Stephanie Bethany
In Defense of Autism Moms
updated
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This video is part of a mini-series. You can view the full playlist here: youtube.com/playlist?list=PLlODcc7GGsYTD7Nzg4F-pAuYe1fpZQ9hB
Jennifer Msumba's book, Shouting at Leaves:
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*Some links in this description box are affiliate links, which will give me a small commission should you purchase something through them at no extra cost to you. Thank you for supporting the channel!
This video does contain spoilers, so if you want my spoiler-free impression as an autistic person, check out this video: youtube.com/watch?v=sBuRUbYUuds
What do you think about there being a season 2 of Extraordinary Attorney Woo?
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References:
Oredipe, T., Kofner, B., Riccio, A., Cage, E., Vincent, J., Kapp, S. K., Dwyer, P., & Gillespie-Lynch, K. (2022). Does learning you are autistic at a younger age lead to better adult outcomes? A participatory exploration of the perspectives of autistic university students. Autism, 13623613221086700. doi.org/10.1177/13623613221086700
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References: pastebin.com/DHwhyxv1
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I share my reasoning with you through this process to help you see why I categorized things a certain way because many could very well fall into or outside the categorization of criteria depending on how you take it. You might have a different view or reasoning on it, and I'd love to hear how you see it!
References:
American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). doi.org/10.1176/appi.books.9780890425596
Carpenter, L. (2013). DSM-5 Autism Spectrum Disorder Guidelines & Criteria Exemplars. https://depts.washington.edu/dbpeds/Screening%20Tools/DSM-5%28ASD.Guidelines%29Feb2013.pdf
Craft, S. (2019, June 10). Females and Autism / Aspergers: A checklist. The Art of Autism. the-art-of-autism.com/females-and-aspergers-a-checklist
Teledevara, S., Rajeswari, M., Kumar, R. S., & Udayakumar, N. (2019). Factors Associated with
Low Muscle Tone and Impact of Common Musculoskeletal Problems on Motor Development in Preterm Infants at One Year of Corrected Age. JOURNAL OF CLINICAL AND DIAGNOSTIC RESEARCH. doi.org/10.7860/JCDR/2019/39551.12675
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This interview was conducted as part of a video project on the conversation around who is "allowed" to "speak for" non-speaking autistic people. You can find the overall video here: youtu.be/Gep2opzHyG8
00:00 - Can you tell me a bit about you and your family?
03:29 - How well do you feel you understand your non-speaking child and is that influenced by you being autistic?
08:19 - How would you describe your "place" in the autism community, given that you are both a parent of an autistic child and an autistic adult?
09:46 - Do you feel as though you are your child's voice? Why/why not?
15:41 - Does your child use any alternative forms of communication?
18:38 - Do you experience people telling you they know more about what your child needs than you do?
28:02 - What do you think about the conversation around who gets to speak or advocate for non-speaking autistic people?
32:15 - Do you have any other thoughts you'd like to share?
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Find Eileen Online:
theautismcafe.com
instagram.com/theautismcafe
facebook.com/theautismcafe
twitter.com/theautismcafe
youtube.com/theautismcafe
pinterest.com/theautismcafe
linkedin.com/in/eileen-lamb3
Eileen's Books:
All Across the Spectrum: amzn.to/3SiAJk5
Be The One: amzn.to/3QdYV5P
This interview was conducted as part of a video project on the conversation around who is "allowed" to "speak for" non-speaking autistic people. You can find the overall video here: youtu.be/Gep2opzHyG8
00:00 - Can you tell me a bit about you and your family?
00:30 - How well do you feel you understand your non-speaking child, and do you feel that is influenced by you also being autistic?
02:02 - How would you describe your "place" in the autism community, given that you are both a parent of an autistic child and an autistic adult?
04:02 - Do you feel as though you are your child's voice? Why/why not?
04:49 - Do you experience people telling you they know more about what your child needs than you do?
07:05 - What do you think about the conversation around who gets to speak or advocate for non-speaking autistic people?
09:04 - Do you have any other thoughts you'd like to share?
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*Some links in this description box are affiliate links, which will give me a small commission should you purchase something through them at no extra cost to you. Thank you for supporting the channel!
This interview was conducted as part of a video project on the conversation around who is "allowed" to "speak for" non-speaking autistic people. You can find the overall video here: youtu.be/Gep2opzHyG8
00:00 - Can you tell me a bit about you and your family?
00:15 - How well do you feel like you understand your child?
00:50 - How do you communicate with each other?
01:45 - Do you experience people telling you that they know more about what your child needs than you do?
11:51 - What resources have you found the most useful over time in learning about autism and your child?
19:41 - Do you feel as though you are your child's voice and why or why not?
24:06 - How do you feel regarding the role of autistic advocates in the world of autism?
38:16 - What do you think about the conversation around who gets to speak or advocate for non-speaking autistic people?
47:35 - Did you have any other thoughts or anything that you'd like to share?
