![Room Tour 2017 | VLOGMAS DAY 8 [CC] @theannieelainey](https://i.ytimg.com/vi/QbBFXREVJEo/maxresdefault.jpg)
Annie Elainey | Room Tour 2017 | VLOGMAS DAY 8 [CC] @theannieelainey | Uploaded December 2017 | Updated October 2024, 10 hours ago.
(CW: motion sickness, hand-held moving camera, 360 spin 0:45-0:48) With a clean room, I decided it was finally time to share a little tour of my room and what I keep in there! I did you all a favor and did NOT do a Cribs parody, although I definitely considered it! Haha! This is all incredibly off the top of my head and I probably could go more into detail about certain things and just didn't think to, haha, so if you have any questions leave them in the comments! Let me know your bedroom traditions, habits, and structures!!
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CHANNEL DESCRIPTION
Annie Segarra (Annie Elainey) creates mainly first-person videos on introspective topics, social topics, sharing her experiences and thoughts on disability, body image, LGBT topics, gender equality, etc, as well as creative content; a variety of music/artistic media and short films. Annie identifies as a queer disabled (Ehlers-Danlos Syndrome) Latinx woman and uses she and they pronouns.
(CW: motion sickness, hand-held moving camera, 360 spin 0:45-0:48) With a clean room, I decided it was finally time to share a little tour of my room and what I keep in there! I did you all a favor and did NOT do a Cribs parody, although I definitely considered it! Haha! This is all incredibly off the top of my head and I probably could go more into detail about certain things and just didn't think to, haha, so if you have any questions leave them in the comments! Let me know your bedroom traditions, habits, and structures!!
SUPPORT THIS CREATOR
If you enjoy my videos, please consider supporting this channel!
Patreon: patreon.com/annieelainey
PayPal: paypal.me/annieelainey
Amazon Wish List: http://a.co/gyCgqsf
CONTRIBUTE CAPTIONS/SUBTITLES FOR THIS VIDEO
-Click on the gear in the lower-right corner of the video
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-You can contribute Closed Captions in English or subtitles in ANY other language
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IN THIS VIDEO
Mic used: amzn.to/2ahAuT5
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CHANNEL DESCRIPTION
Annie Segarra (Annie Elainey) creates mainly first-person videos on introspective topics, social topics, sharing her experiences and thoughts on disability, body image, LGBT topics, gender equality, etc, as well as creative content; a variety of music/artistic media and short films. Annie identifies as a queer disabled (Ehlers-Danlos Syndrome) Latinx woman and uses she and they pronouns.
![Room Tour 2017 | VLOGMAS DAY 8 [CC]](https://i.ytimg.com/vi/QbBFXREVJEo/hqdefault.jpg "Room Tour 2017 | VLOGMAS DAY 8 [CC]
(CW: motion sickness, hand-held moving camera, 360 spin 0:45-0:48) With a clean room, I decided it was finally time to share a little tour of my room and what I keep in there! I did you all a favor and did NOT do a Cribs parody, although I definitely considered it! Haha! This is all incredibly off the top of my head and I probably could go more into detail about certain things and just didnt think to, haha, so if you have any questions leave them in the comments! Let me know your bedroom traditions, habits, and structures!!
SUPPORT THIS CREATOR
If you enjoy my videos, please consider supporting this channel!
Patreon: https://www.patreon.com/annieelainey
PayPal: http://paypal.me/annieelainey
Amazon Wish List: http://a.co/gyCgqsf
CONTRIBUTE CAPTIONS/SUBTITLES FOR THIS VIDEO
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IN THIS VIDEO
Mic used: http://amzn.to/2ahAuT5
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CHANNEL DESCRIPTION
Annie Segarra (Annie Elainey) creates mainly first-person videos on introspective topics, social topics, sharing her experiences and thoughts on disability, body image, LGBT topics, gender equality, etc, as well as creative content; a variety of music/artistic media and short films. Annie identifies as a queer disabled (Ehlers-Danlos Syndrome) Latinx woman and uses she and they pronouns.")
