Uploaded September 2026 | Updated September 2026, 3 hours ago
Ruth's Journey: Living with Ullrich Congenital Muscular Dystrophy
Meet Ruth Fundak, a joyful 7-year-old who enjoys creating art, spending time with her friends and playing on her tablet. Her mom, Caitlin Laatz, shares more about Ruth’s journey and the care that supports her along the way.
Ruth was diagnosed with Ullrich congenital muscular dystrophy at 3½ years old and receives long-term care at OHSU Doernbecher Children’s Hospital. OHSU Doernbecher Children’s Hospital has Oregon’s only pediatric neuromuscular program. We are a designated MDA Care Center with experts who care for children with conditions affecting nerves and muscles. At the Ramberg Ford Pediatric Neuromuscular Disorders Center, you will find:
- First-rate providers who trained at top U.S. children's hospitals.
- A team-based approach, with experts in neuromuscular disorders who work together to care for your child.
- Access to clinical trials, breakthrough therapies and leading-edge treatment.
- Patient-centered care to support your child’s quality of life and everyday activities.
Learn more: bit.ly/4g86dXY
Ruth's Journey: Living with Ullrich Congenital Muscular Dystrophy
Meet Ruth Fundak, a joyful 7-year-old who enjoys creating art, spending time with her friends and playing on her tablet. Her mom, Caitlin Laatz, shares more about Ruth’s journey and the care that supports her along the way.
Ruth was diagnosed with Ullrich congenital muscular dystrophy at 3½ years old and receives long-term care at OHSU Doernbecher Children’s Hospital. OHSU Doernbecher Children’s Hospital has Oregon’s only pediatric neuromuscular program. We are a designated MDA Care Center with experts who care for children with conditions affecting nerves and muscles. At the Ramberg Ford Pediatric Neuromuscular Disorders Center, you will find:
- First-rate providers who trained at top U.S. children's hospitals.
- A team-based approach, with experts in neuromuscular disorders who work together to care for your child.
- Access to clinical trials, breakthrough therapies and leading-edge treatment.
- Patient-centered care to support your child’s quality of life and everyday activities.
Learn more: bit.ly/4g86dXY