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Support Ido & Learn More!:
Ido's Memoir, Ido in Autismland:
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On Smashwords - smashwords.com/books/view/629890
Ido's Fiction Book, In Two Worlds:
On Amazon - amzn.to/3JuNvI5
On Kindle - amzn.to/3SsMCUK
On Smashwords - smashwords.com/books/view/885466
Ido's website: http://idoinautismland.com
This interview was conducted as part of a video project on the conversation around who is "allowed" to "speak for" non-speaking autistic people. You can find the overall video here: youtu.be/Gep2opzHyG8
00:00 - Explanation
01:24 - What was your life like before communication was unlocked for you?
02:46 - When you were small, did you ever think you would be able to express yourself as you do now?
03:30 - Do you feel understood and represented by speaking, lower supports-needs autism advocates who tend to dominate autism spaces?
09:18 - What are your three most important tips for young people with autism today?
10:53 - Why did you decide to write your novel, "In Two Worlds," and how did you come up with the idea for your character, Anthony?
13:43 - How was the book's title chosen and what does it signify for you?
14:37 - How does the experience of writing fiction and non-fiction compare for you?
16:00 - What do you hope readers take away from "In Two Worlds?"
17:18 - How would you describe non-speaking autism to others?
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Ben is an amazing person and advocate and you can follow him and what he does online:
facebook.com/benbreauxautisticspeakshismind
instagram.com/benb.wordsofthenonspeaking
https://anchor.fm/autism-personal-coach/episodes/Autism-Stories-Ben-Breaux-e1bs8rv
tiktok.com/@benbnonspeakingautistic
This interview was conducted as part of a video project on the conversation around who is "allowed" to "speak for" non-speaking autistic people. You can find the overall video here: youtu.be/Gep2opzHyG8
00:20 - Do you feel understood and represented by speaking or lower support needs autistic advocates who tend to dominate autistic spaces?
01:52 - At any point in life, have you felt it was accurate to say that a parent, family member, or autistic advocate was your voice?
02:43 - What are your thoughts and feelings regarding autism parents and autistic advocates?
04:04 - What do you think about the conversation around who gets to speak or advocate for non-speaking autistic people?
04:33 - Do you have any other thoughts that you'd like to share?
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@JenniferMsumba
Find Jen Online:
jennifermsumba.com
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Shouting At Leaves: amzn.to/3ztbYsU
This interview was conducted as part of a video project on the conversation around who is "allowed" to "speak for" non-speaking autistic people. You can find the overall video here: youtu.be/Gep2opzHyG8
Timestamps:
00:00 Can you tell me a bit about yourself and your upbringing?
01:19 How well do you feel your family/parents understand you (and you them)?
02:52 What kind of role has your parents/family played in your life/upbringing especially in regard to autism?
05:15 Do you typically feel a strong understanding for other autistic people who are non-speaking or may have higher support needs than you? Why/why not?
07:10 How do you feel about, in general, parents/family of autistic children in the world of autism?
11:10 Do you think that parents/family tend to be accurate in the idea that they are their child's voice?
14:23 What do you think about the conversation around who gets to speak or advocate for nonspeaking autistic people?
18:19 Do you have any other thoughts you'd like to share?
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*Some links in this description box are affiliate links, which will give me a small commission should you purchase something through them at no extra cost to you. Thank you for supporting the channel!
References:
Apraxia a Common Occurrence in Autism, Study Finds (world). (2018, 42-12 03:42:51). [Research-article]. The ASHA Leader; American Speech-Language-Hearing Association. doi.org/10.1044/leader.RIB1.20092015.18
Cubo, E., & Goetz, C. G. (2014). Apraxia. In Encyclopedia of the Neurological Sciences (pp. 248–249). Elsevier. doi.org/10.1016/B978-0-12-385157-4.00004-X
Jo, S., Oh, J. S., Cheong, E.-N., Kim, H. J., Lee, S., Oh, M., Kim, J. S., Chung, S. J., Lee, C. S., Kwon, M., Kang, D., & Lee, J.-H. (2021). FDG-PET patterns associated with ideomotor apraxia and imitation apraxia in patients with corticobasal syndrome. Parkinsonism & Related Disorders, 88, 96–101. doi.org/10.1016/j.parkreldis.2021.06.006
Joswig, H., Surbeck, W., Scholtes, F., Bratelj, D., & Hildebrandt, G. (2021). The debate on apraxia and the supplementary motor area in the twentieth century. Acta Neurochirurgica, 163(5), 1247–1255. doi.org/10.1007/s00701-020-04509-0
MacDonald, M., Ross, S., McIntyre, L. L., & Tepfer, A. (2017). Relations of Early Motor Skills on Age and Socialization, Communication, and Daily Living in Young Children With Developmental Disabilities. Adapted Physical Activity Quarterly, 34(2), 179–194. doi.org/10.1123/apaq.2015-0091
Parakh, R., Roy, E., Koo, E., & Black, S. (2004). Pantomime and imitation of limb gestures in relation to the severity of Alzheimer’s disease. Brain and Cognition, 55(2), 272–274. doi.org/10.1016/j.bandc.2004.02.049
Parker, H. (2021, June 7). Apraxia: Symptoms, Causes, Tests, Treatments. WebMD. webmd.com/brain/apraxia-symptoms-causes-tests-treatments
Philadelphia, T. C. H. of. (2014, April 8). Childhood Apraxia of Speech Causes, Symptoms and Treatment [Text]. The Children’s Hospital of Philadelphia. https://www.chop.edu/conditions-diseases/childhood-apraxia-speech
Poole, J. L., Gallagher, J., & Qualls, C. (1997). The Mechanisms for Adult-Onset Apraxia and Developmental Dyspraxia: An. 51(5), 8.
