Uploaded November 2025 | Updated September 2026, 1 week ago
You can view the presentation slides here:
files.wearesrna.org/symposia/2025_rnds/slides/2025RNDS-SRNA_Presentation-GG_deFiebre.pdf
During this session at the 2025 RNDS, Dr. GG deFiebre discussed the goals and purpose of the Siegel Rare Neuroimmune Association (SRNA), which is to improve the quality of life of people with rare neuroimmune disorders. SRNA offers free membership and seeks to provide people with rare neuroimmune disorders and their families with programs, tools, and opportunities, such as support group meetings, information sheets, and an online learning program, among so many other things.
SRNA stands by three core tenets: Connect, Care, and Cure, and in this talk, GG shared various ways that the organization pursues these tenets. Highlights include how SRNA holds a yearly family camp for people with rare neuroimmune disorders, how they have an online resource library with hundreds of informative resources, from podcasts to symposium videos to written articles, and how they host RNDS events every year. They have funded ten rare neuroimmune disorder-focused fellows who do research on these conditions.
You can view the presentation slides here:
files.wearesrna.org/symposia/2025_rnds/slides/2025RNDS-SRNA_Presentation-GG_deFiebre.pdf
During this session at the 2025 RNDS, Dr. GG deFiebre discussed the goals and purpose of the Siegel Rare Neuroimmune Association (SRNA), which is to improve the quality of life of people with rare neuroimmune disorders. SRNA offers free membership and seeks to provide people with rare neuroimmune disorders and their families with programs, tools, and opportunities, such as support group meetings, information sheets, and an online learning program, among so many other things.
SRNA stands by three core tenets: Connect, Care, and Cure, and in this talk, GG shared various ways that the organization pursues these tenets. Highlights include how SRNA holds a yearly family camp for people with rare neuroimmune disorders, how they have an online resource library with hundreds of informative resources, from podcasts to symposium videos to written articles, and how they host RNDS events every year. They have funded ten rare neuroimmune disorder-focused fellows who do research on these conditions.
