Matter of Time Film | The Rare Disease Doc Everyone Needs to See @EBResearchPartnership
Matter of Time Film | The Rare Disease Doc Everyone Needs to See  @EBResearchPartnership
Uploaded February 2026 | Updated September 2026, 2 weeks ago
Matter of Time hits Netflix globally on February 9.

Music. Community. Hope.

Set against the emotional backdrop of Eddie Vedder’s 2023 benefit concerts in Seattle, Matter of Time tells the extraordinary true story of families, scientists, and changemakers uniting to cure Epidermolysis Bullosa (EB), a devastating rare genetic skin disorder.

Through powerful performances, scientific breakthroughs, and the courage of the EB community, this moving documentary shows how love, advocacy, and creativity can ignite a revolution in rare disease research.

Directed by Matt Finlin
Produced by Karen Barzilay
Music by Eddie Vedder
Edited by James Yates
Original Score by Broken Social Scene

🌐 Learn more:
matteroftimefilm.com

🦋More about the cause for a cure:
ebresearch.org

#MatterOfTime #Netflix #EddieVedder #Tribeca2025 #RareDisease #EBResearch #CureEB #HealEB #VenturePhilanthropy #MusicDocumentary
Matter of Time Film | The Rare Disease Doc Everyone Needs to SeeTime is LifeWhat Is Epidermolysis Bullosa? (The “Butterfly Disease” Explained)Team EBRP: A Winning Team to #HealEBThis is MichelleGaten Matarazzo, Lucy Beall, and Olivia Vedder Know Beauty is Not Rare | Venture into CuresEBRP at U of MN Winefest AwardsVenture Into Cures: Tom Holland, Pearl Jam, Selena Gomez, Zendaya & Many MoreAdam Sandler Talks Fortnite, Video Games, and EB with That Geek Aaron | Venture into CuresZendaya Tells The Story of True Superhero Novelette | Venture Into Cures 2021EB Research Partnership CEO Keynotes Chan Zuckerberg Initiative’s 2023 Science In Society MeetingRARE DISEASE DAY: EPIDERMOLYSIS BULLOSA (EB)
EB Research Partnership |

Matter of Time Film | The Rare Disease Doc Everyone Needs to See

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