Stoll, H., de Wit, M. M., Middleton, E. L., & Buxbaum, L. J. (2021). Treating limb apraxia via action semantics: A preliminary study. Neuropsychological Rehabilitation, 31(7), 1145–1162. doi.org/10.1080/09602011.2020.1762672
Wu, A. J., Radel, J., & Hanna-Pladdy, B. (2011). Improved Function After Combined Physical and Mental Practice After Stroke: A Case of Hemiparesis and Apraxia. The American Journal of Occupational Therapy, 65(2), 161–168. doi.org/10.5014/ajot.2011.000786
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This interview was conducted as part of a video project on the conversation around who is "allowed" to "speak for" non-speaking autistic people. You can find the overall video here: youtube.com/watch?v=Gep2opzHyG8
Find Francesca Online:
youtube.com/channel/UC1Bj6fQNKPAR-EB0RpwEaQw
instagram.com/planet_franchfries
Spanish Channel: youtube.com/channel/UCS_liB_5WDl14kVKq7EOESg
https://linktr.ee/Planetfranchfries
Timestamps:
00:00 Can you tell me a bit about yourself and your upbringing?
19:42 How well do you feel your family/parents understand you (and you them) & What role have they played in your life regarding autism?
34:46 Do you typically feel a strong understanding for other autistic people who are non-speaking or may have higher support needs than you? Why/why not?
51:53 Feelings About Parents in Autism World & Do you think that parents/family are their child's voice?
59:24 What do you think about the conversation around who gets to speak or advocate for nonspeaking autistic people?
01:06:18 Do you have any other thoughts you'd like to share?
MERCH: teespring.com/stores/stephanie-bethany
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References:
Brunier, A. (2022, February 11). ICD-11 2022 release. World Health Organization. https://www.who.int/news/item/11-02-2022-icd-11-2022-release
Global Claims Views: Australia - DSM5. (2013, November 1). rgare.com/knowledge-center/media/articles/global-claims-views-australia---dsm5
ICD vs. DSM. (2009, October). American Psychological Association. apa.org/monitor/2009/10/icd-dsm
Lindmeier, C. (2018, June 18). WHO releases new International Classification of Diseases (ICD 11). Word Health Organization. https://www.who.int/news/item/18-06-2018-who-releases-new-international-classification-of-diseases-(icd-11)
Nair, S. (2020, October 10). Which countries follow ICD coding? LinkedIn. linkedin.com/pulse/what-icd-10-which-countries-follow-coding-who-sridha-nair-cpc-crc-ccs
Royal Australian and New Zealand College of Psychiatrists. (2021, December). Diagnostic Manuals | Position Statement 77. ranzcp.org/news-policy/policy-and-advocacy/position-statements/diagnostic-manuals
Staff, A.-T. M. (2022, April 27). It’s official, ICD-11 is here and Asperger’s removal has begun. AU-TI. au-ti.com/2022/04/27/its-official-icd-11-is-here-and-aspergers-removal-has-begun
Stein, D. J., & Reed, G. M. (2019). Global mental health and psychiatric nosology: DSM-5, ICD-11, and RDoC. Revista Brasileira de Psiquiatria, 41(1), 3–4. doi.org/10.1590/1516-4446-2018-4101
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Find Stephanie Online:
youtube.com/c/AutismMomPlans
instagram.com/autismmomplans
This interview was conducted as part of a video project on the conversation around who is "allowed" to "speak for" non-speaking autistic people. You can find the overall video here: youtu.be/Gep2opzHyG8
Timestamps:
00:00 Can you tell me a bit about you and your family?
01:29 How well do you feel like you understand your child(ren)?
03:20 How do you communicate?
04:31 Do you experience people telling you they know more about what your child needs than you do?
07:31 How does that make you feel/what is your response to [previous question]?
09:34 What resources have you found most useful over time in learning about autism and your child?
12:19 Do you feel as though you are your child's voice? Why/why not?
14:01 How do you feel regarding the role of autistic advocates in the world of autism?
16:41 What do you think about the conversation around who gets to speak or advocate for nonspeaking autistic people?
20:24 Do you have any other thoughts you'd like to share?
MERCH: teespring.com/stores/stephanie-bethany
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Karla Pretorius has over 15 years of experience in working with neurodivergent individuals and their families. She is Co-Founder of AIMS Global, has a MA Psychology, and is a Registered Counselor for Plumm Health, Contributor for Autism Parenting Magazine and Moshi.
AIMS Global Channel: youtube.com/c/AIMSGlobal
[This video is NOT sponsored.]
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Non-speaking autistic people often get left out of the conversation when it comes to autism advocacy online. Parents often claim to be their non-speaking child's voice. Autistic advocates often claim to know more about autistic non-speakers due to shared neurotype. There's a divide between parents/family of autistic non-speakers and speaking autistic advocates online. Rarely does anyone consult autistic non-speakers due to so few having gained access to communication and gained visibility online. In this video, we seek to begin to bridge the gap and listen to different points of view, with the hope of building bridges and starting conversations to best help autistic non-speakers and those who love and care about them.
