Uploaded March 2026 | Updated September 2026, 2 weeks ago

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Thomas DiPalma is one of the many people living with Epidermolysis Bullosa (EB), often called “the butterfly disease” because of how fragile the skin can be.

In this conversation, EBRP CEO Michael Hund helps break down what EB is and why it gives us both urgency and hope.

We’re grateful to @NYSE and Ashley Mastronardi for taking the time to spotlight this story and help bring more awareness to EB.

Moments like this don’t just build understanding, they move us closer to a cure.
🦋 Learn more about EB at ebresearch.org