![HOLD: Honoring Our Loves Departed [CC] @theannieelainey](https://i.ytimg.com/vi/OiUa4hZT_O0/maxresdefault.jpg)
Annie Elainey | HOLD: Honoring Our Loves Departed [CC] @theannieelainey | Uploaded March 2018 | Updated October 2024, 11 hours ago.
(CW: mourning, depression) I painted this one night in December but talking about it out loud was tough. In the past couple of years I've had two good friends die and their losses like any other spark a mourning process but also triggers my depression/suicidal thoughts; losing them feels like a metaphorical fallen soldier at my side on a battlefield, it's close and it feels foreshadowing of what could happen to me.
In this video, I sort of talk through that mourning process and how I found a rather healing way to think about them and the word I kept returning to was "Hold".
Hold oppressive systems accountable, hold where we stand, hold the line for them, holding it down for them, holding them with us. Hold also means to embrace.
Rest in power, Diana and Tyler
facebook.com/DianaHemingway2
crpl-pnk.tumblr.com
SUPPORT THIS CREATOR
If you enjoy my videos, please consider supporting this channel!
Patreon: patreon.com/annieelainey
PayPal: paypal.me/annieelainey
Amazon Wish List: http://a.co/gyCgqsf
CONTRIBUTE CAPTIONS/SUBTITLES FOR THIS VIDEO
-Click on the gear in the lower-right corner of the video
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youtube.com/timedtext_cs_panel?tab=2&c=UCznS4Pk3VcTIfDUuWrQtdzQ
FIND ME ON THE INTERNET
Facebook facebook.com/ann.e.segarra
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Periscope AnnieElainey
My Associate Store: astore.amazon.com/annielai-20
CHANNEL DESCRIPTION
Annie Segarra (Annie Elainey) creates mainly first-person videos on introspective topics, social topics, sharing her experiences and thoughts on disability, body image, LGBT topics, gender equality, etc, as well as creative content; a variety of music/artistic media and short films. Annie identifies as a queer disabled (Ehlers-Danlos Syndrome) Latinx woman and uses she and they pronouns.
(CW: mourning, depression) I painted this one night in December but talking about it out loud was tough. In the past couple of years I've had two good friends die and their losses like any other spark a mourning process but also triggers my depression/suicidal thoughts; losing them feels like a metaphorical fallen soldier at my side on a battlefield, it's close and it feels foreshadowing of what could happen to me.
In this video, I sort of talk through that mourning process and how I found a rather healing way to think about them and the word I kept returning to was "Hold".
Hold oppressive systems accountable, hold where we stand, hold the line for them, holding it down for them, holding them with us. Hold also means to embrace.
Rest in power, Diana and Tyler
facebook.com/DianaHemingway2
crpl-pnk.tumblr.com
SUPPORT THIS CREATOR
If you enjoy my videos, please consider supporting this channel!
Patreon: patreon.com/annieelainey
PayPal: paypal.me/annieelainey
Amazon Wish List: http://a.co/gyCgqsf
CONTRIBUTE CAPTIONS/SUBTITLES FOR THIS VIDEO
-Click on the gear in the lower-right corner of the video
-Click "Subtitles/CC"
-Click "Add subtitles/CC
-You can contribute Closed Captions in English or subtitles in ANY other language
LIST OF VIDEOS YET TO BE CAPTIONED
youtube.com/timedtext_cs_panel?tab=2&c=UCznS4Pk3VcTIfDUuWrQtdzQ
FIND ME ON THE INTERNET
Facebook facebook.com/ann.e.segarra
Tumblr annieelainey.tumblr.com
Twitter twitter.com/annieelainey
Instagram instagram.com/annieelainey
Snapchat snapchat.com/add/annieelainey
Periscope AnnieElainey
My Associate Store: astore.amazon.com/annielai-20
CHANNEL DESCRIPTION
Annie Segarra (Annie Elainey) creates mainly first-person videos on introspective topics, social topics, sharing her experiences and thoughts on disability, body image, LGBT topics, gender equality, etc, as well as creative content; a variety of music/artistic media and short films. Annie identifies as a queer disabled (Ehlers-Danlos Syndrome) Latinx woman and uses she and they pronouns.
![HOLD: Honoring Our Loves Departed [CC]](https://i.ytimg.com/vi/OiUa4hZT_O0/hqdefault.jpg "HOLD: Honoring Our Loves Departed [CC]
(CW: mourning, depression) I painted this one night in December but talking about it out loud was tough. In the past couple of years Ive had two good friends die and their losses like any other spark a mourning process but also triggers my depression/suicidal thoughts; losing them feels like a metaphorical fallen soldier at my side on a battlefield, its close and it feels foreshadowing of what could happen to me.
