percepted in real life? and Do you feel like LGBTQ+ spaces are accessible to you? Do you feel welcome in those spaces and in queer culture in general?
PART 1: http://bit.ly/1T7ye1a
FOLLOW/SUB:
Rachel: http://bit.ly/1MoEA5J
Robyn: http://bit.ly/1VowZLM
Erin: http://bit.ly/1U92qui
New Videos Monday-Friday #WithCaptions Subscribe!
HELP ME GET TO VIDCON: http://bit.ly/1XI8Ez6
If you enjoy my videos, please consider supporting this channel and/or my medical funds:
Patreon: https://www.patreon.com/annieelainey
Medical Expenses, Pain Relief, and Mobility Devices: http://bit.ly/1U62Kti
PayPal: http://bit.ly/1D7QYW2
ABOUT ME
Hello, hello! My name is Annie, my pronouns are she/her, and Im a QWoC, body positive, disabled spoonie. I create videos five days a week (as long as my health allows) usually introspective topics, social topics, disability, body image, sex/gender/dating, feminism, etc, as well as a variety of music/artistic media, tags/challenges, and day-in-the-life vlogs.
*Currently working on captioning ALL videos, contributions are welcome!
CONTRIBUTE SUBTITLES FOR THIS VIDEO
-Click on the gear in the lower-right corner of the video
-Click Subtitles/CC
-Click Add subtitles/CC
-You can contribute Closed Captions in English or subtitles in ANY other language.
FIND ME ON THE INTERNET AND LETS BE FRIENDS!
http://annieelainey.tumblr.com
http://instagram.com/annieelainey
http://twitter.com/annieelainey
http://facebook.com/annesegarra
Snapchat: AnnieElainey
Periscope: AnnieElainey")
![How To Improve Accessibility At Your Event [CC]](https://i.ytimg.com/vi/roCg5oNNMcY/hqdefault.jpg "How To Improve Accessibility At Your Event [CC]
I am a chronically ill wheelchair user and after attending a large convention and facing a lot of obstacles due to inaccessibility, I wanted to share some possible improvements based on my observations and experiences. Email available on channel page for business inquiries.
New Videos Monday-Friday ‪#‎WithCaptions‬ Subscribe!
If you enjoy my videos, please consider supporting this channel and/or my medical funds:
Patreon: https://www.patreon.com/annieelainey
Medical Expenses, Pain Relief, and Mobility Devices: http://bit.ly/1U62Kti
PayPal: http://bit.ly/1D7QYW2
FIND ME ON THE INTERNET AND LETS BE FRIENDS!
http://facebook.com/annesegarra
http://annieelainey.tumblr.com
http://instagram.com/annieelainey
http://twitter.com/annieelainey
http://snapchat.com/add/annieelainey
Periscope: AnnieElainey
ABOUT ME
Hello, hello! My name is Annie, my pronouns are she/her, and Im a QWoC, body positive, wheelchair user, disabled and chronically ill person (or spoonie).
I create videos five days a week (as long as my health allows) usually introspective topics, social topics, sharing my experiences and point of view with/on disability, body image, sex/gender/dating, gender equality, etc, as well as a variety of music/artistic media, tags/challenges, and day-in-the-life vlogs.
*Currently working on captioning ALL videos, contributions are welcome!
CONTRIBUTE SUBTITLES FOR THIS VIDEO
-Click on the gear in the lower-right corner of the video
-Click Subtitles/CC
-Click Add subtitles/CC
-You can contribute Closed Captions in English or subtitles in ANY other language.")
![Less Than Famous Audition 2017 | Annie Elainey [CC]](https://i.ytimg.com/vi/rpVdU1nvdVs/hqdefault.jpg "Less Than Famous Audition 2017 | Annie Elainey [CC]
How do you stick out in a sea of creators?
Im just someone in the crowd.
How do you find community/friends/purpose on YouTube?
Sharing my stories, sharing my observations, perspective, and experiences as a disabled queer person of color and finding people who relate to these experiences or want to hear about them.
What does success on YouTube mean to you?
