Special Books by Special Kids | A Kid with One of the World's Rarest Disorders (1 of 4 Known Cases) @SpecialBooksbySpecialKids | Uploaded June 2023 | Updated October 2024, 17 hours ago.
Kuba has a rare genetic disorder of which there are only 4 known cases in the world. He and his family are learning to live with the uncertainty that comes with such a rare diagnosis. They find comfort in knowing that although Kuba's future is unknown, he will be writing his own story.
patreon.com/SBSK
Kuba has a rare genetic disorder of which there are only 4 known cases in the world. He and his family are learning to live with the uncertainty that comes with such a rare diagnosis. They find comfort in knowing that although Kuba's future is unknown, he will be writing his own story.
patreon.com/SBSK
