Special Books by Special Kids | A Kid with a Terminal Disease and the Parents Who Will Love Her Forever (Batten Disease) @SpecialBooksbySpecialKids | Uploaded December 2022 | Updated October 2024, 15 hours ago.
Ellery is diagnosed with a progressive and terminal disorder known as Batten disease. This deadly disease takes away a child’s ability to walk, talk, speak, and see. As of now Ellery is still able to say a few words like “Mickey” and “Twinkle” but her parents know this will not last forever. Ellery’s mom wants the world to know that they try to focus on the joy but Batten disease is forever destroying a part of their family.

Help Cure Batten Disease at curebatten.org/donate