Uploaded August 2026 | Updated September 2026, 2 weeks ago

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Friedreich’s Ataxia is a rare, inherited neurological condition that affects coordination, muscle strength and movement. Patients are days away from a crucial HSE decision on whether they will get access to Skyclarys, a drug campaigners say can slow the progression of the condition.

Joining us now are Emily Felix, who is living with Friedreich's Ataxia and Craig Coady, a leading campaigner, who lost his son Rory to the condition and whose son Paudie is currently living with Friedreich's Ataxia.

Broadcast on 20/08/2026

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