Uploaded February 2026 | Updated September 2026, 2 weeks ago
Sesión centrada en estrategias prácticas para aliviar y manejar síntomas comunes: dolor neuropático, fatiga, espasticidad, problemas visuales y movilidad. Incluye recomendaciones que las familias pueden aplicar en el día a día.
Andrea Salazar, MD | Johns Hopkins University, EE. UU.
Daniela Riveros Acosta, MD | Johns Hopkins University, EE. UU.
Sesión centrada en estrategias prácticas para aliviar y manejar síntomas comunes: dolor neuropático, fatiga, espasticidad, problemas visuales y movilidad. Incluye recomendaciones que las familias pueden aplicar en el día a día.
Andrea Salazar, MD | Johns Hopkins University, EE. UU.
Daniela Riveros Acosta, MD | Johns Hopkins University, EE. UU.





![2024 RNDS | Fatigue and Rare Neuroimmune Disorders
At the 2024 RNDS, Dr. Bardia Nourbakhsh, an MS neurologist, discussed the complexities of fatigue in neuroimmune disorders and highlighted its subjective nature and overlapping symptoms with other conditions like depression and sleepiness [00:03:11]. He emphasized that defining and measuring fatigue is challenging, and current treatment approaches are often inadequate, especially in rare neuroimmune disorders [00:09:01]. Julia Lefelar shared her personal experience with MOG antibody disease (MOGAD) and highlighted the significant impact of fatigue on patients lives [00:20:48]. They answered questions from the audience and underscored the need for more research, patient-reported outcomes, and nonpharmacological treatments like cognitive behavioral therapy and exercise [00:27:08]. Please note that the information shared during this session is for informational purposes only and is not medical advice.
You can view the presentation slides here:
https://files.wearesrna.org/symposia/2024_rnds/slides/2024RNDS_Nourbakhsh.pdf
00:00 Introduction and Opening Remarks
00:31 Julia Lefelars Personal Experience with Fatigue
03:11 Understanding Fatigue in Medical Terms
09:01 Causes and Measurement of Fatigue
12:22 Treatment Approaches for Fatigue
20:48 Fatigue in Rare Neuroimmune Disorders
27:08 Audience Questions and Closing Remarks 2024 RNDS | Fatigue and Rare Neuroimmune Disorders](https://i.ytimg.com/vi/mCabRDJCReU/mqdefault.jpg)




