Uploaded April 2022 | Updated September 2026, 2 weeks ago
In this episode, Lisa and McFinn are joined by guests Leah Stavenhagen, Sunny Brous and Macey Hoaglund, who all have something in common - they were diagnosed with ALS in their late 20’s. They part of Her ALS Story, which is a group of women all diagnosed with ALS before their 35th birthdays.
We talk about their involvement with Her ALS Story and personal stories. Her ALS Story provides a place for young women with ALS to not feel alone, and they raise money for research and their advocacy efforts include working with female lawlmakers to improve insurance standards, legislation, and to speed up the drug pipeline. They have all been big advocated for ALS and helping others navigate through this lonely and devastating disease.
McFinn Loverere and Lisa Pecoraro Deegan are part of EverythingALS.org, whose mission is to accelerate treatments for ALS through citizen-driven research.
Listen to all episodes on Spotify:
open.spotify.com/show/67WgxZvqUBTvp0q1olDiJk?si=jHe4nALUT4-F3gZmKUWh2Q&dl_branch=1&nd=1
Watch all episodes on our YouTube channel:
youtube.com/c/EverythingALS/playlists
In this episode, Lisa and McFinn are joined by guests Leah Stavenhagen, Sunny Brous and Macey Hoaglund, who all have something in common - they were diagnosed with ALS in their late 20’s. They part of Her ALS Story, which is a group of women all diagnosed with ALS before their 35th birthdays.
We talk about their involvement with Her ALS Story and personal stories. Her ALS Story provides a place for young women with ALS to not feel alone, and they raise money for research and their advocacy efforts include working with female lawlmakers to improve insurance standards, legislation, and to speed up the drug pipeline. They have all been big advocated for ALS and helping others navigate through this lonely and devastating disease.
McFinn Loverere and Lisa Pecoraro Deegan are part of EverythingALS.org, whose mission is to accelerate treatments for ALS through citizen-driven research.
Listen to all episodes on Spotify:
open.spotify.com/show/67WgxZvqUBTvp0q1olDiJk?si=jHe4nALUT4-F3gZmKUWh2Q&dl_branch=1&nd=1
Watch all episodes on our YouTube channel:
youtube.com/c/EverythingALS/playlists
