7 News Spotlight | World's Rarest Disease: The Human Mannequin | Documentary @7newsSpotlight | Uploaded September 2023 | Updated October 2024, 1 hour ago.
Meet a quite extraordinary little boy, who holds the cure to some of the world’s most common diseases. Zach was born on Australia Day, a beautiful smiling baby. The doctors gave him a clean bill of health, and for 18 months his parents thought everything was normal. But as they would discover, little Zach has perhaps the rarest disease known to man – a genetic condition called Fibrodysplasia Ossificans Progressiva, or FOP. There are less than 800 known sufferers worldwide. As he ages, the soft tissue of Zach’s body slowly morphs into a second skeleton. His muscles are turning to bone. But Zach’s family haven’t given up hope.
This story originally aired on 11th August 2013 on Seven News Australia Sunday Night.
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7NEWS combines the trusted and powerful news brands including Sunrise, The Morning Show, The Latest, and 7NEWS.com.au, delivering unique, engaging and continuous coverage on the issues that matter most to Australians. Watch 7NEWS nightly at 6pm and weekdays at 11:30am and 4pm on Channel 7 and 7plus.
Meet a quite extraordinary little boy, who holds the cure to some of the world’s most common diseases. Zach was born on Australia Day, a beautiful smiling baby. The doctors gave him a clean bill of health, and for 18 months his parents thought everything was normal. But as they would discover, little Zach has perhaps the rarest disease known to man – a genetic condition called Fibrodysplasia Ossificans Progressiva, or FOP. There are less than 800 known sufferers worldwide. As he ages, the soft tissue of Zach’s body slowly morphs into a second skeleton. His muscles are turning to bone. But Zach’s family haven’t given up hope.
This story originally aired on 11th August 2013 on Seven News Australia Sunday Night.
Subscribe to 7NEWS Spotlight for the latest video » 7news.link/SpotlightSubscribe
Connect with 7NEWS Spotlight online
Visit » https://7news.com.au/spotlight
7NEWS Spotlight Podcast » http://smarturl.it/7NewsSpotlight
Facebook » facebook.com/7newsSpotlight
Twitter » twitter.com/7newsSpotlight
Instagram » instagram.com/7newsSpotlight
7NEWS combines the trusted and powerful news brands including Sunrise, The Morning Show, The Latest, and 7NEWS.com.au, delivering unique, engaging and continuous coverage on the issues that matter most to Australians. Watch 7NEWS nightly at 6pm and weekdays at 11:30am and 4pm on Channel 7 and 7plus.