In this video, I sort of talk through that mourning process and how I found a rather healing way to think about them and the word I kept returning to was Hold.
Hold oppressive systems accountable, hold where we stand, hold the line for them, holding it down for them, holding them with us. Hold also means to embrace.
Rest in power, Diana and Tyler
https://www.facebook.com/DianaHemingway2
http://crpl-pnk.tumblr.com
SUPPORT THIS CREATOR
If you enjoy my videos, please consider supporting this channel!
Patreon: https://www.patreon.com/annieelainey
PayPal: http://paypal.me/annieelainey
Amazon Wish List: http://a.co/gyCgqsf
CONTRIBUTE CAPTIONS/SUBTITLES FOR THIS VIDEO
-Click on the gear in the lower-right corner of the video
-Click Subtitles/CC
-Click Add subtitles/CC
-You can contribute Closed Captions in English or subtitles in ANY other language
LIST OF VIDEOS YET TO BE CAPTIONED
https://www.youtube.com/timedtext_cs_panel?tab=2&c=UCznS4Pk3VcTIfDUuWrQtdzQ
FIND ME ON THE INTERNET
Facebook http://www.facebook.com/ann.e.segarra
Tumblr http://annieelainey.tumblr.com
Twitter http://twitter.com/annieelainey
Instagram http://instagram.com/annieelainey
Snapchat http://snapchat.com/add/annieelainey
Periscope AnnieElainey
My Associate Store: http://astore.amazon.com/annielai-20
CHANNEL DESCRIPTION
Annie Segarra (Annie Elainey) creates mainly first-person videos on introspective topics, social topics, sharing her experiences and thoughts on disability, body image, LGBT topics, gender equality, etc, as well as creative content; a variety of music/artistic media and short films. Annie identifies as a queer disabled (Ehlers-Danlos Syndrome) Latinx woman and uses she and they pronouns.")
![20 Disabled YouTubers [CC]](https://i.ytimg.com/vi/P8iCxdhYqfE/hqdefault.jpg "20 Disabled YouTubers [CC]
#MediaMonday Im often told that audiences have difficulty finding other disabled YouTubers so I was motivated to compile this list! There are so many folks missing, but here are 20 of the more consistent disabled YouTubers I am subscribed to! Please leave a link in the comments to any other disabled YouTubers you know (or if youre one, yourself)! LINKS BELOW!!
Disabled YouTuber playlist: http://bit.ly/1OkluOU
Sitting Pretty Lolo (with captions): https://youtu.be/4jH4GMbuMGo?list=PLzbLZiJEtlO6r3nOzeLOFvcIrPVy9V05P
Jordan Bone: https://youtu.be/MMkILprbsK4?list=PLzbLZiJEtlO6r3nOzeLOFvcIrPVy9V05P
ThisIsCripple: https://youtu.be/QMLNt0J23PA?list=PLzbLZiJEtlO6r3nOzeLOFvcIrPVy9V05P
Rebel Wheels NYC (Michelle, with captions): https://youtu.be/A8uRH6h6VJw?list=PLzbLZiJEtlO6r3nOzeLOFvcIrPVy9V05P
Josh Sundquist: https://youtu.be/VQILoxtWvzI?list=PLzbLZiJEtlO6r3nOzeLOFvcIrPVy9V05P
Amanda McDonough (with captions): https://youtu.be/qB9qqFgxQhQ?list=PLzbLZiJEtlO6r3nOzeLOFvcIrPVy9V05P
ASL Stew (with captions): https://youtu.be/Q8mmbuHuPUs?list=PLzbLZiJEtlO6r3nOzeLOFvcIrPVy9V05P
REN (with captions): https://youtu.be/ecmCHXZkTGI?list=PLzbLZiJEtlO6r3nOzeLOFvcIrPVy9V05P
