Uploaded January 2022 | Updated September 2026, 2 weeks ago
Register to upcoming events
everythingals.org/events
Participate in our ALS Research
everythingals.org/research
ACT for ALS, Moving Forward, What Does This Mean for Those Affected by ALS?
A huge step for ALS was taken on December 23rd 2021 when President Joe Biden signed the Accelerating Access To Critical Therapies for ALS Act into Law, thanks to all of the tireless efforts from advocates in the community. Tonight we are here to learn more about ACT for ALS and how we help people today and where we go from here now this has been passed. Legislators are organizing to assure early and full implementation & they want to hear from the ALS community, Q&A follows the speakers.
Our presenters:
Dr. Reyn Archer is currently Chief of Staff for Congressman Jeff Fortenberry.
Megan Miller, Ph.D.., is currently Director of Science & Policy at I AM ALS.
Also joining us is Dr. Merit Cudkowicz, Chief of Neurology from Mass General Hospital.
DO NOT Miss Another Event, Subscribe to our Channel:
youtube.com/c/everythingals
Register to upcoming events
everythingals.org/events
Participate in our ALS Research
everythingals.org/research
ACT for ALS, Moving Forward, What Does This Mean for Those Affected by ALS?
A huge step for ALS was taken on December 23rd 2021 when President Joe Biden signed the Accelerating Access To Critical Therapies for ALS Act into Law, thanks to all of the tireless efforts from advocates in the community. Tonight we are here to learn more about ACT for ALS and how we help people today and where we go from here now this has been passed. Legislators are organizing to assure early and full implementation & they want to hear from the ALS community, Q&A follows the speakers.
Our presenters:
Dr. Reyn Archer is currently Chief of Staff for Congressman Jeff Fortenberry.
Megan Miller, Ph.D.., is currently Director of Science & Policy at I AM ALS.
Also joining us is Dr. Merit Cudkowicz, Chief of Neurology from Mass General Hospital.
DO NOT Miss Another Event, Subscribe to our Channel:
youtube.com/c/everythingals
