Uploaded January 2022 | Updated September 2026, 2 weeks ago
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The Morris ALS Principles
This video segment was part of our January 19th ALS Talk “2022 Outlook for ALS”. We feel this information is important, so we are posting this as a separate video for our ALS community to view.
The Morris ALS Principles document was created by those living with, and impacted by ALS. We need the input from the ALS community to make this document successful! Share them with ALS clinics and your physicians, let’s make this a standard moving forward.
The active advocate extraordinaires on the Morris ALS Principles team are: Adam Wilson, Christa Thompson, Jenny Gore Dwyer, Gwen Petersen, Becky Mourey, Deb Paust, Cathy Collet, Mayuri Saxena, Phil Green, Sandy Morris, Shelly Hoover, and Sunny Brous.
“Today, we unite as leaders to end ALS. We take ownership of our disease so that the road to cures is faster, equitable and more humane. We are not subjects or victims, and are only occasionally patients, a term which implies passivity. We are a relentless community working alongside researchers, policy-makers and clinicians to identify and cure this heterogeneous disease. We demand a seat at the table before decisions are made in drug trial design, research, healthcare policy or anything that affects our care. From this point forward, we will not tolerate siloes, disorganization or lack of urgency by any agency or organization that serves us. There will be Nothing About Us Without Us” - The Morris ALS Principles Team.
To learn more about how YOU can get involved:
morrisalsprinciples.org
morrisalsprinciples.org/contact
DO NOT Miss Another Event, Subscribe to our Channel:
youtube.com/c/everythingals
Register to upcoming events
everythingals.org/events
Participate in our ALS Research
everythingals.org/research
The Morris ALS Principles
This video segment was part of our January 19th ALS Talk “2022 Outlook for ALS”. We feel this information is important, so we are posting this as a separate video for our ALS community to view.
The Morris ALS Principles document was created by those living with, and impacted by ALS. We need the input from the ALS community to make this document successful! Share them with ALS clinics and your physicians, let’s make this a standard moving forward.
The active advocate extraordinaires on the Morris ALS Principles team are: Adam Wilson, Christa Thompson, Jenny Gore Dwyer, Gwen Petersen, Becky Mourey, Deb Paust, Cathy Collet, Mayuri Saxena, Phil Green, Sandy Morris, Shelly Hoover, and Sunny Brous.
“Today, we unite as leaders to end ALS. We take ownership of our disease so that the road to cures is faster, equitable and more humane. We are not subjects or victims, and are only occasionally patients, a term which implies passivity. We are a relentless community working alongside researchers, policy-makers and clinicians to identify and cure this heterogeneous disease. We demand a seat at the table before decisions are made in drug trial design, research, healthcare policy or anything that affects our care. From this point forward, we will not tolerate siloes, disorganization or lack of urgency by any agency or organization that serves us. There will be Nothing About Us Without Us” - The Morris ALS Principles Team.
To learn more about how YOU can get involved:
morrisalsprinciples.org
morrisalsprinciples.org/contact
DO NOT Miss Another Event, Subscribe to our Channel:
youtube.com/c/everythingals
