Uploaded October 2021 | Updated September 2026, 2 weeks ago
The Power of Us
Meet real people with ALS who have inspired others with their creative endeavors, including ALS activism, writing a memoir, working with drug makers, and joining our EverythingALS team.
Our Presenters:
Amanda and Eric Stevens are the founders of Team Stevens Nation. Eric was diagnosed with ALS in 2019 at the young age of 29. Together they created TeamStevens Nation whose mission is to fight for legislation that would make potential treatments available to patients outside of clinical trials.
Sandy Morris was diagnosed with ALS in 2018. Since her diagnosis, she has dedicated her time to being an advocate on a mission to ensure that protocols & pathways are created for those living with ALS. Sandy runs the Patient Advisory Council at I AM ALS, helped build the ALS Caucus and created the Patient Centric Trial Design.
Austen Eadie-Friedmann is our Patient Advocate and Industry Advisor on the EverythingALS team. He was diagnosed with ALS in 2019. Austen has an extensive background in the pharmaceutical industry in HR so we are thrilled to have Austen as our newest member bringing his expertise to our team and the community!
Dr. Hira Ahluwalia, Hira is our first podcast interviewee that uses eye-gaze technology to communicate, so we thank him so much for the time and effort it took to be on our podcast and to be here tonight to share his story. Hira is the author of the book Keep On Ticking which tells the story of his ALS journey after his diagnosis in 2016. Hira owns his own consulting business and started his own non-profit organization.
The Power of Us
Meet real people with ALS who have inspired others with their creative endeavors, including ALS activism, writing a memoir, working with drug makers, and joining our EverythingALS team.
Our Presenters:
Amanda and Eric Stevens are the founders of Team Stevens Nation. Eric was diagnosed with ALS in 2019 at the young age of 29. Together they created TeamStevens Nation whose mission is to fight for legislation that would make potential treatments available to patients outside of clinical trials.
Sandy Morris was diagnosed with ALS in 2018. Since her diagnosis, she has dedicated her time to being an advocate on a mission to ensure that protocols & pathways are created for those living with ALS. Sandy runs the Patient Advisory Council at I AM ALS, helped build the ALS Caucus and created the Patient Centric Trial Design.
Austen Eadie-Friedmann is our Patient Advocate and Industry Advisor on the EverythingALS team. He was diagnosed with ALS in 2019. Austen has an extensive background in the pharmaceutical industry in HR so we are thrilled to have Austen as our newest member bringing his expertise to our team and the community!
Dr. Hira Ahluwalia, Hira is our first podcast interviewee that uses eye-gaze technology to communicate, so we thank him so much for the time and effort it took to be on our podcast and to be here tonight to share his story. Hira is the author of the book Keep On Ticking which tells the story of his ALS journey after his diagnosis in 2016. Hira owns his own consulting business and started his own non-profit organization.