Rikki Poynter (with captions): https://youtu.be/7t-1kFDPceo?list=PLzbLZiJEtlO6r3nOzeLOFvcIrPVy9V05P
Amythest Schaber (with captions): https://youtu.be/Vju1EbVVgP8?list=PLzbLZiJEtlO6r3nOzeLOFvcIrPVy9V05P
Speechless with Carly Fleishmann: https://youtu.be/a34qMg0aF6w?list=PLzbLZiJEtlO6r3nOzeLOFvcIrPVy9V05P
James Rath (with captions): https://youtu.be/m6c_QjJjEks?list=PLzbLZiJEtlO6r3nOzeLOFvcIrPVy9V05P
FashionEyesta (provides captions): https://youtu.be/eeWRBmmDqGA?list=PLzbLZiJEtlO6r3nOzeLOFvcIrPVy9V05P
Zach Anner: https://youtu.be/nrVhBBe-5XY?list=PLzbLZiJEtlO6r3nOzeLOFvcIrPVy9V05P
Robyn Lambird (with captions): https://youtu.be/psa9IpuGPNc?list=PLzbLZiJEtlO6r3nOzeLOFvcIrPVy9V05P
Bunny Hopkins: https://www.youtube.com/watch?v=91LoqfhUyGM&list=PLzbLZiJEtlO6r3nOzeLOFvcIrPVy9V05P&index=77
Pain and Cats (Laura, with captions): https://youtu.be/1LOE0GYmAP4?list=PLzbLZiJEtlO6r3nOzeLOFvcIrPVy9V05P
Migratory Patterns (Cherry, with captions): https://youtu.be/5-BuTruAtVM?list=PLzbLZiJEtlO6r3nOzeLOFvcIrPVy9V05P
Alexandria Taylor (with captions): https://youtu.be/rNI4n91hGKE?list=PLzbLZiJEtlO6r3nOzeLOFvcIrPVy9V05P
HotPinkSun (Rachel Anne, with captions): https://youtu.be/wn0TZaO Io?list=PLzbLZiJEtlO6r3nOzeLOFvcIrPVy9V05P
If you enjoy my videos, please consider supporting this channel and/or my medical funds:
Patreon: https://www.patreon.com/annieelainey
Medical Expenses, Pain Relief, and Mobility Devices: http://bit.ly/1U62Kti
PayPal: http://bit.ly/1D7QYW2
ABOUT ME
Hello, hello! My name is Annie, my pronouns are she/her, and Im a QWoC, body positive, disabled spoonie. I create videos five days a week (as long as my health allows) usually introspective topics, social topics, disability, body image, sex/gender/dating, feminism, etc, as well as a variety of music/artistic media, tags/challenges, and day-in-the-life vlogs.
*Currently working on captioning ALL videos, contributions are welcome!
CONTRIBUTE SUBTITLES FOR THIS VIDEO
-Click on the gear in the lower-right corner of the video
-Click Subtitles/CC
-Click Add subtitles/CC
-You can contribute Closed Captions in English or subtitles in ANY other language.
FIND ME ON THE INTERNET AND LETS BE FRIENDS!
http://annieelainey.tumblr.com
http://instagram.com/annieelainey
http://twitter.com/annieelainey
http://facebook.com/annesegarra
Snapchat: AnnieElainey
Periscope: AnnieElainey")
![Hold It Against Me (Britney Spears Acoustic Cover) [CC]](https://i.ytimg.com/vi/PGZS-esFgKI/hqdefault.jpg "Hold It Against Me (Britney Spears Acoustic Cover) [CC]
#MusicMonday FREE DOWNLOAD on Sound Cloud: http://bit.ly/1QPZfTO
Instrumental by AVG IQ http://bit.ly/1ok57LW
If you enjoy my videos, please consider supporting this channel and/or my medical funds:
Patreon: https://www.patreon.com/annieelainey
Medical Expenses, Pain Relief, and Mobility Devices: https://www.youcaring.com/annie-segarra-470698
PayPal: anniesegarra at live dot com
FIND ME ON THE INTERNET AND LETS BE FRIENDS!