![#NotMyYouTube [CC]](https://i.ytimg.com/vi/Qmy6pR2rd6E/hqdefault.jpg "#NotMyYouTube [CC]
Meghan Tonjes: https://www.youtube.com/watch?v=rsdBCTpbJUE
Gunnarolla: http://www.youtube.com/gunnarolla
1. How do you find out about new videos?
2. What’s a feature of the site you miss?
3. What’s your least favorite trend on YouTube?
4. What’s the most drastic thing you’ve done to get views/subs?
5. Do you have any regrets on YouTube? (Content, strategy, personal)
6. How has your channel changed since one year ago?
7. What do you do to support your favorite creators?
8. How do you define success?
9. Are you happy?
10. Why do you to YouTube and how long do you think you’ll keep doing it?
11. Has YouTube made your life better or worse?
***IN THIS VIDEO***
Mic used: http://amzn.to/2ahAuT5
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My Associate Store: http://astore.amazon.com/annielai-20
***SUPPORT THIS CREATOR***
If you enjoy my videos, please consider supporting this channel and/or my medical funds:
Patreon: https://www.patreon.com/annieelainey
PayPal: http://bit.ly/1D7QYW2
*Currently working on captioning ALL videos, contributions are welcome!
CONTRIBUTE SUBTITLES FOR THIS VIDEO
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***ABOUT ME***
Hello, hello! My name is Annie, my pronouns are she/her, and Im a QWoC, body positive, wheelchair user, disabled and chronically ill person (or spoonie).
I create videos five days a week (as long as my health allows) usually introspective topics, social topics, sharing my experiences and point of view with/on disability, body image, sex/gender/dating, gender equality, etc, as well as a variety of music/artistic media, tags/challenges, and day-in-the-life vlogs.")
![What Came True & Whats Next | VLOGMAS DAY 13 [CC]](https://i.ytimg.com/vi/R72BvTnjizM/hqdefault.jpg "What Came True & Whats Next | VLOGMAS DAY 13 [CC]
Getting ready to arrange/update my vision/mood board so Im looking back on this years successes and not-so-successes and what my aspirations are for the new year! Let me know what great things happened to you this year and what are some of your goals for the future!
SUPPORT THIS CREATOR
If you enjoy my videos, please consider supporting this channel!
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Periscope AnnieElainey
IN THIS VIDEO
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CHANNEL DESCRIPTION
Annie Segarra (Annie Elainey) creates mainly first-person videos on introspective topics, social topics, sharing her experiences and thoughts on disability, body image, LGBT topics, gender equality, etc, as well as creative content; a variety of music/artistic media and short films. Annie identifies as a queer disabled (Ehlers-Danlos Syndrome) Latinx woman and uses she and they pronouns.")
![The Chronic Pain Tag #TheChronicPainTag | Annie Elainey [CC]](https://i.ytimg.com/vi/RGggA7Rh5IM/hqdefault.jpg "The Chronic Pain Tag #TheChronicPainTag | Annie Elainey [CC]
[Closed Captions available, CW: visual text of q-slur at very end of video in Previous Video promo] I created The Chronic Pain Tag in hopes of increasing visibility for this invisible disability and recognizing the diversity of experiences within it. I hope anyone who watches these videos are offered some insight as to what its like to live with chronic pain and for those that do, the uplifting of our narratives and a sense of solidarity amongst those with shared experiences. For my chronic pain tag I tried to gather up all possible info about the pain I experience, but there is still stuff I managed to leave out, like how high the pain levels can get; how a flare once lasted 10 whole days, 10 whole days of being in so much pain that I couldnt move an inch, I managed to get out of bed for bathroom emergencies but the rest of my time was spend lying flat on my back, staring at the ceiling, perfectly still. Unable to turn my head to watch television, unable to sit up to eat, unable to bathe. I constantly experience a pain that feels more like muscle tension in my upper back, neck, and shoulders, but once again, didnt consider mentioning it because I dismiss it as something everyone goes through. I am also still in search for a diagnosis and treatment and the majority of my time is spend on bed rest. When someone tells you they experience chronic pain there are so many things that could mean!
The Chronic Pain Tag (Explanation): https://youtu.be/CSFIO0Z_e3c
#TheChronicPainTag Questions
1) How/when did your chronic pain begin?
2) What kind of pain do you experience? What does it feel like?
3) Is it consistent or on and off?
4) Do you have of any specific triggers for your pain?
5) How does your pain limit you?
6) How do you cope with your pain?
7) When are you most comfortable?
8) How do you feel least supported?
9) How do you feel most supported?
I would love if you shared your experiences as well! Tag #TheChronicPainTag on Twitter, Tumblr, Facebook so we can all find each other! Tag #TheChronicPainTag on Twitter, Tumblr, Facebook so we can all find each other!
New Videos Monday-Friday #WithCaptions Subscribe!
HELP ME GET TO VIDCON: http://bit.ly/1XI8Ez6
If you enjoy my videos, please consider supporting this channel and/or my medical funds:
Patreon: https://www.patreon.com/annieelainey
Medical Expenses, Pain Relief, and Mobility Devices: http://bit.ly/1U62Kti
PayPal: http://bit.ly/1D7QYW2
ABOUT ME
Hello, hello! My name is Annie, my pronouns are she/her, and Im a QWoC, body positive, disabled spoonie. I create videos five days a week (as long as my health allows) usually introspective topics, social topics, disability, body image, sex/gender/dating, feminism, etc, as well as a variety of music/artistic media, tags/challenges, and day-in-the-life vlogs.
