Uploaded October 2014 | Updated September 2026, 2 weeks ago

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Eddie Vedder of Pearl Jam discusses Epidermolysis Bullosa, a devastating skin condition, along with Dr. Jakub Tolar, a leading researcher, and brave kids and grownups who battle EB every day. Learn more at ebresearch.org and donate at donate.ebresearch.org

About EB Research Partnership
ebresearch.org
Founded in 2010 by a group of dedicated parents and Jill and Eddie Vedder of Pearl Jam, EB Research Partnership is the largest 501c3 nonprofit funding research to find a cure for Epidermolysis Bullosa (EB). EB is a group of devastating and life-threatening genetic skin disorders that affect children from birth.

A special thank you to our EB heroes:
Michael Fullmer
Jennifer Innes
Garrett Spaulding
Dr. Jakub Tolar

Made possible through the generous support from
World Famous
Kara Costa & the team at Microsoft Production Studios
Jill and Eddie Vedder

Music by Eddie Vedder