http://annieelainey.tumblr.com
http://instagram.com/annieelainey
http://twitter.com/annieelainey
http://facebook.com/annesegarra
Snapchat: annieelainey
PLEASE SUBSCRIBE AND CHECK OUT MORE VIDEOS
http://youtube.com/theannieelainey")
![3 Ways To Caption Your Videos (DIY, 3rd Party, Contributions)| #NoMoreCraptions [CC]](https://i.ytimg.com/vi/PH_l1qYKssA/hqdefault.jpg "3 Ways To Caption Your Videos (DIY, 3rd Party, Contributions)| #NoMoreCraptions [CC]
This video is part of my participation in the #NoMoreCraptions campaign for the original video click here: https://www.youtube.com/watch?v=apKbZOHZF7o
1) DIY CAPTIONS
YouTube Caption Tutorial: https://www.youtube.com/watch?v=XJGiS83eQLk
3 Fast and Easy Ways to DIY Caption: https://www.youtube.com/watch?v=5UxFXD8Hmcc
3 Tips/Must Dos for DIY Captions: https://www.youtube.com/watch?v=hPVln5IUGNs
2) 3RD PARTY
3 Ways to Pay for Captions: https://www.youtube.com/watch?v=Zm4QFtfzyB8
3) FAN CONTRIBUTED CAPTIONS
Contribute Captions Tutorial: https://www.youtube.com/watch?v=jiEybiElXgk
3 Messages For Caption Contributors: https://www.youtube.com/watch?v=pZ0H9YaNjVE
Rikki Poynters 3 Ways To Caption Your Videos https://www.youtube.com/watch?v=7t-1kFDPceo
3 Ways To Caption Your Videos: https://www.youtube.com/watch?v=PH_l1qYKssA
3 Methods for DIY Captions: https://www.youtube.com/watch?v=5UxFXD8Hmcc
3 Tips for DIY Captions: https://www.youtube.com/watch?v=hPVln5IUGNs
3 Ways to Pay for Captions: https://www.youtube.com/watch?v=Zm4QFtfzyB8
3 Messages for Caption Contributors: https://www.youtube.com/watch?v=pZ0H9YaNjVE
New Videos Monday-Friday #WithCaptions Subscribe!
READ MORE BELOW!
***IN THIS VIDEO***
Mic used: http://amzn.to/2ahAuT5
Camera used: http://amzn.to/2a5jPCq
My Associate Store: http://astore.amazon.com/annielai-20
***SUPPORT THIS CREATOR***
If you enjoy my videos, please consider supporting this channel and/or my medical funds:
Patreon: https://www.patreon.com/annieelainey
PayPal: http://bit.ly/1D7QYW2
*Currently working on captioning ALL videos, contributions are welcome!
CONTRIBUTE SUBTITLES FOR THIS VIDEO
-Click on the gear in the lower-right corner of the video
-Click Subtitles/CC
-Click Add subtitles/CC
-You can contribute Closed Captions in English or subtitles in ANY other language.
***FIND ME ON THE INTERNET AND LETS BE FRIENDS!***
http://facebook.com/annesegarra
http://annieelainey.tumblr.com
http://instagram.com/annieelainey
http://twitter.com/annieelainey
http://snapchat.com/add/annieelainey
Periscope: AnnieElainey
***ABOUT ME***
Hello, hello! My name is Annie, my pronouns are she/her, and Im a QWoC, body positive, wheelchair user, disabled and chronically ill person (or spoonie).
I create videos five days a week (as long as my health allows) usually introspective topics, social topics, sharing my experiences and point of view with/on disability, body image, sex/gender/dating, gender equality, etc, as well as a variety of music/artistic media, tags/challenges, and day-in-the-life vlogs.")
![Buried Alive (A Poem) [CC]](https://i.ytimg.com/vi/PpWr-wdtXb4/hqdefault.jpg "Buried Alive (A Poem) [CC]
[TW: depression] Buried Alive: Isolation, Loss, and Chronic Illness Ive been having a very hard time with my social isolation because of my chronic illness and chronic pain; isolation because of bed rest but also the people who leave me because Im on bed rest, leave because being around me is too hard, leave because it is too much. My depression has been triggered even further from adjusting to slowly losing ability in my arms because of hypermobility and pain, and when Ive tried to get out and socialize my body and my emotional sensitivities cannot endure it. This experience has led me to create this poem that travels through the loss, grief, cabin fever, bargaining, denial, and acceptance. Being “buried alive” metaphorically refers to the feeling of being left behind, forgotten, trapped, helpless, and isolated.
New Videos Monday-Friday #WithCaptions Subscribe!
HELP ME GET TO VIDCON: http://bit.ly/1XI8Ez6
If you enjoy my videos, please consider supporting this channel and/or my medical funds:
Patreon: https://www.patreon.com/annieelainey
Medical Expenses, Pain Relief, and Mobility Devices: http://bit.ly/1U62Kti
PayPal: http://bit.ly/1D7QYW2
ABOUT ME
Hello, hello! My name is Annie, my pronouns are she/her, and Im a QWoC, body positive, disabled spoonie. I create videos five days a week (as long as my health allows) usually introspective topics, social topics, disability, body image, sex/gender/dating, feminism, etc, as well as a variety of music/artistic media, tags/challenges, and day-in-the-life vlogs.