Many thanks and much respect to those who agreed to interview for this project!
Stephanie - youtube.com/c/AutismMomPlans
Francesca - youtube.com/channel/UC1Bj6fQNKPAR-EB0RpwEaQw
Jennifer - youtube.com/c/JenniferMsumba
Ben - instagram.com/benb.wordsofthenonspeaking
Ido - http://idoinautismland.com
Nikki
Eileen - theautismcafe.com
Iouri
References: pastebin.com/9k6whPYQ
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Thank you to Stephanie, Jennifer, Eileen, Iouri, Ido, Nikki, Ben, and Francesca!
See the video project: youtu.be/Gep2opzHyG8
References: pastebin.com/kRgzi1xj
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Thoughts on specific scenes (contains spoilers): youtu.be/NFzympQcPz0
References:
minnyoo. (2022, July 6). "Even when reading backwards, it’s Woo Young-woo, like tomato, Swiss,... Yeoksam Station?” A pain in the neck for translator on Netflix. KBIZoom. kbizoom.com/extraordinary-attorney-woo-a-pain-in-the-neck-for-translator-on-netflix
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References:
Aron, E., Allen-Williams, B., & Strickland, J. (n.d.). FAQ: Is Sensory Processing (or Integration) Disorder (SPD) the same as Sensory Processing Sensitivity (SPS)? Retrieved January 12, 2022, from hsperson.com/faq/spd-vs-sps
FAQ: How does sensitivity differ from Autistic spectrum disorders (Asperger’s Syndrome, etc.)? – The Highly Sensitive Person. (n.d.). Retrieved January 12, 2022, from hsperson.com/faq/hs-or-asd
joshua3620. (2020, June 30). What Is the Difference Between Personality and Temperament? Http://Alvigor.Com. alvigor.com/post/what-is-the-difference-between-personality-and-temperament
Karaca Dinç, P., Oktay, S., & Durak Batıgün, A. (2021). Mediation role of alexithymia, sensory processing sensitivity and emotional-mental processes between childhood trauma and adult psychopathology: A self-report study. BMC Psychiatry, 21(1), 1–10. doi.org/10.1186/s12888-021-03532-4
Liss, M., Mailloux, J., & Erchull, M. J. (2008). The relationships between sensory processing sensitivity, alexithymia, autism, depression, and anxiety. Personality and Individual Differences, 45(3), 255–259. doi.org/10.1016/j.paid.2008.04.009
Rinn, A. N., Mullet, D. R., Jett, N., & Nyikos, T. (2018). Sensory Processing Sensitivity Among High-Ability Individuals: A Psychometric Evaluation of the Highly Sensitive Person Scale. Roeper Review, 40(3), 166–175. doi.org/10.1080/02783193.2018.1466840
Scott, E. (2020, September 18). Highly Sensitive Person Traits That Create More Stress. Verywell Mind. verywellmind.com/highly-sensitive-persons-traits-that-create-more-stress-4126393
Smith, H. L., Sriken, J., & Erford, B. T. (2019). Clinical and Research Utility of the Highly Sensitive Person Scale. Journal of Mental Health Counseling, 41(3), 221–241. doi.org/10.17744/mehc.41.3.03
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References:
[trigger warning for r-word] Dr Dacious. (2020, October 21). TikToker FAKES Having Autism For Clout And Money🤢| (MilezJJ EXPOSED!). youtube.com/watch?v=WlQJeAmvOwQ
King, R. B. (2020). Mindsets are contagious: The social contagion of implicit theories of intelligence among classmates. British Journal of Educational Psychology, 90(2), 349–363. doi.org/10.1111/bjep.12285
Müller-Vahl, K. R., Pisarenko, A., Jakubovski, E., & Fremer, C. (2022). Stop that! It’s not Tourette’s but a new type of mass sociogenic illness. Brain, 145(2), 476–480. doi.org/10.1093/brain/awab316
Olvera, C., Stebbins, G. T., Goetz, C. G., & Kompoliti, K. (2021). Tics: A Pandemic Within a Pandemic. Movement Disorders Clinical Practice, 8(8), 1200–1205. doi.org/10.1002/mdc3.13316
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#stoptheshock
This is episode one of the miniseries "JRC, ABAI, and a Reckoning."
References for this video: pastebin.com/J4er865P
Read the article version with in-text citations: stephaniebethany.com/blog/judge-rotenberg-center-tries-to-silence-autistic-organization
How to find your Senators: congress.gov/members/find-your-member
H.R. 7667 - Food and Drug Amendments of 2022: congress.gov/bill/117th-congress/house-bill/7667
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#WAAW22 #WorldAutismAcceptanceDay #WorldAutismAwarenessDay
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#WAAW22 #WAAW2022
Timestamps:
00:00 - Intro
00:06 - What IS autism?
00:41 - How does someone get autism? / What causes autism?
01:18 - Are there different types of autism?
02:23 - What does "autism is a spectrum" mean?
03:18 - Are there treatments or a cure for autism?
03:55 - How do people cope with having autism?
