Citizen-Led Research & Open Data: Transforming the Future of ALS & Alzheimers. @EverythingALS
Citizen-Led Research & Open Data: Transforming the Future of ALS & Alzheimers.  @EverythingALS
Uploaded April 2026 | Updated September 2026, 2 weeks ago
EverythingALS.org and EverythingAD.org empowers and unites the global community through AI and data-driven insights to tackle ALS challenges. Citizen-Driven Research places those affected at the forefront of advancing understanding and solutions, offering them direct access to their own participation data, so that insights emerge continuously. This transformation of data into actionable results accelerates the development and accessibility of effective diagnostics and treatments, directly addressing the needs of the patient communities.

Our diverse team includes people affected by Neurodegenerative diseases, physicians, scientists, entrepreneurs, AI engineers, software engineers, and students. We are dedicated to providing information to all affected by Neurodegenerative diseases, and those working toward a cure.
Citizen-Led Research & Open Data: Transforming the Future of ALS & Alzheimers.Stories and Innovation in ALS Episode #16:  Keep On Ticking with Maggie and Dr. Hira Ahluwalia.Developing a Robust Diagnostic Test for ALS by Dr. Sandra Banack from Brain Chemistry Labs.EverythingALS Connect for answers, always liveStories and Innovation in ALS Episode #20:  ALS has not Defined Us with Lori and Brian Andre.Radcliff Participant PortalRemote Respiratory Monitoring for PALS: Implementation in ALS Multidisciplinary ClinicBrain Computer Interface (BCI) Trials in ALSDr. Eva Feldman on head trauma, NFL and ALSRepeat Associated Non-AUG (RAN) Proteins as Therapeutic Targets for C9orf72 ALS/FTDThe influence of infection and inflammation in ALSCitizen Research: You Dont Have to Be a Scientist to Think Critically About Research
Everything ALS |

Citizen-Led Research & Open Data: Transforming the Future of ALS & Alzheimer's.

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