Annie Elainey | Can DNA Kits Help Find Your Diagnosis? | VLOGMAS DAY 3 [CC] @theannieelainey | Uploaded December 2017 | Updated October 2024, 12 hours ago.
READ ME --- Today I wanted to try and see if I could use my 23andMe results #NotSpons to find my EDS chromosome variant. I already know which one it is from formal medical diagnoses but that was an extremely lengthy and expensive process, could these DNA kits provide the same answers in a speedier and more affordable way? We're left with a "maybe"?

There's a lot of information provided; although it's accuracy is questionable, it did say I have EDS, but the chromosome variant they listed was off by one letter. Confusing.

To repeat what I said in the video, I wouldn't take these results as an official diagnosis of anything, a lot of the information provided is about your genetic likelihood of having certain conditions. I just hope this process can be used as a tool for people needing some back up or direction in their medical spaces. Maybe something comes up you've never heard of before and after investigation, you find that it fits! You can then bring this up to your doctor! Maybe doctors have refused to start a testing process (it happened to me) and these results could persuade them that it's a possibility. I really hope this is useful for those still
with chronic illness and undiagnosed!

23andMe Referral link: refer.23andme.com/s/annieesegarra

Ancestry
ancestry.com

GenesforGood
http://genesforgood.sph.umich.edu/

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Annie Segarra (Annie Elainey) creates mainly first-person videos on introspective topics, social topics, sharing her experiences and thoughts on disability, body image, LGBT topics, gender equality, etc, as well as creative content; a variety of music/artistic media and short films. Annie identifies as a queer disabled (Ehlers-Danlos Syndrome) Latinx woman and uses she and they pronouns.