Ellie Dashwood | Why Getting My Chronic Illnesses Diagnosed Was 100% Drama | Ehlers-Danlos, POTS, Narcolepsy, Celiac @EllieDashwood | Uploaded August 2022 | Updated October 2024, 8 hours ago.
Doctors told me that my chronic illnesses were all in my head for years. And since 40% of women eventually diagnosed with a serious autoimmune illness have the same experience, I know I'm not alone.* In this video, I share the story of fighting to get diagnosed and, along the way, facing misdiagnosis, verbal abuse by mental health professionals, and medical threats (yes, a doctor literally threatened me).
I also share how I eventually got diagnosed with my illnesses and share a bit of info about each, including Narcolepsy, Celiac Disease, Ehlers-Danlos Syndrome (EDS), Postural Orthostatic Tachycardia Syndrome (POTS), and Mast Cell Activation Syndrome (MCAS).
Also, my cat Remus makes an appearance. Which is really the reason people watch my videos anyway.
💕
INSTAGRAM @elliedashie ➝ instagram.com/elliedashie
WEBSITE ➝ elliedashwood.com
❤️
SHOP MY HOME (Decor, Faves) ➝ shopmy.us/elliedashwood/home-decor
SHOP MY VIDEOS ➝ shopmy.us/elliedashwood/shop-posts
MY AMAZON FAVORITES ➝ amzn.to/45WBoOM
💕 EDUCATIONAL RESOURCES 💕
😴 NARCOLEPSY
Stanford Medicine Center for Narcolepsy ➝ https://med.stanford.edu/narcolepsy.html
NIH Narcolepsy Fact Sheet ➝ ninds.nih.gov/narcolepsy-fact-sheet
🌾 CELIAC DISEASE
Celiac Disease Foundation ➝ celiac.org
University of Chicago Medicine Celiac Disease Center ➝ cureceliacdisease.org
🦵EHLERS-DANLOS SYNDROME
The Ehlers-Danlos Society ➝ ehlers-danlos.com
😵💫 POSTURAL ORTHOSTATIC TACHYCARDIA SYNDROME
Dysautonomia Interational ➝ dysautonomiainternational.org/page.php?ID=30
John Hopkins Medicine ➝ hopkinsmedicine.org/health/conditions-and-diseases/postural-orthostatic-tachycardia-syndrome-pots
🤧 MAST CELL ACTIVATION SYNDROME
The Mast Cell Disease Society ➝ tmsforacure.org/overview
* Stat from: Op-Ed: The ‘it’s all in your head’ diagnosis is still a danger to women’s health by Emily Dwass in the LA Times. latimes.com/opinion/op-ed/la-oe-dwass-gender-bias-medicine-20170726-story.html
📽 OTHER VIDEOS TO WATCH
Everything is Changing (Channel Update) ➝ youtu.be/rwjqUIRX9ww
Channel Update ➝ youtu.be/3jugEjzsk0Q
Am I Really Elinor Dashwood ➝ youtu.be/fAomwgl00MA
Answering Your Assumptions About Me ➝ youtu.be/uasghnCcjAI
FTC DISCLAIMER
Links may be affiliate links which means I'll receive a small commission from your purchase at no extra cost to you. Thank you for supporting my channel.
📖 BOOK LOVER LINKS
Try Audible ➝ amzn.to/45Uzoqb
💻 YOUTUBE GEAR & TOOLS I USE
✨ Camera, Audio, Lighting, Tech ➝ https://obsw.it/s/3vyp
Editing Software ➝ https://adobe.prf.hn/click/camref:1100lrdk4
Website Hosting ➝ go.shopmy.us/p-1619829
YouTube SEO Tool (CODE: elliedashwood)➝ tubebuddy.com/pricing?a=elliedashwood
Stock Footage & Images ➝ http://1.envato.market/Ea9D7n
Music ➝ epidemicsound.com/referral/6180u8
🎨 FAVORITE CLASSIC ART SOURCES
Rijks Museum ➝ https://www.rijksmuseum.nl/en
The Metropolitan Museum of Art ➝ metmuseum.org/art/collection
Musee du Paris ➝ https://www.parismuseescollections.paris.fr/en
Yale Center for British Art ➝ https://collections.britishart.yale.edu/
Massachusetts Digital Commonwealth ➝ digitalcommonwealth.org
Other images used:
www.scientificanimations.com, CC BY-SA 4.0 creativecommons.org/licenses/by-sa/4.0, via Wikimedia Commons
Joel Mills, CC BY-SA 3.0 creativecommons.org/licenses/by-sa/3.0/, via Wikimedia Commons
🕰 WATCHING GUIDE
00:00 All The Times Doctors Said My Chronic Illnesses Were All In My Head [Intro]
01:13 Getting Misdiagnosed as a Teen
03:58 Let's Talk About Therapy For A Sec...
06:08 Wrong Treatment Ruining Life
08:05 Seeing a Sleep Specialist
08:52 What is Narcolepsy?
09:51 Thanks Doctor for Listening 💕
10:52 All Food Makes Me Sick...
13:16 Just Anorexic?
14:45 What is Celiac Disease?
16:31 Chronic Pain Saga
19:15 What is Ehlers-Danlos Syndrome?
19:50 What is Postural Orthostatic Tachycardia Syndrome?
20:31 Finding the final piece...
23:00 What is Mast Cell Activation Syndrome?
