CNA Insider | Life, Unexpected: Supporting Young Palliative Patients And Their Families - Part 3/4 | Full Episode @CNAInsider | Uploaded 1 week ago | Updated 1 minute ago
Kenneth Mah and Patricia Ng founded the Rare Disorders Society Singapore and have evolved it from a small support group of families to the charity organization it is today. They also bring personal experience to their mission as they journey through life with their daughter, Chloe, who has the rare genetic disorder, Pompe Disease. Chloe was diagnosed with the disease at seven months old, and has beaten death several times. Every two weeks, Chloe undergoes Enzyme Replacement Therapy at KKH Women’s and Children’s Hospital. We join Kenneth and Patricia on their emotional journey as they go through the procedure with Chloe, spending three days in the hospital with her.

WATCH MORE Life, Unexpected
Ep 1: youtu.be/BcrPrMAYrEE
Ep 2: youtu.be/aupSGIhOBQw
Ep 4: youtu.be/c9EoZaQ6OWA

0:00 Not the End
4:22 My Love is Not Rare
12:30 As a Dad
16:45 Friendly Competition
19:58 An Oasis
24:06 A Light Above
25:58 An Angel’s Wings
28:19 Chloe’s Procedure
37:50 A Fear of Losing Her
40:16 Overcoming the Odds

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About The Show:
Follow the inspiring stories of four individuals under paediatric palliative care as they and their families navigate the unexpected realities of life and death with courage and love.
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#CNAInsider #LifeUnexpectedCNA #Illness #Caregiver #PalliativeCare


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