Looking Glass Universe | This calculation tells you your chances of being sick @LookingGlassUniverse | Uploaded August 2021 | Updated October 2024, 6 days ago.
If you (or a friend) have endo symptoms:
Here’s my advice as a person who isn’t a doctor or an expert but has had some bad experiences with this condition.
1. It can be difficult to diagnose this condition partly because the symptoms are so different for everyone and partly because it’s hard to know what counts as “severe” pain. I thought the amount of pain I was having was normal for many years. If you have periods that are painful enough to be bothering you then it’s worth talking to a doctor.
2. GO TO A DOCTOR WHO SPECIALISES IN ENDO (once you’ve been diagnosed). Please please please don’t just go to a normal gynecologist. I did that and it was a huge mistake that cost thousands of dollars and caused damage that couldn’t even be fixed in my second operation. The surgery for endo is quite complicated and requires dedicated training to master, and yet the majority of doctors offering it haven’t done that training. For more details on how to find someone good I recommend that you:
4. Read some books about endo. In particular, I liked How to Endo by Bridget Hustwaite. It was approachable and full of useful advice. When I first got diagnosed I looked up endo online but that was pretty useless. It was only after reading this book that I got some idea of what was going on. That said, this condition is not well understood yet and everyone has their own methods of treating it that might not work for you, so don’t trust everything you read everywhere.
Here’s the diagnosis app I used (this isn’t an endorsement): ada.com
If you want to learn about causal Bayesian Networks, The Book of Why by Mackenzie and Pearl is excellent.
Timestamps:
00:00 My medical story
02:48 Using Bayes' Rule for diagnosis
06:17 Causal Bayesian networks
12:34 Homework
If you (or a friend) have endo symptoms:
Here’s my advice as a person who isn’t a doctor or an expert but has had some bad experiences with this condition.
1. It can be difficult to diagnose this condition partly because the symptoms are so different for everyone and partly because it’s hard to know what counts as “severe” pain. I thought the amount of pain I was having was normal for many years. If you have periods that are painful enough to be bothering you then it’s worth talking to a doctor.
2. GO TO A DOCTOR WHO SPECIALISES IN ENDO (once you’ve been diagnosed). Please please please don’t just go to a normal gynecologist. I did that and it was a huge mistake that cost thousands of dollars and caused damage that couldn’t even be fixed in my second operation. The surgery for endo is quite complicated and requires dedicated training to master, and yet the majority of doctors offering it haven’t done that training. For more details on how to find someone good I recommend that you:
4. Read some books about endo. In particular, I liked How to Endo by Bridget Hustwaite. It was approachable and full of useful advice. When I first got diagnosed I looked up endo online but that was pretty useless. It was only after reading this book that I got some idea of what was going on. That said, this condition is not well understood yet and everyone has their own methods of treating it that might not work for you, so don’t trust everything you read everywhere.
Here’s the diagnosis app I used (this isn’t an endorsement): ada.com
If you want to learn about causal Bayesian Networks, The Book of Why by Mackenzie and Pearl is excellent.
Timestamps:
00:00 My medical story
02:48 Using Bayes' Rule for diagnosis
06:17 Causal Bayesian networks
12:34 Homework