04:56 - Are there supports out there for autistic people and their families?
05:54 - How should I act around an autistic person?
References:
Autism Spectrum Disorder Fact Sheet. (2022, January 29). National Institute of Neurological Disorders and Stroke. ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Autism-Spectrum-Disorder-Fact-Sheet
Bai, D., Yip, B. H. K., Windham, G. C., Sourander, A., Francis, R., Yoffe, R., Glasson, E., Mahjani, B., Suominen, A., Leonard, H., Gissler, M., Buxbaum, J. D., Wong, K., Schendel, D., Kodesh, A., Breshnahan, M., Levine, S. Z., Parner, E. T., Hansen, S. N., … Sandin, S. (2019). Association of Genetic and Environmental Factors With Autism in a 5-Country Cohort. JAMA Psychiatry, 76(10), 1035–1043. doi.org/10.1001/jamapsychiatry.2019.1411
Boggs. (2015, January 26). “Autisms” a More Appropriate Term than “Autism,” Geneticists Say. Scientific American. scientificamerican.com/article/autisms-a-more-appropriate-term-than-autism-geneticists-say
Tick, B., Bolton, P., Happé, F., Rutter, M., & Rijsdijk, F. (2016). Heritability of autism spectrum disorders: A meta-analysis of twin studies. Journal of Child Psychology and Psychiatry, 57(5), 585–595. doi.org/10.1111/jcpp.12499
Zeliadt, N. (2021, May 28). Autism genetics, explained. Spectrum | Autism Research News. spectrumnews.org/news/autism-genetics-explained
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#WAAW22 #WAAW2022
References:
Brignell, A., Chenausky, K. V., Song, H., Zhu, J., Suo, C., & Morgan, A. T. (2018). Communication interventions for autism spectrum disorder in minimally verbal children. Cochrane Database of Systematic Reviews, 11. doi.org/10.1002/14651858.CD012324.pub2
Holland, K. (2021, November 1). What You Need to Know About Nonspeaking Autism. Healthline. healthline.com/health/autism/nonverbal-autism
Mission. (n.d.). CommunicationFIRST. Retrieved March 25, 2022, from communicationfirst.org/mission
Rudy, L. J. (2022, January 20). Why Doesn’t My Autistic Child Use Words to Communicate? Verywell Health. verywellhealth.com/what-is-nonverbal-autism-260032
Links:
CommunicationFIRST: communicationfirst.org
I-ASC: i-asc.org
NAA's Give a Voice Program:
nationalautismassociation.org/family-support/programs/naas-give-a-voice-program
Ben B. "My Own Words: Reflections of a Non-Speaking Autistic": facebook.com/benbreauxautisticspeakshismind
Ido Kedar: http://idoinautismland.com
Jordyn Zimmerman: jordynzimmerman.com
Gregory Tino: youtube.com/channel/UCtb4PV6YCEtrrSyeZ2ZeTMA
More Non-Speakers: i-asc.org/nonspeakers/nonspeaker-blogs
Jordyn's Rocky Journey: jordynsrockyjourney.wordpress.com
How Do Non-Speaking Autistic People Communicate?: youtube.com/watch?v=kEPJTD3PvsU
Autism, Dyspraxia, or Both?: youtube.com/watch?v=gJFl1kqbX3w
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It's World Autism Awareness/Acceptance Week! I thought I would share a trait list based off of the DSM-5 criteria for people who find it harder to follow the criteria language. This CANNOT diagnose you and is not exhaustive.
This heavily referenced The Expanded Examples for the DSM-5 Criteria by Dr. Laura Carpenter, PhD, found here: https://depts.washington.edu/dbpeds/Screening%20Tools/DSM-5%28ASD.Guidelines%29Feb2013.pdf
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References:
CDC. (2020, June 29). Diagnostic Criteria | Autism Spectrum Disorder (ASD) | NCBDDD | CDC. Centers for Disease Control and Prevention. cdc.gov/ncbddd/autism/hcp-dsm.html
DSM-5-TR Fact Sheets. (n.d.). Retrieved March 18, 2022, from psychiatry.org/psychiatrists/practice/dsm/educational-resources/dsm-5-fact-sheets
Hess, P. (2022, March 17). DSM-5 revision tweaks autism entry for clarity. Spectrum | Autism Research News. spectrumnews.org/news/dsm-5-revision-tweaks-autism-entry-for-clarity
Online Assessment Measures. (n.d.). Retrieved March 18, 2022, from psychiatry.org/psychiatrists/practice/dsm/educational-resources/assessment-measures
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References/Further Reading: pastebin.com/vGFNK1Gb
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References/Further Reading:
Bennie, M. (2018, March 19). Executive function: What is it, and how do we support it in those with autism? Part I. Autism Awareness. autismawarenesscentre.com/executive-function-what-is-it-and-how-do-we-support-it-in-those-with-autism-part-i
Carriedo, N., Corral, A., Montoro, P. R., Herrero, L., Ballestrino, P., & Sebastián, I. (2016). The Development of Metaphor Comprehension and Its Relationship with Relational Verbal Reasoning and Executive Function. PLoS ONE, 11(3), 1–20. doi.org/10.1371/journal.pone.0150289
Cognitive Functioning & Psychological Processing. (2020). Idaho State Department of Education - Special Education, 57.