*Currently working on captioning ALL videos, contributions are welcome!
CONTRIBUTE SUBTITLES FOR THIS VIDEO
-Click on the gear in the lower-right corner of the video
-Click Subtitles/CC
-Click Add subtitles/CC
-You can contribute Closed Captions in English or subtitles in ANY other language.
FIND ME ON THE INTERNET AND LETS BE FRIENDS!
http://annieelainey.tumblr.com
http://instagram.com/annieelainey
http://twitter.com/annieelainey
http://facebook.com/annesegarra
Snapchat: AnnieElainey
Periscope: AnnieElainey")
![Room Tour 2017 | VLOGMAS DAY 8 [CC]](https://i.ytimg.com/vi/QbBFXREVJEo/hqdefault.jpg "Room Tour 2017 | VLOGMAS DAY 8 [CC]
(CW: motion sickness, hand-held moving camera, 360 spin 0:45-0:48) With a clean room, I decided it was finally time to share a little tour of my room and what I keep in there! I did you all a favor and did NOT do a Cribs parody, although I definitely considered it! Haha! This is all incredibly off the top of my head and I probably could go more into detail about certain things and just didnt think to, haha, so if you have any questions leave them in the comments! Let me know your bedroom traditions, habits, and structures!!
SUPPORT THIS CREATOR
If you enjoy my videos, please consider supporting this channel!
Patreon: https://www.patreon.com/annieelainey
PayPal: http://paypal.me/annieelainey
Amazon Wish List: http://a.co/gyCgqsf
CONTRIBUTE CAPTIONS/SUBTITLES FOR THIS VIDEO
-Click on the gear in the lower-right corner of the video
-Click Subtitles/CC
-Click Add subtitles/CC
-You can contribute Closed Captions in English or subtitles in ANY other language
LIST OF VIDEOS YET TO BE CAPTIONED
https://www.youtube.com/timedtext_cs_panel?tab=2&c=UCznS4Pk3VcTIfDUuWrQtdzQ
FIND ME ON THE INTERNET
Facebook http://www.facebook.com/ann.e.segarra
Tumblr http://annieelainey.tumblr.com
Twitter http://twitter.com/annieelainey
Instagram http://instagram.com/annieelainey
Snapchat http://snapchat.com/add/annieelainey
Periscope AnnieElainey
IN THIS VIDEO
Mic used: http://amzn.to/2ahAuT5
Camera used: http://amzn.to/2a5jPCq
My Associate Store: http://astore.amazon.com/annielai-20
CHANNEL DESCRIPTION
Annie Segarra (Annie Elainey) creates mainly first-person videos on introspective topics, social topics, sharing her experiences and thoughts on disability, body image, LGBT topics, gender equality, etc, as well as creative content; a variety of music/artistic media and short films. Annie identifies as a queer disabled (Ehlers-Danlos Syndrome) Latinx woman and uses she and they pronouns.")
![#NotMyYouTube [CC]](https://i.ytimg.com/vi/Qmy6pR2rd6E/hqdefault.jpg "#NotMyYouTube [CC]
Meghan Tonjes: https://www.youtube.com/watch?v=rsdBCTpbJUE
Gunnarolla: http://www.youtube.com/gunnarolla
1. How do you find out about new videos?
2. What’s a feature of the site you miss?
3. What’s your least favorite trend on YouTube?
4. What’s the most drastic thing you’ve done to get views/subs?
5. Do you have any regrets on YouTube? (Content, strategy, personal)
6. How has your channel changed since one year ago?
7. What do you do to support your favorite creators?
8. How do you define success?
9. Are you happy?
10. Why do you to YouTube and how long do you think you’ll keep doing it?
11. Has YouTube made your life better or worse?
***IN THIS VIDEO***
Mic used: http://amzn.to/2ahAuT5
Camera used: http://amzn.to/2a5jPCq
My Associate Store: http://astore.amazon.com/annielai-20
***SUPPORT THIS CREATOR***
If you enjoy my videos, please consider supporting this channel and/or my medical funds:
Patreon: https://www.patreon.com/annieelainey
PayPal: http://bit.ly/1D7QYW2
*Currently working on captioning ALL videos, contributions are welcome!
CONTRIBUTE SUBTITLES FOR THIS VIDEO
-Click on the gear in the lower-right corner of the video
-Click Subtitles/CC
-Click Add subtitles/CC
-You can contribute Closed Captions in English or subtitles in ANY other language.
