@theannieelainey
  @theannieelainey
Annie Elainey | Draw My EDS #ThisIsMyEDS [CC] @theannieelainey | Uploaded May 2017 | Updated October 2024, 4 hours ago.
As part of #ThisIsMyEDS and sharing our diverse experiences with Ehlers-Danlos Syndrome I wanted to try and give you a tour of how it currently affects my body a la "Draw My Life" with "Draw My EDS". There are just a couple more days to get your #EDSAwareness shirt! bonfire.com/ehlers-danlos-zebra-swatch

Correction: I said "heel spurs" when I meant "Piezogenic papules", they are occasional painful bumps that appear on my heels

BTS: Was dealing with a lot of lower back pain at the time of shooting this video, it has me very stiff, making it very difficult for me to move. I wasn't as careful or patient while drawing this because I was rushing to lay back down.

You can find Part 1 of #ThisIsMyEDS here:
youtube.com/watch?v=qMk-JpMauPw

You can find the questions for the tag here:
docs.google.com/document/d/1c_UA0QbuxGZnnC49oL9sOl1QZXLitfVtstyfsha6S38/edit?usp=sharing

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CHANNEL DESCRIPTION
Annie Segarra (Annie Elainey) creates mainly first-person videos on introspective topics, social topics, sharing her experiences and thoughts on disability, body image, LGBT topics, gender equality, etc, as well as creative content; a variety of music/artistic media and short films. Annie identifies as a queer Latinx disabled woman and uses she and they pronouns.
Draw My EDS #ThisIsMyEDS [CC]QUICK AND EASY: MUSHROOM PITA PIZZA [CC]Weakening Incentive to Comply with ADA ♿ [CC] #HR620Describe Yourself: 10 Fictional Characters [CC]Audio Descriptions #AudioDescribeYT [CC]Miami YouTubers [CC]Drag King Make-Over with Andro Gin [CC]Ambulatory Wheelchair Users Exist [CC]Hypermobility and Elasticity | A Very EDS Halloween [CC]Santa Clarita Diet vs. Chronic Illness - Were fine! [CC]My Foldable Power Chair: EZ Lite Cruiser [CC]WALKING away from a disabled parking space?

Draw My EDS #ThisIsMyEDS [CC] @theannieelainey

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