Uploaded November 2021 | Updated September 2026, 2 weeks ago
"Mary is so much more than the rare disease. Mary is a rare human, who can teach every one of us how to embrace positivity and light" says Selena Gomez about Mary Haddad, a young woman living with Epidermolysis Bullosa (EB). Mary has faced many challenges brought on by EB, from countless blisters and wounds to even having to amputate her leg due to cancer. Despite these struggles, Mary chooses to see the beauty in her uniqueness. "Our skin disorder, they call it the butterfly skin," she says. "No butterfly is alike. They're all different and so beautiful, and us humans are like that too." Help us fund critical research to discover critical research to find treatments and a cure for EB for Mary and all others living with this terrible disorder. Make your donation at give.ebresearch.org/donate 🦋✨
"Mary is so much more than the rare disease. Mary is a rare human, who can teach every one of us how to embrace positivity and light" says Selena Gomez about Mary Haddad, a young woman living with Epidermolysis Bullosa (EB). Mary has faced many challenges brought on by EB, from countless blisters and wounds to even having to amputate her leg due to cancer. Despite these struggles, Mary chooses to see the beauty in her uniqueness. "Our skin disorder, they call it the butterfly skin," she says. "No butterfly is alike. They're all different and so beautiful, and us humans are like that too." Help us fund critical research to discover critical research to find treatments and a cure for EB for Mary and all others living with this terrible disorder. Make your donation at give.ebresearch.org/donate 🦋✨