*Currently working on captioning ALL videos, contributions are welcome!
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Snapchat: AnnieElainey
Periscope: AnnieElainey")
![OCTOBER/NOVEMBER FAVORITES [CC]](https://i.ytimg.com/vi/Ri778I8UGEk/hqdefault.jpg "OCTOBER/NOVEMBER FAVORITES [CC]
OCTOBER/NOVEMBER FAVORITES
-Easy Acc Phone Holder http://amzn.to/2gnjEW7
-Switched at Birth is available on Netflix and FreeForm
-Amanda McDonoughs YouTube Channel http://bit.ly/2gEL1J7
-Current favorite ASMR videos for falling asleep (These videos contain a variety of noises including whispering, water sounds, tapping, etc. Headphones are highly recommended):
What is ASMR (40 Triggers) https://youtu.be/L5QjfnIHZ1A
Shampooing You https://youtu.be/3fV43gqf3-k
Sleeping Pill Study (Medical Role Play) https://youtu.be/1CJe8NoGNPA
The Ultimate ASMR Sleep Clinic https://youtu.be/jMBC_7L_P_0
My Christmas Amazon Wish List
http://a.co/gyCgqsf
SUPPORT THIS CREATOR
If you enjoy my videos, please consider supporting this channel!
Patreon: https://www.patreon.com/annieelainey
PayPal: http://paypal.me/annieelainey
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IN THIS VIDEO
Mic used: http://amzn.to/2ahAuT5
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My Associate Store: http://astore.amazon.com/annielai-20
CHANNEL DESCRIPTION
Annie Segarra (Annie Elainey) creates mainly first-person videos on introspective topics, social topics, sharing her experiences and thoughts on disability, body image, LGBT topics, gender equality, etc, as well as creative content; a variety of music/artistic media and short films. Annie identifies as a queer Latinx disabled woman and uses she and they pronouns.")
![COMING OUT AS DISABLED | My Visible and Invisible Disability [CC]](https://i.ytimg.com/vi/RxNWV8Kg_GY/hqdefault.jpg "COMING OUT AS DISABLED | My Visible and Invisible Disability [CC]
#InvisibleDisability- a disability that cannot be easily seen or measured; often discounted or not respected. We have to have #TheConversation, sometimes my disability is visible and sometimes my disability is invisible, but even if there is no optic evidence, I am still disabled. UPDATE: I finally received a diagnosis https://www.youtube.com/watch?v=LZeie3pMa3k&t
Im glad I made this video because I stand by that with or without official diagnosis, my symptoms and disabilities were the same. A doctor not recognizing your disability does not mean your disability is not real.
If you enjoy my videos, please consider supporting this channel and/or my medical funds:
Patreon: https://www.patreon.com/annieelainey
Medical Expenses, Pain Relief, and Mobility Devices: http://bit.ly/1U62Kti
PayPal: http://bit.ly/1D7QYW2
ABOUT ME
Hello, hello! My name is Annie, my pronouns are she/her, and Im a QWoC, body positive, disabled spoonie. I create videos five days a week (as long as my health allows) usually introspective topics, social topics, disability, body image, sex/gender/dating, feminism, etc, as well as a variety of music/artistic media, tags/challenges, and day-in-the-life vlogs.
*Currently working on captioning ALL videos, contributions are welcome!
CONTRIBUTE SUBTITLES FOR THIS VIDEO
-Click on the gear in the lower-right corner of the video
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-Click Add subtitles/CC
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FIND ME ON THE INTERNET AND LETS BE FRIENDS!
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http://instagram.com/annieelainey
http://twitter.com/annieelainey
http://facebook.com/annesegarra
Snapchat: AnnieElainey
Periscope: AnnieElainey")
![My EDS Symptoms & Struggles w/ Access to Medical Care: Part 2 (2/2) #ThisIsMyEDS Tag [CC]](https://i.ytimg.com/vi/SEogrE3Id8Q/hqdefault.jpg "My EDS Symptoms & Struggles w/ Access to Medical Care: Part 2 (2/2) #ThisIsMyEDS Tag [CC]
This is the second half of the Part 2 questions of #ThisIsMyEDS tag (link to the previous video and the questions for #ThisIsMyEDS will be linked below). In this video, I will be discussing some of the earlier symptoms I identified, my drastic health decline in my early 20s, my attempts at managing my symptoms without full access to medical care, how trauma has made me all the more uncomfortable in medical spaces though I try to push through it, and resources I use to stay afloat.