Marcotte, K., McSween, M.-P., Pouliot, M., Martineau, S., Pauzé, A.-M., Wiseman-Hakes, C., & MacDonald, S. (2017). Normative Study of the Functional Assessment of Verbal Reasoning and Executive Strategies (FAVRES) Test in the French-Canadian Population. Journal of Speech, Language & Hearing Research, 60(8), 2217–2227. doi.org/10.1044/2017_JSLHR-L-17-0012
Takesaki, N., Kikuchi, M., Yoshimura, Y., Hiraishi, H., Hasegawa, C., Kaneda, R., Nakatani, H., Takahashi, T., Mottron, L., & Minabe, Y. (2016). The Contribution of Increased Gamma Band Connectivity to Visual Non-Verbal Reasoning in Autistic Children: A MEG Study. PLoS ONE, 11(9), 1–17. doi.org/10.1371/journal.pone.0163133
MERCH: stephanie-bethany.creator-spring.com
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References/Further Reading:
Diagnostic criteria. (n.d.). Retrieved November 20, 2021, from dyspraxiauk.com/diagnosticcriteria.php
Hannant, P., Cassidy, S., Van de Weyer, R., & Mooncey, S. (2018). Sensory and motor differences in Autism Spectrum Conditions and developmental coordination disorder in children: A cross-syndrome study. Human Movement Science, 58, 108–118. doi.org/10.1016/j.humov.2018.01.010
Kilroy, E., Cermak, S. A., & Aziz-Zadeh, L. (2019). A Review of Functional and Structural Neurobiology of the Action Observation Network in Autism Spectrum Disorder and Developmental Coordination Disorder. Brain Sciences, 9(4), 75. doi.org/10.3390/brainsci9040075
Kilroy, E., Harrison, L., Butera, C., Jayashankar, A., Cermak, S., Kaplan, J., Williams, M., Haranin, E., Bookheimer, S., Dapretto, M., & Aziz-Zadeh, L. (2021). Unique deficit in embodied simulation in autism: An fMRI study comparing autism and developmental coordination disorder. Human Brain Mapping, 42(5), 1532–1546. doi.org/10.1002/hbm.25312
Miller, H. L., Caçola, P. M., Sherrod, G. M., Patterson, R. M., & Bugnariu, N. L. (2019). Children with Autism Spectrum Disorder, Developmental Coordination Disorder, and typical development differ in characteristics of dynamic postural control: A preliminary study. Gait & Posture, 67, 9–11. doi.org/10.1016/j.gaitpost.2018.08.038
Miller, H. L., Sherrod, G. M., Mauk, J. E., Fears, N. E., Hynan, L. S., & Tamplain, P. M. (2021). Shared Features or Co-occurrence? Evaluating Symptoms of Developmental Coordination Disorder in Children and Adolescents with Autism Spectrum Disorder. Journal of Autism & Developmental Disorders, 51(10), 3443–3455. doi.org/10.1007/s10803-020-04766-z
Paquet, A., Olliac, B., Golse, B., & Vaivre-Douret, L. (2019). Nature of motor impairments in autism spectrum disorder: A comparison with developmental coordination disorder. Journal of Clinical & Experimental Neuropsychology, 41(1), 1–14. doi.org/10.1080/13803395.2018.1483486
MERCH: stephanie-bethany.creator-spring.com
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References/Further Reading:
Beck, C. (2018, April 10). How to Create a Sensory Diet. The OT Toolbox. theottoolbox.com/how-to-create-sensory-diet
Fenech, A., & Baker, M. (2008). Casual leisure and the sensory diet: A concept for improving quality of life in neuropalliative conditions. NeuroRehabilitation, 23(4), 369–376. doi.org/10.3233/nre-2008-23411
Gawlas, C., & Blaskowitz, M. (2020). The Impact of Sensory Diets on Adults With Intellectual and Developmental Disabilities (IDD). The American Journal of Occupational Therapy, 74(4_Supplement_1), 7411515429p1. doi.org/10.5014/ajot.2020.74S1-PO6801
Pingale, V., Fletcher, T., & Candler, C. (2021). Effect of Sensory Diets on Children’s Classroom Behaviors. The American Journal of Occupational Therapy, 75(Supplement_2), 7512520398p1. doi.org/10.5014/ajot.2021.75S2-RP398
Pingale, V., Fletcher, T., Candler, C., & Dunlap, K. (2021). Sensory Diets: Do They Work? The American Journal of Occupational Therapy, 75(Supplement_2), 7512520373p1. doi.org/10.5014/ajot.2021.75S2-RP373
Shoener, R. F., Kinnealey, M., & Koenig, K. P. (2008). You Can Know Me Now If You Listen: Sensory, Motor, and Communication Issues in a Nonverbal Person With Autism. The American Journal of Occupational Therapy, 62(5), 547–553. doi.org/10.5014/ajot.62.5.547
Thompson-Hodgetts, S., & Magill-Evans, J. (2018). Sensory-Based Approaches in Intervention for Children With Autism Spectrum Disorder: Influences on Occupational Therapists’ Recommendations and Perceived Benefits. The American Journal of Occupational Therapy, 72(3), 7203205020p1-7203205020p8. doi.org/10.5014/ajot.2018.024729
