Uploaded May 2019 | Updated September 2026, 2 weeks ago
A man from Southampton is urging the NHS to allow him to have access to a life-changing drug.
Patrick Taylor from Hedge End suffers from the most severe form of a rare lifelong condition called Classical Phenylketonuria (PKU).
The condition means Patrick’s body is unable to break down the amino acid, which is found in many foods and used by your body to produce proteins.
Currently around 3500 people in the UK have the condition, but the drug Kuvan is only available in other European Countries.
A man from Southampton is urging the NHS to allow him to have access to a life-changing drug.
Patrick Taylor from Hedge End suffers from the most severe form of a rare lifelong condition called Classical Phenylketonuria (PKU).
The condition means Patrick’s body is unable to break down the amino acid, which is found in many foods and used by your body to produce proteins.
Currently around 3500 people in the UK have the condition, but the drug Kuvan is only available in other European Countries.
