Uploaded July 2025 | Updated September 2026, 2 weeks ago
Florida is poised to become a national beacon for pediatric rare disease research as Gov. Ron DeSantis signs HB 907, the Sunshine Genetics Act. The act jumpstarts the Sunshine Genetics Pilot Program with $3 million, establishes the Florida Institute for Pediatric Rare Diseases within the Florida State University College of Medicine and lays the foundation for a new $100 billion genomic medicine industry in Florida.
In addition to the pilot program funding, the Florida Institute for Pediatric Rare Diseases at Florida State University will also receive an additional $4.5 million to boost research. The funding will empower the institute to pioneer groundbreaking treatments and end the previously lengthy search for a diagnosis by families battling the more than 7,000 rare diseases affecting 30 million Americans. Learn more on news.fsu.edu
Florida is poised to become a national beacon for pediatric rare disease research as Gov. Ron DeSantis signs HB 907, the Sunshine Genetics Act. The act jumpstarts the Sunshine Genetics Pilot Program with $3 million, establishes the Florida Institute for Pediatric Rare Diseases within the Florida State University College of Medicine and lays the foundation for a new $100 billion genomic medicine industry in Florida.
In addition to the pilot program funding, the Florida Institute for Pediatric Rare Diseases at Florida State University will also receive an additional $4.5 million to boost research. The funding will empower the institute to pioneer groundbreaking treatments and end the previously lengthy search for a diagnosis by families battling the more than 7,000 rare diseases affecting 30 million Americans. Learn more on news.fsu.edu
