Uploaded September 2024 | Updated September 2026, 1 hour ago
In light of the recent changes in treatment options for sickle cell disease, it’s crucial for patients and families to have access to information that will help them make informed decisions about their treatment.
That is why Vence Bonham and his group at NHGRI have put together important and actionable educational materials about gene therapy for patients and families in the sickle cell disease community. These resources have been updated to include the latest gene therapies to treat sickle cell disease.
More than 50 scientists, physicians, patients, and community advocates worked together to develop content for the Democratizing Education for Sickle Cell Disease Gene Therapy Project. You can access these resources at the link in our stories.
About the Project: genome.gov/research-at-nhgri/Projects/Democratizing-Education
In light of the recent changes in treatment options for sickle cell disease, it’s crucial for patients and families to have access to information that will help them make informed decisions about their treatment.
That is why Vence Bonham and his group at NHGRI have put together important and actionable educational materials about gene therapy for patients and families in the sickle cell disease community. These resources have been updated to include the latest gene therapies to treat sickle cell disease.
More than 50 scientists, physicians, patients, and community advocates worked together to develop content for the Democratizing Education for Sickle Cell Disease Gene Therapy Project. You can access these resources at the link in our stories.
About the Project: genome.gov/research-at-nhgri/Projects/Democratizing-Education