***FIND ME ON THE INTERNET AND LETS BE FRIENDS!***
http://www.facebook.com/annesegarra
http://annieelainey.tumblr.com
http://instagram.com/annieelainey
http://twitter.com/annieelainey
http://snapchat.com/add/annieelainey
Periscope: AnnieElainey
***ABOUT ME***
Hello, hello! My name is Annie, my pronouns are she/her, and Im a QWoC, body positive, wheelchair user, disabled and chronically ill person (or spoonie).
I create videos five days a week (as long as my health allows) usually introspective topics, social topics, sharing my experiences and point of view with/on disability, body image, sex/gender/dating, gender equality, etc, as well as a variety of music/artistic media, tags/challenges, and day-in-the-life vlogs.")
![What Came True & Whats Next | VLOGMAS DAY 13 [CC]](https://i.ytimg.com/vi/R72BvTnjizM/hqdefault.jpg "What Came True & Whats Next | VLOGMAS DAY 13 [CC]
Getting ready to arrange/update my vision/mood board so Im looking back on this years successes and not-so-successes and what my aspirations are for the new year! Let me know what great things happened to you this year and what are some of your goals for the future!
SUPPORT THIS CREATOR
If you enjoy my videos, please consider supporting this channel!
Patreon: https://www.patreon.com/annieelainey
PayPal: http://paypal.me/annieelainey
Amazon Wish List: http://a.co/gyCgqsf
CONTRIBUTE CAPTIONS/SUBTITLES FOR THIS VIDEO
-Click on the gear in the lower-right corner of the video
-Click Subtitles/CC
-Click Add subtitles/CC
-You can contribute Closed Captions in English or subtitles in ANY other language
LIST OF VIDEOS YET TO BE CAPTIONED
https://www.youtube.com/timedtext_cs_panel?tab=2&c=UCznS4Pk3VcTIfDUuWrQtdzQ
FIND ME ON THE INTERNET
Facebook http://www.facebook.com/ann.e.segarra
Tumblr http://annieelainey.tumblr.com
Twitter http://twitter.com/annieelainey
Instagram http://instagram.com/annieelainey
Snapchat http://snapchat.com/add/annieelainey
Periscope AnnieElainey
IN THIS VIDEO
Mic used: http://amzn.to/2ahAuT5
Camera used: http://amzn.to/2a5jPCq
My Associate Store: http://astore.amazon.com/annielai-20
CHANNEL DESCRIPTION
Annie Segarra (Annie Elainey) creates mainly first-person videos on introspective topics, social topics, sharing her experiences and thoughts on disability, body image, LGBT topics, gender equality, etc, as well as creative content; a variety of music/artistic media and short films. Annie identifies as a queer disabled (Ehlers-Danlos Syndrome) Latinx woman and uses she and they pronouns.")
![The Chronic Pain Tag #TheChronicPainTag | Annie Elainey [CC]](https://i.ytimg.com/vi/RGggA7Rh5IM/hqdefault.jpg "The Chronic Pain Tag #TheChronicPainTag | Annie Elainey [CC]
[Closed Captions available, CW: visual text of q-slur at very end of video in Previous Video promo] I created The Chronic Pain Tag in hopes of increasing visibility for this invisible disability and recognizing the diversity of experiences within it. I hope anyone who watches these videos are offered some insight as to what its like to live with chronic pain and for those that do, the uplifting of our narratives and a sense of solidarity amongst those with shared experiences. For my chronic pain tag I tried to gather up all possible info about the pain I experience, but there is still stuff I managed to leave out, like how high the pain levels can get; how a flare once lasted 10 whole days, 10 whole days of being in so much pain that I couldnt move an inch, I managed to get out of bed for bathroom emergencies but the rest of my time was spend lying flat on my back, staring at the ceiling, perfectly still. Unable to turn my head to watch television, unable to sit up to eat, unable to bathe. I constantly experience a pain that feels more like muscle tension in my upper back, neck, and shoulders, but once again, didnt consider mentioning it because I dismiss it as something everyone goes through. I am also still in search for a diagnosis and treatment and the majority of my time is spend on bed rest. When someone tells you they experience chronic pain there are so many things that could mean!
The Chronic Pain Tag (Explanation): https://youtu.be/CSFIO0Z_e3c
#TheChronicPainTag Questions
1) How/when did your chronic pain begin?
2) What kind of pain do you experience? What does it feel like?
3) Is it consistent or on and off?
4) Do you have of any specific triggers for your pain?
5) How does your pain limit you?
6) How do you cope with your pain?