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References:
Broitman, J., & Davis, J. (n.d.). Frequently Asked Questions. The NVLD Project | Non-Verbal Learning Disability. Retrieved November 5, 2021, from nvld.org/faqs
Burkhardt, S. (2019, April 17). NVLD: To Be or Not to Be Real NVLD. Children’s Resource Group - A Multi-Specialty Behavioral Health Practice. childrensresourcegroup.com/nvld-to-be-or-not-to-be-real-nvld
Cervino, M., Castrillo, P., & Guijarro, R. (2017). Non-verbal learning disorder: Neuropsychological profile and neural correlates. A structural magnetic resonance imaging study. European Psychiatry, 41(S1), S344–S344. doi.org/10.1016/j.eurpsy.2017.02.310
Fine, J. G., Musielak, K. A., & Semrud-Clikeman, M. (2014). Smaller splenium in children with nonverbal learning disability compared to controls, high-functioning autism and ADHD. Child Neuropsychology, 20(6), 641–661. doi.org/10.1080/09297049.2013.854763
Fine, J., Semrud-Clikeman, M., Bledsoe, JesseC., & Musielak, KaylaA. (2013). A critical review of the literature on NLD as a developmental disorder. Child Neuropsychology, 19(2), 190–223. doi.org/10.1080/09297049.2011.648923
Frye, D., & Karanzalis, L. (2021, January 6). What Is Nonverbal Learning Disorder? ADDitude. additudemag.com/what-is-nonverbal-learning-disorder-symptoms-and-diagnosis
Meyer, B. (2020, February 26). NVLD: What is it and Why is it Not in the DSM? The NVLD Project | Non-Verbal Learning Disability. nvld.org/nvld-what-is-it-why-not-in-dsm
Rosenblum, S., Piran, M., Meyer, S., & Sachs, D. (2018). Normative or Heavy Clouds? Early Indicators of Nonverbal Learning Disability Based on Mothers’ Reports. Open Journal of Occupational Therapy, 6(2). doi.org/10.15453/2168-6408.1395
Semrud-Clikeman, M., Fine, J., Bledsoe, J., & Zhu, DavidC. (2013). Magnetic resonance imaging volumetric findings in children with Asperger syndrome, nonverbal learning disability, or healthy controls. Journal of Clinical & Experimental Neuropsychology, 35(5), 540–550. doi.org/10.1080/13803395.2013.795528
Semrud-Clikeman, M., Fine, J. G., & Bledsoe, J. (2016). Social functioning using direct and indirect measures with children with High Functioning Autism, nonverbal learning disability, and typically developing children. Child Neuropsychology, 22(3), 318–335. doi.org/10.1080/09297049.2014.994487
Semrud-Clikeman, M., Walkowiak, J., Wilkinson, A., & Christopher, G. (2010). Neuropsychological Differences Among Children With Asperger Syndrome, Nonverbal Learning Disabilities, Attention Deficit Disorder, and Controls. Developmental Neuropsychology, 35(5), 582–600. doi.org/10.1080/87565641.2010.494747
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References/Further Reading:
Blair, R. (2012, July 6). 5 Steps of Compartmentalization: The Secret Behind Successful Entrepreneurs. Forbes. forbes.com/sites/ryanblair/2012/06/26/5-steps-of-compartmentalization
Slithytoves. (2015, June 25). When worlds collide: A hazard of compartmentalizing people. Asperger’s & Autism Forum. autismforums.com/threads/when-worlds-collide-a-hazard-of-compartmentalizing-people.12461
Woods, A. G., Mahdavi, E., & Ryan, J. P. (2013). Treating clients with Asperger’s syndrome and autism. Child and Adolescent Psychiatry and Mental Health, 7, 32. doi.org/10.1186/1753-2000-7-32
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*Note: This is NOT glorifying or promoting an eating disorder. This is an educational video on the topic.*
The other selective eating video: youtu.be/ESpZjFedS40
References:
Adler, R. L. (2020, July 22). I Have An Eating Disorder You’ve Probably Never Heard Of. HuffPost. huffpost.com/entry/eating-disorder-arfid-food-phobia_n_5f170073c5b6cac5b732096f
ARFID & AUTISM. (n.d.). ARFID Awareness UK. Retrieved October 19, 2021, from arfidawarenessuk.org/the-link-with-autism-1
EBSCO Full Text. (n.d.). Retrieved October 19, 2021, from content.ebscohost.com/ContentServer.asp?T=P&P=AN&K=120386334&S=R&D=aph&EbscoContent=dGJyMNLr40Sep7c4zdnyOLCmsEmep7ZSsa24SbeWxWXS&ContentCustomer=dGJyMPGutkyxrbdPuePfgeyx44Dt6fIA
Elliot, S. (2018, January 22). What Exactly is ARFID? National Eating Disorders Association. nationaleatingdisorders.org/blog/what-exactly-arfid
Kambanis, P. E., Kuhnle, M. C., Wons, O. B., Jo, J. H., Keshishian, A. C., Hauser, K., Becker, K. R., Franko, D. L., Misra, M., Micali, N., Lawson, E. A., Eddy, K. T., & Thomas, J. J. (2020). Prevalence and correlates of psychiatric comorbidities in children and adolescents with full and subthreshold avoidant/restrictive food intake disorder. International Journal of Eating Disorders, 53(2), 256–265. doi.org/10.1002/eat.23191