Annie Elaineys #ThisIsMyEDS Part 2 (1/2) https://www.youtube.com/watch?v=mwUuPmQlksE
#ThisIsMyEDS tag questions: https://docs.google.com/document/d/1c_UA0QbuxGZnnC49oL9sOl1QZXLitfVtstyfsha6S38/edit?usp=sharing&pageId=116656539692235031322
EDS Shirt (click Id buy this) to be alerted when they return: http://bonfire.com/ehlers-danlos-zebra-swatch
SUPPORT THIS CREATOR
If you enjoy my videos, please consider supporting this channel!
Patreon: https://www.patreon.com/annieelainey
PayPal: http://paypal.me/annieelainey
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CONTRIBUTE CAPTIONS/SUBTITLES FOR THIS VIDEO
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Periscope: AnnieElainey
IN THIS VIDEO
Mic used: http://amzn.to/2ahAuT5
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My Associate Store: http://astore.amazon.com/annielai-20
CHANNEL DESCRIPTION
Annie Segarra (Annie Elainey) creates mainly first-person videos on introspective topics, social topics, sharing her experiences and thoughts on disability, body image, LGBT topics, gender equality, etc, as well as creative content; a variety of music/artistic media and short films. Annie identifies as a queer disabled (Ehlers-Danlos Syndrome) Latinx woman and uses she and they pronouns.")
![Disabled Person OR Person With a Disability?[CC]](https://i.ytimg.com/vi/SMKKze48Qbo/hqdefault.jpg "Disabled Person OR Person With a Disability?[CC]
Today we are discussing a popular topic; is it more appropriate to say disabled person or person with a disability (PWD)? Well, it all depends on how an individual identifies, there are strong feelings about each. This particular discussion is about identity-first versus person-first language, abbreviated, you might see people refer to it as IFL vs PFL. As far as disability identity, I identify as a disabled, wheelchair user, with Ehlers-Danlos Syndrome. What language honors you?
Journalists should learn to carefully traverse a variety of disability terminology http://bit.ly/2gfXAvf
Identity-First Language http://bit.ly/1N0LlKq
I am Disabled: On Identity-First Vs People-First Language http://bit.ly/2gbYWWd
***IN THIS VIDEO***
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My Associate Store: http://astore.amazon.com/annielai-20
***SUPPORT THIS CREATOR***
If you enjoy my videos, please consider supporting this channel and/or my medical funds:
Patreon: https://www.patreon.com/annieelainey
PayPal: http://bit.ly/1D7QYW2
*Currently working on captioning ALL videos, contributions are welcome!
CONTRIBUTE SUBTITLES FOR THIS VIDEO
-Click on the gear in the lower-right corner of the video
-Click Subtitles/CC
-Click Add subtitles/CC
-You can contribute Closed Captions in English or subtitles in ANY other language.
***FIND ME ON THE INTERNET AND LETS BE FRIENDS!***
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http://snapchat.com/add/annieelainey
Periscope: AnnieElainey
***ABOUT ME***
Hello, hello! My name is Annie, my pronouns are she/her, and Im a QWoC, body positive, wheelchair user, disabled and chronically ill person (or spoonie).
I create videos five days a week (as long as my health allows) usually introspective topics, social topics, sharing my experiences and point of view with/on disability, body image, sex/gender/dating, gender equality, etc, as well as a variety of music/artistic media, tags/challenges, and day-in-the-life vlogs.")
![WHERE DID YOU GET THAT? [CC]](https://i.ytimg.com/vi/SQ3GqMmdZgU/hqdefault.jpg "WHERE DID YOU GET THAT? [CC]
Rounding up my most frequently asked about items of clothing and a couple of things I just want to share with you! Shout out to HiPleasures, Criptiques, Kat Blaque, FTM Magazine, and We Love Colors! If you enjoy my videos, please consider supporting this channel and/or my medical funds:
Patreon: https://www.patreon.com/annieelainey
Medical Expenses, Pain Relief, and Mobility Devices: http://bit.ly/1U62Kti
PayPal: http://bit.ly/1D7QYW2
WHERE DID YOU GET THAT:
Gryffindor T-Shirt: http://amzn.to/1pGhjrb
HiPleasures: http://hipleasures.com/
My Other Disability: http://bit.ly/1SFaYrb
You Cant Sit With Us: http://bit.ly/1SFm1Rk
OMG Karen: http://bit.ly/1RhvfOg
Let Them Be: https://society6.com/kattyb/tshirts
-Kat Blaque YouTube: https://www.youtube.com/user/TransDIYer
Gay Pride Belle and Jasmine: http://ebay.eu/1RDqbUV
Faux Leather Fingerless Gloves: http://bit.ly/1RDsNSy
Mesh Fingerless Gloves: http://amzn.to/1QR865V
Frida Kahlo Socks: http://bit.ly/1RDsNSy
We Love Colors: http://welovecolors.com
-USE CODE: greenmarch by 3/13/16 for FREE SHIPPING on any order over $20
FIND ME ON THE INTERNET AND LETS BE FRIENDS!