As a chronically ill person, I often have to push myself to do the things I love, I have to push myself to create, so as Ive said before, hitting that publish button gives me great feelings of success. Creative fulfillment and community are the two main ways I get to feel successful, making connections and being visible, sharing in conversations with members of my communities, and enlightening those who are not.
LYRICS:
Look at the invitation
You’ve got the web address
Do you think you’re Less than Famous?
The answers always yes
Your video submission
Could be the one they’re waiting for
Just push a bit more
Today were on a mission
Today’s the casting call
Are you ready to audition?
Oh, God, help us all
You make the right impression
Then evrybody knows your name
It’s Annie Elainey
Less Than Famous Panel has some things they need to know
Like what success on YouTube means to you?
Less Than Famous panel is where you wanna go
Just tell them all about community
(Tell them all about community)
You’re intersectional
And a tad musical
Disabled, PoC, LGBT
And with the stuff you make...
I do love to create
Youve got to go apply
[Whisper] for LTF panel!
The LTF panel!
Based on original song: Someone in the Crowd - La La Land
SUPPORT THIS CREATOR
If you enjoy my videos, please consider supporting this channel!
Patreon: https://www.patreon.com/annieelainey
PayPal: http://paypal.me/annieelainey
Amazon Wish List: http://a.co/gyCgqsf
CONTRIBUTE CAPTIONS/SUBTITLES FOR THIS VIDEO
-Click on the gear in the lower-right corner of the video
-Click Subtitles/CC
-Click Add subtitles/CC
-You can contribute Closed Captions in English or subtitles in ANY other language
LIST OF VIDEOS YET TO BE CAPTIONED
https://www.youtube.com/timedtext_cs_panel?tab=2&c=UCznS4Pk3VcTIfDUuWrQtdzQ
FIND ME ON THE INTERNET
http://www.facebook.com/ann.e.segarra
http://annieelainey.tumblr.com
http://twitter.com/annieelainey
http://instagram.com/annieelainey
http://snapchat.com/add/annieelainey
Periscope: AnnieElainey
IN THIS VIDEO
Mic used: http://amzn.to/2ahAuT5
Camera used: http://amzn.to/2a5jPCq
My Associate Store: http://astore.amazon.com/annielai-20
CHANNEL DESCRIPTION
Annie Segarra (Annie Elainey) creates mainly first-person videos on introspective topics, social topics, sharing her experiences and thoughts on disability, body image, LGBT topics, gender equality, etc, as well as creative content; a variety of music/artistic media and short films. Annie identifies as a queer Latinx disabled woman and uses she and they pronouns.")
![Disability Misconceptions Tag (EDS) [CC]](https://i.ytimg.com/vi/sBSzm9RbXAY/hqdefault.jpg "Disability Misconceptions Tag (EDS) [CC]
This is the Disability Misconceptions Tag! Lets talk about how EDS impacts my daily life, how not all of us are gonna look like the textbook images (ie contortionists and severe stretchy skin), how ambulatory wheelchair users and fluid disabilities exist, the harm misconceptions can bring and how we can combat these misconceptions.
T-shirt Im wearing:
My TeePublic store https://www.teepublic.com/t-shirt/2786490-nobody-knows-i-have-eds
Or you can sign up to be notified when the Bonfire campaign comes back http://bonfire.com/nobody-knows-i-have-eds
My EDS Playlist: https://www.youtube.com/watch?v=moGxnPIsu6k&list=PLzbLZiJEtlO6NE3AtdWkm2gZKiMcfhw_X
Tagged by FashionEyesta https://www.youtube.com/watch?v=a48x-jJIdpw&t
Questions for the tag:
What is your disability and how does it impact you?
What is the most common misconception that you experience in regards to your disability?
Which misconception annoys you the most?
Do you do anything to combat these misconceptions?
What more do you think can be done to combat the misconception around your disability?
SUPPORT THIS CREATOR
If you enjoy my videos, please consider supporting this channel!