Shimshoni, Y., Silverman, W. K., & Lebowitz, E. R. (2020). SPACE‐ARFID: A pilot trial of a novel parent‐based treatment for avoidant/restrictive food intake disorder. International Journal of Eating Disorders, 53(10), 1623–1635. doi.org/10.1002/eat.23341
Tsai, K., Singh, D., & Pinkhasov, A. (2017). Pudendal nerve entrapment leading to avoidant/restrictive food intake disorder (ARFID): A case report. International Journal of Eating Disorders, 50(1), 84–87. doi.org/10.1002/eat.22601
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References
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Roxby, P. (2021, September 20). Early baby therapy could reduce autism diagnoses. BBC News. bbc.com/news/health-58626945
Sher-Censor, E., Dolev, S., Said, M., Baransi, N., & Amara, K. (2017). Coherence of Representations Regarding the Child, Resolution of the Child’s Diagnosis and Emotional Availability: A Study of Arab-Israeli Mothers of Children with ASD. Journal of Autism & Developmental Disorders, 47(10), 3139–3149. doi.org/10.1007/s10803-017-3228-8
van ’t Hof, M., Tisseur, C., van Berckelear-Onnes, I., van Nieuwenhuyzen, A., Daniels, A. M., Deen, M., Hoek, H. W., & Ester, W. A. (2021). Age at autism spectrum disorder diagnosis: A systematic review and meta-analysis from 2012 to 2019. Autism, 25(4), 862–873. doi.org/10.1177/1362361320971107
Video-feedback intervention to promote positive parenting and sensitive discipline (VIPP-SD). (n.d.). Retrieved September 21, 2021, from tavistockandportman.nhs.uk/care-and-treatment/treatments/video-feedback-intervention-promote-positive-parenting-vipp
Whitehouse, A. J. O., Varcin, K. J., Pillar, S., Billingham, W., Alvares, G. A., Barbaro, J., Bent, C. A., Blenkley, D., Boutrus, M., Chee, A., Chetcuti, L., Clark, A., Davidson, E., Dimov, S., Dissanayake, C., Doyle, J., Grant, M., Green, C. C., Harrap, M., … Hudry, K. (2021). Effect of Preemptive Intervention on Developmental Outcomes Among Infants Showing Early Signs of Autism: A Randomized Clinical Trial of Outcomes to Diagnosis. JAMA Pediatrics, e213298. doi.org/10.1001/jamapediatrics.2021.3298
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References:
Boccia, M., Marin, D., D’Antuono, G., Ciurli, P., Incoccia, C., Antonucci, G., Guariglia, C., & Piccardi, L. (2017). The Tower of London (ToL) in Italy: Standardization of the ToL test in an Italian population. Neurological Sciences, 38(7), 1263–1270. doi.org/10.1007/s10072-017-2957-y
CogniFit. (n.d.). Planning- Cognitive Skill. Retrieved August 3, 2021, from cognifit.com/science/cognitive-skills/planning
Kelly, K. (n.d.). Why Kids With Executive Functioning Issues Have Trouble With Planning. Understood. Retrieved August 3, 2021, from understood.org/articles/en/why-kids-with-executive-functioning-issues-have-trouble-with-planning
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References:
Dellapiazza, F., Michelon, C., Oreve, M.-J., Robel, L., Schoenberger, M., Chatel, C., Vesperini, S., Maffre, T., Schmidt, R., Blanc, N., Vernhet, C., Picot, M.-C., Baghdadli, A., ELENA study group, Chabaux, C., Cohen, D., Damville, E., Geoffray, M.-M., Gicquel, L., & Jardri, R. (2020). The Impact of Atypical Sensory Processing on Adaptive Functioning and Maladaptive Behaviors in Autism Spectrum Disorder During Childhood: Results From the ELENA Cohort. Journal of Autism & Developmental Disorders, 50(6), 2142–2152. doi.org/10.1007/s10803-019-03970-w
Mayer, J. (2017). The Relationship Between Autistic Traits and Atypical Sensory Functioning in Neurotypical and ASD Adults: A Spectrum Approach. Journal of Autism & Developmental Disorders, 47(2), 316–327. doi.org/10.1007/s10803-016-2948-5
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References:
Baron-Cohen, S. (2018). The truth about Hans Asperger’s Nazi collusion. Nature, 557(7705), 305–306. doi.org/10.1038/d41586-018-05112-1
Furfaro, H. (2018, April 19). New evidence ties Hans Asperger to Nazi eugenics program. Spectrum | Autism Research News. spectrumnews.org/news/new-evidence-ties-hans-asperger-nazi-eugenics-program
Lindmeier, C. (2018, June 18). WHO releases new International Classification of Diseases (ICD 11). Word Health Organization. https://www.who.int/news/item/18-06-2018-who-releases-new-international-classification-of-diseases-(icd-11)
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