Uploaded December 2021 | Updated September 2026, 2 weeks ago
There's no better way to explain how important treatments and a cure for EB are than to hear it from those battling EB themselves. We asked members of the global EB community - individuals with EB, their parents, families, caregivers, and doctors - to share what a world with a treatment or cure for EB would mean to them. Their answers motivate us to make that world a reality - a world where hours of bandage changes are replaced with hours of quality time with friends, birthdays are a source of celebration rather than worry, and familes can enjoy vacations instead of hospital stays. Together, we will #healEB. Donate to critical research at give.ebresearch.org/donate.
There's no better way to explain how important treatments and a cure for EB are than to hear it from those battling EB themselves. We asked members of the global EB community - individuals with EB, their parents, families, caregivers, and doctors - to share what a world with a treatment or cure for EB would mean to them. Their answers motivate us to make that world a reality - a world where hours of bandage changes are replaced with hours of quality time with friends, birthdays are a source of celebration rather than worry, and familes can enjoy vacations instead of hospital stays. Together, we will #healEB. Donate to critical research at give.ebresearch.org/donate.
