Uploaded November 2025 | Updated September 2026, 1 week ago
You can view Dr. Gombolay's presentation slides here:
files.wearesrna.org/symposia/2025_rnds/slides/2025RNDS-Symptom_Management-Grace_Gombolay.pdf
During this panel at the 2025 RNDS, medical professionals shared how lifestyle changes can benefit health and allow people with rare neuroimmune disorders to better manage their symptoms. Prioritizing sleep, keeping a good diet, incorporating physical activity in whatever way it is possible, taking vitamin D, practicing mindfulness, taking part in social activities, limiting screen time, and pursuing personal hobbies can all benefit health. They also discussed fatigue management strategies, like planning activities and taking breaks and naps.
Strategies on managing mood disorders like anxiety and depression were also shared, such as psychotherapy and medications. Pain is often managed by prioritizing sleep, diet, exercise, and mindfulness, in addition to medication and alternative therapies like acupuncture. Brain fog can be minimized by keeping reminders on an electronic device or through cognitive rehabilitation. Urination difficulties can be managed through limiting caffeine, managing fluids, planning bathroom breaks, pelvic physical therapies, medications, nerve stimulation devices, and catheters. The medical professionals then answered questions from audience members regarding symptom management.
You can view Dr. Gombolay's presentation slides here:
files.wearesrna.org/symposia/2025_rnds/slides/2025RNDS-Symptom_Management-Grace_Gombolay.pdf
During this panel at the 2025 RNDS, medical professionals shared how lifestyle changes can benefit health and allow people with rare neuroimmune disorders to better manage their symptoms. Prioritizing sleep, keeping a good diet, incorporating physical activity in whatever way it is possible, taking vitamin D, practicing mindfulness, taking part in social activities, limiting screen time, and pursuing personal hobbies can all benefit health. They also discussed fatigue management strategies, like planning activities and taking breaks and naps.
Strategies on managing mood disorders like anxiety and depression were also shared, such as psychotherapy and medications. Pain is often managed by prioritizing sleep, diet, exercise, and mindfulness, in addition to medication and alternative therapies like acupuncture. Brain fog can be minimized by keeping reminders on an electronic device or through cognitive rehabilitation. Urination difficulties can be managed through limiting caffeine, managing fluids, planning bathroom breaks, pelvic physical therapies, medications, nerve stimulation devices, and catheters. The medical professionals then answered questions from audience members regarding symptom management.
