Uploaded December 2024 | Updated September 2026, 1 week ago
At the 2024 RNDS, Sandy Hanebrink discussed various adaptive tools and resources available for individuals with disabilities, including driving aids, home modifications, and vision technology [00:01:52]. She highlighted innovative devices such as OrCam and Glidance to assist with vision and mobility, as well as affordable solutions for adaptive grips and accessible computer access [00:07:16]. Sandy also mentioned adaptive recreation tools, including wheelchairs and accessible gaming controllers, as well as funding sources for these technologies [00:13:48]. She concluded by informing the audience about the Abilities Expo and providing her contact information for further assistance [00:20:15]. Please note that the information shared during this session is for informational purposes only and is not medical advice.
You can view the presentation slides here:
files.wearesrna.org/symposia/2024_rnds/slides/2024RNDS_Hanebrink.pdf
00:00 Introduction and Background
00:32 Adaptive Driving Tools and Resources
01:42 Home Modifications for Accessibility
04:59 Vision Tools and Technologies
10:27 Adaptive Grips and Computer Access
16:22 Accessible Gaming and Mounts
18:04 Wheelchairs and Mobility Aids
20:24 Adaptive Recreation and Sports
23:00 NextGen TV and Accessible Media
25:27 Funding and Resources
27:31 Conclusion and Contact Information
At the 2024 RNDS, Sandy Hanebrink discussed various adaptive tools and resources available for individuals with disabilities, including driving aids, home modifications, and vision technology [00:01:52]. She highlighted innovative devices such as OrCam and Glidance to assist with vision and mobility, as well as affordable solutions for adaptive grips and accessible computer access [00:07:16]. Sandy also mentioned adaptive recreation tools, including wheelchairs and accessible gaming controllers, as well as funding sources for these technologies [00:13:48]. She concluded by informing the audience about the Abilities Expo and providing her contact information for further assistance [00:20:15]. Please note that the information shared during this session is for informational purposes only and is not medical advice.
You can view the presentation slides here:
files.wearesrna.org/symposia/2024_rnds/slides/2024RNDS_Hanebrink.pdf
00:00 Introduction and Background
00:32 Adaptive Driving Tools and Resources
01:42 Home Modifications for Accessibility
04:59 Vision Tools and Technologies
10:27 Adaptive Grips and Computer Access
16:22 Accessible Gaming and Mounts
18:04 Wheelchairs and Mobility Aids
20:24 Adaptive Recreation and Sports
23:00 NextGen TV and Accessible Media
25:27 Funding and Resources
27:31 Conclusion and Contact Information






![2024 RNDS | Fatigue and Rare Neuroimmune Disorders
At the 2024 RNDS, Dr. Bardia Nourbakhsh, an MS neurologist, discussed the complexities of fatigue in neuroimmune disorders and highlighted its subjective nature and overlapping symptoms with other conditions like depression and sleepiness [00:03:11]. He emphasized that defining and measuring fatigue is challenging, and current treatment approaches are often inadequate, especially in rare neuroimmune disorders [00:09:01]. Julia Lefelar shared her personal experience with MOG antibody disease (MOGAD) and highlighted the significant impact of fatigue on patients lives [00:20:48]. They answered questions from the audience and underscored the need for more research, patient-reported outcomes, and nonpharmacological treatments like cognitive behavioral therapy and exercise [00:27:08]. Please note that the information shared during this session is for informational purposes only and is not medical advice.
You can view the presentation slides here:
https://files.wearesrna.org/symposia/2024_rnds/slides/2024RNDS_Nourbakhsh.pdf
00:00 Introduction and Opening Remarks
00:31 Julia Lefelars Personal Experience with Fatigue
03:11 Understanding Fatigue in Medical Terms
09:01 Causes and Measurement of Fatigue
12:22 Treatment Approaches for Fatigue
20:48 Fatigue in Rare Neuroimmune Disorders
27:08 Audience Questions and Closing Remarks 2024 RNDS | Fatigue and Rare Neuroimmune Disorders](https://i.ytimg.com/vi/mCabRDJCReU/mqdefault.jpg)