Patreon: https://www.patreon.com/annieelainey
PayPal: http://paypal.me/annieelainey
Amazon Wish List: http://a.co/gyCgqsf
CONTRIBUTE CAPTIONS/SUBTITLES FOR THIS VIDEO
-Click on the gear in the lower-right corner of the video
-Click Subtitles/CC
-Click Add subtitles/CC
-You can contribute Closed Captions in English or subtitles in ANY other language
LIST OF VIDEOS YET TO BE CAPTIONED
https://www.youtube.com/timedtext_cs_panel?tab=2&c=UCznS4Pk3VcTIfDUuWrQtdzQ
FIND ME ON THE INTERNET
Facebook http://www.facebook.com/ann.e.segarra
Tumblr http://annieelainey.tumblr.com
Twitter http://twitter.com/annieelainey
Instagram http://instagram.com/annieelainey
Snapchat http://snapchat.com/add/annieelainey
Periscope AnnieElainey
My Associate Store: http://astore.amazon.com/annielai-20
CHANNEL DESCRIPTION
Annie Segarra (Annie Elainey) creates mainly first-person videos on introspective topics, social topics, sharing her experiences and thoughts on disability, body image, LGBT topics, gender equality, etc, as well as creative content; a variety of music/artistic media and short films. Annie identifies as a queer disabled (Ehlers-Danlos Syndrome) Latinx woman and uses she and they pronouns.")
![Reflecting on Violence Against Identity (Part 2/4) [CC]](https://i.ytimg.com/vi/sH5b_RtejDY/hqdefault.jpg "Reflecting on Violence Against Identity (Part 2/4) [CC]
PART 3: https://www.youtube.com/watch?v=55_UWVYB8JY
The attack on Pulse last weekend was actually among other events and circumstances that currently leave me feeling pain about my identities, feeling hyper aware of the kind of hatred I risk facing in my day to day life, so here are some of my current feelings as I process everything.
New Videos Monday-Friday #WithCaptions Subscribe!
If you enjoy my videos, please consider supporting this channel and/or my medical funds:
Patreon: https://www.patreon.com/annieelainey
Medical Expenses, Pain Relief, and Mobility Devices: http://bit.ly/1U62Kti
PayPal: http://bit.ly/1D7QYW2
FIND ME ON THE INTERNET AND LETS BE FRIENDS!
http://facebook.com/annesegarra
http://annieelainey.tumblr.com
http://instagram.com/annieelainey
http://twitter.com/annieelainey
http://snapchat.com/add/annieelainey
Periscope: AnnieElainey
ABOUT ME
Hello, hello! My name is Annie, my pronouns are she/her, and Im a QWoC, body positive, wheelchair user, disabled and chronically ill person (or spoonie).
I create videos five days a week (as long as my health allows) usually introspective topics, social topics, sharing my experiences and point of view with/on disability, body image, sex/gender/dating, gender equality, etc, as well as a variety of music/artistic media, tags/challenges, and day-in-the-life vlogs.
*Currently working on captioning ALL videos, contributions are welcome!
CONTRIBUTE SUBTITLES FOR THIS VIDEO
-Click on the gear in the lower-right corner of the video
-Click Subtitles/CC
-Click Add subtitles/CC
-You can contribute Closed Captions in English or subtitles in ANY other language.")
![Sometimes No One is Going to Have Your Back [CC]](https://i.ytimg.com/vi/sSx98ClmkGg/hqdefault.jpg "Sometimes No One is Going to Have Your Back [CC]
When youre vulnerable enough to admit that you need help, but then find that its not possible for anyone to help you, keep fighting, fights once thought to be impossible have been won before, and you can win this thing! If you enjoy my videos, please consider supporting this channel and/or my medical funds:
Patreon: https://www.patreon.com/annieelainey
Medical Expenses, Pain Relief, and Mobility Devices: http://bit.ly/1U62Kti
PayPal: http://bit.ly/1D7QYW2
FIND ME ON THE INTERNET AND LETS BE FRIENDS!
http://annieelainey.tumblr.com
http://instagram.com/annieelainey
http://twitter.com/annieelainey
http://facebook.com/annesegarra
Snapchat: annieelainey
PLEASE SUBSCRIBE AND CHECK OUT MORE VIDEOS
http://youtube.com/theannieelainey")
