Uploaded July 2026 | Updated September 2026, 1 week ago
After losing her husband to cancer, the last thing Linda expected was her own diagnosis. In this video, she shares what it was like to face MDS (Myelodysplastic Syndromes). MDS expert Dr. Sekeres provides critical context on everything from the SF3B1 mutation to the burden of continuous blood transfusions.
Thank you, Linda M. and Dr. Sekeres, for joining us for this conversation.
Thank you to Geron for its support of our patient story. The Patient Story retains full editorial control over all content.
Thank you to Blood Cancer United for their partnership. They are here for you with information about clinical trials, resources, and dedicated support through their Information Specialists. tinyurl.com/smn9wnmy
#cancerpatient #cancersurvivor #patientstories #thepatientstory #cancertreatment #cancerprevention #cancersymptoms
The Patient Story:
The Patient Story is led by a dedicated team of medical, editorial, and video experts, committed to authentically portraying the cancer patient experience. Sharing your story holds transformative power, culturally and personally. We handle each narrative with utmost care, compassion, and scientific rigor.
Our editorial process adheres to the highest journalistic standards, ensuring medically researched, vetted, and fact-checked content. Backed by experienced medical professionals, we offer insights into the latest medical advancements.
Beyond patient narratives, we provide comprehensive coverage of cancer news and medical resources. From symptoms to clinical trials, insurance, finances, and support groups, we offer guidance in a humanized manner.
Chapters:
00:00 - Receiving an MDS Diagnosis After Losing a Spouse to Cancer
02:37 - Bone Marrow Biopsy and Facing the Diagnosis
03:29 - Understanding Watch and Wait in Lower Risk Myelodysplastic Syndromes (MDS)
05:15 - Living With MDS: Fatigue, Isolation, and the Emotional Weight of Cancer
06:34 - MDS Symptoms, Anemia, and Knowing When to Start Treatment
08:32 - SF3B1 Mutation, Treatment Goals, and Managing Blood Transfusions
Join Our Community:
Sign up for our FREE website: thepatientstory.com
Facebook: facebook.com/thepatientstory
Instagram: instagram.com/thepatientstory
Twitter: twitter.com/Patient_Story
TikTok: tiktok.com/@patientstory
After losing her husband to cancer, the last thing Linda expected was her own diagnosis. In this video, she shares what it was like to face MDS (Myelodysplastic Syndromes). MDS expert Dr. Sekeres provides critical context on everything from the SF3B1 mutation to the burden of continuous blood transfusions.
Thank you, Linda M. and Dr. Sekeres, for joining us for this conversation.
Thank you to Geron for its support of our patient story. The Patient Story retains full editorial control over all content.
Thank you to Blood Cancer United for their partnership. They are here for you with information about clinical trials, resources, and dedicated support through their Information Specialists. tinyurl.com/smn9wnmy
#cancerpatient #cancersurvivor #patientstories #thepatientstory #cancertreatment #cancerprevention #cancersymptoms
The Patient Story:
The Patient Story is led by a dedicated team of medical, editorial, and video experts, committed to authentically portraying the cancer patient experience. Sharing your story holds transformative power, culturally and personally. We handle each narrative with utmost care, compassion, and scientific rigor.
Our editorial process adheres to the highest journalistic standards, ensuring medically researched, vetted, and fact-checked content. Backed by experienced medical professionals, we offer insights into the latest medical advancements.
Beyond patient narratives, we provide comprehensive coverage of cancer news and medical resources. From symptoms to clinical trials, insurance, finances, and support groups, we offer guidance in a humanized manner.
Chapters:
00:00 - Receiving an MDS Diagnosis After Losing a Spouse to Cancer
02:37 - Bone Marrow Biopsy and Facing the Diagnosis
03:29 - Understanding Watch and Wait in Lower Risk Myelodysplastic Syndromes (MDS)
05:15 - Living With MDS: Fatigue, Isolation, and the Emotional Weight of Cancer
06:34 - MDS Symptoms, Anemia, and Knowing When to Start Treatment
08:32 - SF3B1 Mutation, Treatment Goals, and Managing Blood Transfusions
Join Our Community:
Sign up for our FREE website: thepatientstory.com
Facebook: facebook.com/thepatientstory
Instagram: instagram.com/thepatientstory
Twitter: twitter.com/Patient_Story
TikTok: tiktok.com/@patientstory