7) When are you most comfortable?
8) How do you feel least supported?
9) How do you feel most supported?
I would love if you shared your experiences as well! Tag #TheChronicPainTag on Twitter, Tumblr, Facebook so we can all find each other! Tag #TheChronicPainTag on Twitter, Tumblr, Facebook so we can all find each other!
New Videos Monday-Friday #WithCaptions Subscribe!
HELP ME GET TO VIDCON: http://bit.ly/1XI8Ez6
If you enjoy my videos, please consider supporting this channel and/or my medical funds:
Patreon: https://www.patreon.com/annieelainey
Medical Expenses, Pain Relief, and Mobility Devices: http://bit.ly/1U62Kti
PayPal: http://bit.ly/1D7QYW2
ABOUT ME
Hello, hello! My name is Annie, my pronouns are she/her, and Im a QWoC, body positive, disabled spoonie. I create videos five days a week (as long as my health allows) usually introspective topics, social topics, disability, body image, sex/gender/dating, feminism, etc, as well as a variety of music/artistic media, tags/challenges, and day-in-the-life vlogs.
*Currently working on captioning ALL videos, contributions are welcome!
CONTRIBUTE SUBTITLES FOR THIS VIDEO
-Click on the gear in the lower-right corner of the video
-Click Subtitles/CC
-Click Add subtitles/CC
-You can contribute Closed Captions in English or subtitles in ANY other language.
FIND ME ON THE INTERNET AND LETS BE FRIENDS!
http://annieelainey.tumblr.com
http://instagram.com/annieelainey
http://twitter.com/annieelainey
http://facebook.com/annesegarra
Snapchat: AnnieElainey
Periscope: AnnieElainey")
![OCTOBER/NOVEMBER FAVORITES [CC]](https://i.ytimg.com/vi/Ri778I8UGEk/hqdefault.jpg "OCTOBER/NOVEMBER FAVORITES [CC]
OCTOBER/NOVEMBER FAVORITES
-Easy Acc Phone Holder http://amzn.to/2gnjEW7
-Switched at Birth is available on Netflix and FreeForm
-Amanda McDonoughs YouTube Channel http://bit.ly/2gEL1J7
-Current favorite ASMR videos for falling asleep (These videos contain a variety of noises including whispering, water sounds, tapping, etc. Headphones are highly recommended):
What is ASMR (40 Triggers) https://youtu.be/L5QjfnIHZ1A
Shampooing You https://youtu.be/3fV43gqf3-k
Sleeping Pill Study (Medical Role Play) https://youtu.be/1CJe8NoGNPA
The Ultimate ASMR Sleep Clinic https://youtu.be/jMBC_7L_P_0
My Christmas Amazon Wish List
http://a.co/gyCgqsf
SUPPORT THIS CREATOR
If you enjoy my videos, please consider supporting this channel!
Patreon: https://www.patreon.com/annieelainey
PayPal: http://paypal.me/annieelainey
CONTRIBUTE CAPTIONS/SUBTITLES FOR THIS VIDEO
-Click on the gear in the lower-right corner of the video
-Click Subtitles/CC
-Click Add subtitles/CC
-You can contribute Closed Captions in English or subtitles in ANY other language
LIST OF VIDEOS YET TO BE CAPTIONED
https://www.youtube.com/timedtext_cs_panel?tab=2&c=UCznS4Pk3VcTIfDUuWrQtdzQ
FIND ME ON THE INTERNET
http://www.facebook.com/annesegarra
http://twitter.com/annieelainey
http://annieelainey.tumblr.com
http://instagram.com/annieelainey
http://snapchat.com/add/annieelainey
Periscope: AnnieElainey
IN THIS VIDEO
Mic used: http://amzn.to/2ahAuT5
Camera used: http://amzn.to/2a5jPCq
My Associate Store: http://astore.amazon.com/annielai-20
CHANNEL DESCRIPTION
Annie Segarra (Annie Elainey) creates mainly first-person videos on introspective topics, social topics, sharing her experiences and thoughts on disability, body image, LGBT topics, gender equality, etc, as well as creative content; a variety of music/artistic media and short films. Annie identifies as a queer Latinx disabled woman and uses she and they pronouns.")
