Uploaded December 2021 | Updated September 2026, 2 weeks ago
Episode #15: Passion, Perseverance, and Advocacy with Austen Eadie-Friedmann
Welcome to Stories and Innovations in ALS.
In this episode, Lisa and McFinn are joined by Austen Eadie-Friedmann, who -- still only in his 30s -- got diagnosed with ALS in 2019. We will take you through his long journey to get diagnosed, his daily challenges, and how he feels the drug development paradigm needs to be changed. He also talks about treatments and the need for access to world-class healthcare for patients.
McFinn and Lisa are part of EverythingALS.org, whose mission is to accelerate treatments for ALS through citizen-driven research.
To learn more about EverythingALS, please visit: everythingals.org
Get Involved in ALS Research: everythingals.org/research
SUBSCRIBE to YouTube channel to be connected.
Episode #15: Passion, Perseverance, and Advocacy with Austen Eadie-Friedmann
Welcome to Stories and Innovations in ALS.
In this episode, Lisa and McFinn are joined by Austen Eadie-Friedmann, who -- still only in his 30s -- got diagnosed with ALS in 2019. We will take you through his long journey to get diagnosed, his daily challenges, and how he feels the drug development paradigm needs to be changed. He also talks about treatments and the need for access to world-class healthcare for patients.
McFinn and Lisa are part of EverythingALS.org, whose mission is to accelerate treatments for ALS through citizen-driven research.
To learn more about EverythingALS, please visit: everythingals.org
Get Involved in ALS Research: everythingals.org/research
SUBSCRIBE to YouTube channel to be connected.