http://annieelainey.tumblr.com
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http://twitter.com/annieelainey
http://facebook.com/annesegarra
Snapchat: annieelainey
PLEASE SUBSCRIBE AND CHECK OUT MORE VIDEOS
http://youtube.com/theannieelainey")
![Can DNA Kits Help Find Your Diagnosis? | VLOGMAS DAY 3 [CC]](https://i.ytimg.com/vi/SwJ-N5GN4JA/hqdefault.jpg "Can DNA Kits Help Find Your Diagnosis? | VLOGMAS DAY 3 [CC]
READ ME Today I wanted to try and see if I could use my 23andMe results #NotSpons to find my EDS chromosome variant. I already know which one it is from formal medical diagnoses but that was an extremely lengthy and expensive process, could these DNA kits provide the same answers in a speedier and more affordable way? Were left with a maybe?
Theres a lot of information provided; although its accuracy is questionable, it did say I have EDS, but the chromosome variant they listed was off by one letter. Confusing.
To repeat what I said in the video, I wouldnt take these results as an official diagnosis of anything, a lot of the information provided is about your genetic likelihood of having certain conditions. I just hope this process can be used as a tool for people needing some back up or direction in their medical spaces. Maybe something comes up youve never heard of before and after investigation, you find that it fits! You can then bring this up to your doctor! Maybe doctors have refused to start a testing process (it happened to me) and these results could persuade them that its a possibility. I really hope this is useful for those still
with chronic illness and undiagnosed!
23andMe Referral link: https://refer.23andme.com/s/annieesegarra
Ancestry
https://www.ancestry.com
GenesforGood
http://genesforgood.sph.umich.edu/
THE SHIRT IM WEARING is by Bree Mae https://www.teepublic.com/t-shirt/1656931-accessibility-matters-rainbow
Also in black and white on Bonfire: https://www.bonfire.com/accessibilitymatters/
SUPPORT THIS CREATOR
If you enjoy my videos, please consider supporting this channel!
Patreon: https://www.patreon.com/annieelainey
PayPal: http://paypal.me/annieelainey
Amazon Wish List: http://a.co/gyCgqsf
CONTRIBUTE CAPTIONS/SUBTITLES FOR THIS VIDEO
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FIND ME ON THE INTERNET
Facebook http://www.facebook.com/ann.e.segarra
Tumblr http://annieelainey.tumblr.com
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Periscope AnnieElainey
IN THIS VIDEO
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My Associate Store: http://astore.amazon.com/annielai-20
CHANNEL DESCRIPTION
Annie Segarra (Annie Elainey) creates mainly first-person videos on introspective topics, social topics, sharing her experiences and thoughts on disability, body image, LGBT topics, gender equality, etc, as well as creative content; a variety of music/artistic media and short films. Annie identifies as a queer disabled (Ehlers-Danlos Syndrome) Latinx woman and uses she and they pronouns.")
![Spoonie Essentials Box Unboxing with Emi // VLOGMAS DAY 1 [CC]](https://i.ytimg.com/vi/T11jUsurxVU/hqdefault.jpg "Spoonie Essentials Box Unboxing with Emi // VLOGMAS DAY 1 [CC]
Sharing gifts with Emi from http://spoonieessentialsbox.com
Were doing Vlogmas! One video every day for 25 days of Christmas! #NotSpons
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If you enjoy my videos, please consider supporting this channel!
Patreon: https://www.patreon.com/annieelainey
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IN THIS VIDEO
Mic used: http://amzn.to/2ahAuT5
Camera used: http://amzn.to/2a5jPCq
My Associate Store: http://astore.amazon.com/annielai-20
CHANNEL DESCRIPTION
Annie Segarra (Annie Elainey) creates mainly first-person videos on introspective topics, social topics, sharing her experiences and thoughts on disability, body image, LGBT topics, gender equality, etc, as well as creative content; a variety of music/artistic media and short films. Annie identifies as a queer disabled (Ehlers-Danlos Syndrome) Latinx woman and uses she and they pronouns.")