![COMING OUT AS DISABLED | My Visible and Invisible Disability [CC]](https://i.ytimg.com/vi/RxNWV8Kg_GY/hqdefault.jpg "COMING OUT AS DISABLED | My Visible and Invisible Disability [CC]
#InvisibleDisability- a disability that cannot be easily seen or measured; often discounted or not respected. We have to have #TheConversation, sometimes my disability is visible and sometimes my disability is invisible, but even if there is no optic evidence, I am still disabled. UPDATE: I finally received a diagnosis https://www.youtube.com/watch?v=LZeie3pMa3k&t
Im glad I made this video because I stand by that with or without official diagnosis, my symptoms and disabilities were the same. A doctor not recognizing your disability does not mean your disability is not real.
If you enjoy my videos, please consider supporting this channel and/or my medical funds:
Patreon: https://www.patreon.com/annieelainey
Medical Expenses, Pain Relief, and Mobility Devices: http://bit.ly/1U62Kti
PayPal: http://bit.ly/1D7QYW2
ABOUT ME
Hello, hello! My name is Annie, my pronouns are she/her, and Im a QWoC, body positive, disabled spoonie. I create videos five days a week (as long as my health allows) usually introspective topics, social topics, disability, body image, sex/gender/dating, feminism, etc, as well as a variety of music/artistic media, tags/challenges, and day-in-the-life vlogs.
*Currently working on captioning ALL videos, contributions are welcome!
CONTRIBUTE SUBTITLES FOR THIS VIDEO
-Click on the gear in the lower-right corner of the video
-Click Subtitles/CC
-Click Add subtitles/CC
-You can contribute Closed Captions in English or subtitles in ANY other language.
FIND ME ON THE INTERNET AND LETS BE FRIENDS!
http://annieelainey.tumblr.com
http://instagram.com/annieelainey
http://twitter.com/annieelainey
http://facebook.com/annesegarra
Snapchat: AnnieElainey
Periscope: AnnieElainey")
![My EDS Symptoms & Struggles w/ Access to Medical Care: Part 2 (2/2) #ThisIsMyEDS Tag [CC]](https://i.ytimg.com/vi/SEogrE3Id8Q/hqdefault.jpg "My EDS Symptoms & Struggles w/ Access to Medical Care: Part 2 (2/2) #ThisIsMyEDS Tag [CC]
This is the second half of the Part 2 questions of #ThisIsMyEDS tag (link to the previous video and the questions for #ThisIsMyEDS will be linked below). In this video, I will be discussing some of the earlier symptoms I identified, my drastic health decline in my early 20s, my attempts at managing my symptoms without full access to medical care, how trauma has made me all the more uncomfortable in medical spaces though I try to push through it, and resources I use to stay afloat.
Annie Elaineys #ThisIsMyEDS Part 2 (1/2) https://www.youtube.com/watch?v=mwUuPmQlksE
#ThisIsMyEDS tag questions: https://docs.google.com/document/d/1c_UA0QbuxGZnnC49oL9sOl1QZXLitfVtstyfsha6S38/edit?usp=sharing&pageId=116656539692235031322
EDS Shirt (click Id buy this) to be alerted when they return: http://bonfire.com/ehlers-danlos-zebra-swatch
SUPPORT THIS CREATOR
If you enjoy my videos, please consider supporting this channel!
Patreon: https://www.patreon.com/annieelainey
PayPal: http://paypal.me/annieelainey
Amazon Wish List: http://a.co/gyCgqsf
CONTRIBUTE CAPTIONS/SUBTITLES FOR THIS VIDEO
-Click on the gear in the lower-right corner of the video
-Click Subtitles/CC
-Click Add subtitles/CC
-You can contribute Closed Captions in English or subtitles in ANY other language
LIST OF VIDEOS YET TO BE CAPTIONED
https://www.youtube.com/timedtext_cs_panel?tab=2&c=UCznS4Pk3VcTIfDUuWrQtdzQ
FIND ME ON THE INTERNET
http://www.facebook.com/ann.e.segarra
http://annieelainey.tumblr.com
http://twitter.com/annieelainey
http://instagram.com/annieelainey
http://snapchat.com/add/annieelainey
Periscope: AnnieElainey
IN THIS VIDEO
Mic used: http://amzn.to/2ahAuT5
Camera used: http://amzn.to/2a5jPCq
My Associate Store: http://astore.amazon.com/annielai-20
CHANNEL DESCRIPTION
Annie Segarra (Annie Elainey) creates mainly first-person videos on introspective topics, social topics, sharing her experiences and thoughts on disability, body image, LGBT topics, gender equality, etc, as well as creative content; a variety of music/artistic media and short films. Annie identifies as a queer disabled (Ehlers-Danlos Syndrome) Latinx woman and uses she and they pronouns.")
