Uploaded July 2026 | Updated September 2026, 1 week ago
In this "Community Spotlight Edition" of "Ask the Expert," Landy Thomas of SRNA spoke with Cindy Ranii about living with transverse myelitis (TM). Cindy described her diagnostic journey, rehabilitation, accessibility, and financial challenges [00:53]. She discussed returning to work briefly before retiring, emphasizing the importance of support, love, and community [08:51]. Cindy shared her path from wheelchair tennis to international wheelchair table tennis, and her pursuit of Paralympic qualification through point-based global competition [13:17]. She also discussed writing and self-publishing her book, Parakeet Races and Other Stories, inspired by family memories and her experience with TM [31:58].
Cindy Ranii is a 79-year-old retired educator who lives with her wife Shelly and service dog Hollis in Santa Cruz, California. In 2005, her life changed drastically when she was diagnosed with transverse myelitis (TM). Within four days, she went from golfing, playing tennis, and working vigorously as the Superintendent of a local high school district to being a paraplegic (T-3 complete).
Six months after her diagnosis she was back at work, using a wheelchair fulltime. Eighteen months later she decided to retire to have enough energy to enjoy her family (four children and 13 grandchildren) and to rebuild an active lifestyle. She competed in wheelchair tennis and then pursued table tennis with her eyes on the Paralympics. Currently she is training to compete in the 2028 LA Paralympics in wheelchair table tennis, saying, “My quest is to be the oldest Paralympian in history. It’s a long shot; but why not!”
Cindy has written numerous articles regarding living with a disability for New Mobility Magazine and authored a memoir, Parakeet Races and Other Stories, which is available through Amazon:
rebrand.ly/cindy-ranii
00:00 Welcome
00:53 Cindy's Diagnosis Overview
01:37 Early Symptoms and ER Rush
06:07 Hospital Transfer and TM Diagnosis
08:51 Rehab Reality and New Life
11:27 Accessibility Costs and Support
13:17 Paralympic Table Tennis Quest
17:52 Disability Community and Pride
20:25 Finding Resilience Through Sport
22:34 Mentors and New Athletic Path
28:27 Work Return Then Retirement
31:58 Writing Her Memoir
37:09 Closing Reflections
In this "Community Spotlight Edition" of "Ask the Expert," Landy Thomas of SRNA spoke with Cindy Ranii about living with transverse myelitis (TM). Cindy described her diagnostic journey, rehabilitation, accessibility, and financial challenges [00:53]. She discussed returning to work briefly before retiring, emphasizing the importance of support, love, and community [08:51]. Cindy shared her path from wheelchair tennis to international wheelchair table tennis, and her pursuit of Paralympic qualification through point-based global competition [13:17]. She also discussed writing and self-publishing her book, Parakeet Races and Other Stories, inspired by family memories and her experience with TM [31:58].
Cindy Ranii is a 79-year-old retired educator who lives with her wife Shelly and service dog Hollis in Santa Cruz, California. In 2005, her life changed drastically when she was diagnosed with transverse myelitis (TM). Within four days, she went from golfing, playing tennis, and working vigorously as the Superintendent of a local high school district to being a paraplegic (T-3 complete).
Six months after her diagnosis she was back at work, using a wheelchair fulltime. Eighteen months later she decided to retire to have enough energy to enjoy her family (four children and 13 grandchildren) and to rebuild an active lifestyle. She competed in wheelchair tennis and then pursued table tennis with her eyes on the Paralympics. Currently she is training to compete in the 2028 LA Paralympics in wheelchair table tennis, saying, “My quest is to be the oldest Paralympian in history. It’s a long shot; but why not!”
Cindy has written numerous articles regarding living with a disability for New Mobility Magazine and authored a memoir, Parakeet Races and Other Stories, which is available through Amazon:
rebrand.ly/cindy-ranii
00:00 Welcome
00:53 Cindy's Diagnosis Overview
01:37 Early Symptoms and ER Rush
06:07 Hospital Transfer and TM Diagnosis
08:51 Rehab Reality and New Life
11:27 Accessibility Costs and Support
13:17 Paralympic Table Tennis Quest
17:52 Disability Community and Pride
20:25 Finding Resilience Through Sport
22:34 Mentors and New Athletic Path
28:27 Work Return Then Retirement
31:58 Writing Her Memoir
37:09 Closing Reflections
![2024 RNDS | Adaptive Tools and Resources
At the 2024 RNDS, Sandy Hanebrink discussed various adaptive tools and resources available for individuals with disabilities, including driving aids, home modifications, and vision technology [00:01:52]. She highlighted innovative devices such as OrCam and Glidance to assist with vision and mobility, as well as affordable solutions for adaptive grips and accessible computer access [00:07:16]. Sandy also mentioned adaptive recreation tools, including wheelchairs and accessible gaming controllers, as well as funding sources for these technologies [00:13:48]. She concluded by informing the audience about the Abilities Expo and providing her contact information for further assistance [00:20:15]. Please note that the information shared during this session is for informational purposes only and is not medical advice.
You can view the presentation slides here:
https://files.wearesrna.org/symposia/2024_rnds/slides/2024RNDS_Hanebrink.pdf
00:00 Introduction and Background
00:32 Adaptive Driving Tools and Resources
01:42 Home Modifications for Accessibility
04:59 Vision Tools and Technologies
10:27 Adaptive Grips and Computer Access
16:22 Accessible Gaming and Mounts
18:04 Wheelchairs and Mobility Aids
20:24 Adaptive Recreation and Sports
23:00 NextGen TV and Accessible Media
25:27 Funding and Resources
27:31 Conclusion and Contact Information 2024 RNDS | Adaptive Tools and Resources](https://i.ytimg.com/vi/ji5uHddIJF8/mqdefault.jpg)






![2024 RNDS | Fatigue and Rare Neuroimmune Disorders
At the 2024 RNDS, Dr. Bardia Nourbakhsh, an MS neurologist, discussed the complexities of fatigue in neuroimmune disorders and highlighted its subjective nature and overlapping symptoms with other conditions like depression and sleepiness [00:03:11]. He emphasized that defining and measuring fatigue is challenging, and current treatment approaches are often inadequate, especially in rare neuroimmune disorders [00:09:01]. Julia Lefelar shared her personal experience with MOG antibody disease (MOGAD) and highlighted the significant impact of fatigue on patients lives [00:20:48]. They answered questions from the audience and underscored the need for more research, patient-reported outcomes, and nonpharmacological treatments like cognitive behavioral therapy and exercise [00:27:08]. Please note that the information shared during this session is for informational purposes only and is not medical advice.
You can view the presentation slides here:
https://files.wearesrna.org/symposia/2024_rnds/slides/2024RNDS_Nourbakhsh.pdf
00:00 Introduction and Opening Remarks
00:31 Julia Lefelars Personal Experience with Fatigue
03:11 Understanding Fatigue in Medical Terms
09:01 Causes and Measurement of Fatigue
12:22 Treatment Approaches for Fatigue
20:48 Fatigue in Rare Neuroimmune Disorders
27:08 Audience Questions and Closing Remarks 2024 RNDS | Fatigue and Rare Neuroimmune Disorders](https://i.ytimg.com/vi/mCabRDJCReU/mqdefault.jpg)