23:59 Living with MCAS
24:31 Chronically Ill Lessons I've Learned
As an Amazon Associate, I earn from qualifying purchases.
#chronicillness #ehlersdanlos #celiacdisease
Doctors told me that my chronic illnesses were all in my head for years. And since 40% of women eventually diagnosed with a serious autoimmune illness have the same experience, I know I'm not alone.* In this video, I share the story of fighting to get diagnosed and, along the way, facing misdiagnosis, verbal abuse by mental health professionals, and medical threats (yes, a doctor literally threatened me).
I also share how I eventually got diagnosed with my illnesses and share a bit of info about each, including Narcolepsy, Celiac Disease, Ehlers-Danlos Syndrome (EDS), Postural Orthostatic Tachycardia Syndrome (POTS), and Mast Cell Activation Syndrome (MCAS).
Also, my cat Remus makes an appearance. Which is really the reason people watch my videos anyway.
💕
INSTAGRAM @elliedashie ➝ instagram.com/elliedashie
WEBSITE ➝ elliedashwood.com
❤️
SHOP MY HOME (Decor, Faves) ➝ shopmy.us/elliedashwood/home-decor
SHOP MY VIDEOS ➝ shopmy.us/elliedashwood/shop-posts
MY AMAZON FAVORITES ➝ amzn.to/45WBoOM
💕 EDUCATIONAL RESOURCES 💕
😴 NARCOLEPSY
Stanford Medicine Center for Narcolepsy ➝ https://med.stanford.edu/narcolepsy.html
NIH Narcolepsy Fact Sheet ➝ ninds.nih.gov/narcolepsy-fact-sheet
🌾 CELIAC DISEASE
Celiac Disease Foundation ➝ celiac.org
University of Chicago Medicine Celiac Disease Center ➝ cureceliacdisease.org
🦵EHLERS-DANLOS SYNDROME
The Ehlers-Danlos Society ➝ ehlers-danlos.com
😵💫 POSTURAL ORTHOSTATIC TACHYCARDIA SYNDROME
Dysautonomia Interational ➝ dysautonomiainternational.org/page.php?ID=30
John Hopkins Medicine ➝ hopkinsmedicine.org/health/conditions-and-diseases/postural-orthostatic-tachycardia-syndrome-pots
🤧 MAST CELL ACTIVATION SYNDROME
The Mast Cell Disease Society ➝ tmsforacure.org/overview
* Stat from: Op-Ed: The ‘it’s all in your head’ diagnosis is still a danger to women’s health by Emily Dwass in the LA Times. latimes.com/opinion/op-ed/la-oe-dwass-gender-bias-medicine-20170726-story.html
📽 OTHER VIDEOS TO WATCH
Everything is Changing (Channel Update) ➝ youtu.be/rwjqUIRX9ww
Channel Update ➝ youtu.be/3jugEjzsk0Q
Am I Really Elinor Dashwood ➝ youtu.be/fAomwgl00MA
Answering Your Assumptions About Me ➝ youtu.be/uasghnCcjAI
FTC DISCLAIMER
Links may be affiliate links which means I'll receive a small commission from your purchase at no extra cost to you. Thank you for supporting my channel.
📖 BOOK LOVER LINKS
Try Audible ➝ amzn.to/45Uzoqb
💻 YOUTUBE GEAR & TOOLS I USE
✨ Camera, Audio, Lighting, Tech ➝ https://obsw.it/s/3vyp
Editing Software ➝ https://adobe.prf.hn/click/camref:1100lrdk4
Website Hosting ➝ go.shopmy.us/p-1619829
YouTube SEO Tool (CODE: elliedashwood)➝ tubebuddy.com/pricing?a=elliedashwood
Stock Footage & Images ➝ http://1.envato.market/Ea9D7n
Music ➝ epidemicsound.com/referral/6180u8
🎨 FAVORITE CLASSIC ART SOURCES
Rijks Museum ➝ https://www.rijksmuseum.nl/en
The Metropolitan Museum of Art ➝ metmuseum.org/art/collection
Musee du Paris ➝ https://www.parismuseescollections.paris.fr/en
Yale Center for British Art ➝ https://collections.britishart.yale.edu/
Massachusetts Digital Commonwealth ➝ digitalcommonwealth.org
Other images used:
www.scientificanimations.com, CC BY-SA 4.0 creativecommons.org/licenses/by-sa/4.0, via Wikimedia Commons
Joel Mills, CC BY-SA 3.0 creativecommons.org/licenses/by-sa/3.0/, via Wikimedia Commons
🕰 WATCHING GUIDE
00:00 All The Times Doctors Said My Chronic Illnesses Were All In My Head [Intro]
01:13 Getting Misdiagnosed as a Teen
03:58 Let's Talk About Therapy For A Sec...
06:08 Wrong Treatment Ruining Life
08:05 Seeing a Sleep Specialist
08:52 What is Narcolepsy?
09:51 Thanks Doctor for Listening 💕
10:52 All Food Makes Me Sick...
13:16 Just Anorexic?
14:45 What is Celiac Disease?
16:31 Chronic Pain Saga
19:15 What is Ehlers-Danlos Syndrome?
19:50 What is Postural Orthostatic Tachycardia Syndrome?
20:31 Finding the final piece...
23:00 What is Mast Cell Activation Syndrome?
23:59 Living with MCAS
24:31 Chronically Ill Lessons I've Learned
As an Amazon Associate, I earn from qualifying purchases.
#chronicillness #ehlersdanlos #celiacdisease
