Stephanie BethanyI've finally gotten around to sharing some more specific thoughts on the Korean drama series Extraordinary Attorney Woo! I also hope this helps explain some of the behavior or situations that happen with Young-woo.
This video does contain spoilers, so if you want my spoiler-free impression as an autistic person, check out this video: youtube.com/watch?v=sBuRUbYUuds
What do you think about there being a season 2 of Extraordinary Attorney Woo?
Thoughts on Autism Scenes in Extraordinary Attorney Woo + Season 2Stephanie Bethany2023-02-23 | I've finally gotten around to sharing some more specific thoughts on the Korean drama series Extraordinary Attorney Woo! I also hope this helps explain some of the behavior or situations that happen with Young-woo.
This video does contain spoilers, so if you want my spoiler-free impression as an autistic person, check out this video: youtube.com/watch?v=sBuRUbYUuds
What do you think about there being a season 2 of Extraordinary Attorney Woo?
Support my channel and become a Patron!: patreon.com/stephaniebethany Or give once at ko-fi.com/stephaniebethanySpontaneous Live - Its Been a BitStephanie Bethany2023-05-18 | This is really last second but I just decided to go live since I haven't in forever on the channel and I haven't been posting.Why Autistic Youth Should Watch Kimi Ni Todoke (From Me to You)Stephanie Bethany2023-03-30 | These are my thoughts on why autistic or neurodivergent youth should watch the anime Kimi ni Todoke (From Me to You) from my perspective as an autistic adult who watched it as a youth and re-watched recently. The anime is currently available on Netflix and apparently there is a live adaptation version coming out by Netflix as well.
Support my channel and become a Patron!: patreon.com/stephaniebethanyWhat Was Found at The Judge Rotenberg Center | The Final DecisionStephanie Bethany2023-03-13 | In this video, we will go over the report written by the ABAI special task force from their visit to the Judge Rotenberg Center, their recommendation, and the final vote for an official position statement, as well as another related development that has a strong effect on the use of the GED-3 and GED-4.
*Some links in this description box are affiliate links, which will give me a small commission should you purchase something through them at no extra cost to you. Thank you for supporting the channel!Shouting At Leaves by @JenniferMsumba Book ReviewStephanie Bethany2023-02-13 | I give my thoughts on the book Shouting at Leaves by Jennifer Msumba. Have you read her book? What are your thoughts?
*Some links in this description box are affiliate links, which will give me a small commission should you purchase something through them at no extra cost to you. Thank you for supporting the channel!When Should You Tell Your Child Theyre Autistic?Stephanie Bethany2023-01-26 | A lot of people have asked me when they should tell their child that they are autistic. In today's video, I'm going to share some of my experience having not known I was autistic growing up and look at a research paper that looked into quality of life of adults on the autism spectrum compared to when they were informed of their autism.
**Learn more about Tracto and download their free app!: tracto.app
References: Oredipe, T., Kofner, B., Riccio, A., Cage, E., Vincent, J., Kapp, S. K., Dwyer, P., & Gillespie-Lynch, K. (2022). Does learning you are autistic at a younger age lead to better adult outcomes? A participatory exploration of the perspectives of autistic university students. Autism, 13623613221086700. doi.org/10.1177/13623613221086700
Support my channel and become a Patron!: patreon.com/stephaniebethany Or give once at ko-fi.com/stephaniebethanyABA Practitioners Speak Out Against JRC & Skin ShockStephanie Bethany2023-01-12 | This is the third video in the miniseries JRC, ABAI, & A Reckoning, where we go over what happened at the special task force session at the ABAI conference as well as what happened after with a protest held at JRC by autistic advocates.
Support my channel and become a Patron!: patreon.com/stephaniebethany Or give once at ko-fi.com/stephaniebethanyMasking is More Than Not StimmingStephanie Bethany2022-12-29 | I just wanted to talk with you all some more about the concept of masking and the more intricate ways it can occur and how failing to mask in difficult situations can result in poor outcomes for autistic people and my feelings around it from personal experience.
Support my channel and become a Patron!: patreon.com/stephaniebethany Or give once at ko-fi.com/stephaniebethanyDSM-5 vs Unofficial Checklist for Autism in Females | Checking the ChecklistStephanie Bethany2022-12-15 | The Samantha Craft Unofficial Checklist for Autism or Asperger's in Females (I've seen this re-named a lot online!) or Autistic Checklist is one of the first checklists I went over with you all on my channel. Something that has been of interest to me lately is how much these unofficial lists can hold up to the criteria recognized by diagnostic manuals. So, I thought it might be interesting to start here, with this checklist and comparing it to criteria in the DSM-5. If you all are interested, I may also compare to the ICD-11.
I share my reasoning with you through this process to help you see why I categorized things a certain way because many could very well fall into or outside the categorization of criteria depending on how you take it. You might have a different view or reasoning on it, and I'd love to hear how you see it!
Craft, S. (2019, June 10). Females and Autism / Aspergers: A checklist. The Art of Autism. the-art-of-autism.com/females-and-aspergers-a-checklist Teledevara, S., Rajeswari, M., Kumar, R. S., & Udayakumar, N. (2019). Factors Associated with
Low Muscle Tone and Impact of Common Musculoskeletal Problems on Motor Development in Preterm Infants at One Year of Corrected Age. JOURNAL OF CLINICAL AND DIAGNOSTIC RESEARCH. doi.org/10.7860/JCDR/2019/39551.12675
Support my channel and become a Patron!: patreon.com/stephaniebethany Or give once at ko-fi.com/stephaniebethanyAutistic Father of Autistic Non-Speaker Speaks on Parenting and ABA | Full VideoStephanie Bethany2022-12-01 | Iouri shares his thoughts as an autistic parent of an autistic non-speaker, including some perspective on Applied Behavior Analysis (ABA) as someone who has schooling in the field.
This interview was conducted as part of a video project on the conversation around who is "allowed" to "speak for" non-speaking autistic people. You can find the overall video here: youtu.be/Gep2opzHyG8
00:00 - Can you tell me a bit about you and your family? 03:29 - How well do you feel you understand your non-speaking child and is that influenced by you being autistic? 08:19 - How would you describe your "place" in the autism community, given that you are both a parent of an autistic child and an autistic adult? 09:46 - Do you feel as though you are your child's voice? Why/why not? 15:41 - Does your child use any alternative forms of communication? 18:38 - Do you experience people telling you they know more about what your child needs than you do? 28:02 - What do you think about the conversation around who gets to speak or advocate for non-speaking autistic people? 32:15 - Do you have any other thoughts you'd like to share?
Support my channel and become a Patron!: patreon.com/stephaniebethany Or give once at ko-fi.com/stephaniebethanyEileen Lamb, Autistic Mother of Autistic Children, on Her Place in Autism Community | Full InterviewStephanie Bethany2022-11-17 | Eileen Lamb, who some may recognize as The Autism Cafe, shares her thoughts on the matter of advocacy and non-speakers as an autistic mother of autistic children, one of which is also non-speaking, as well as her place in the autism community as both a parent and an autistic person.
This interview was conducted as part of a video project on the conversation around who is "allowed" to "speak for" non-speaking autistic people. You can find the overall video here: youtu.be/Gep2opzHyG8
00:00 - Can you tell me a bit about you and your family? 00:30 - How well do you feel you understand your non-speaking child, and do you feel that is influenced by you also being autistic? 02:02 - How would you describe your "place" in the autism community, given that you are both a parent of an autistic child and an autistic adult? 04:02 - Do you feel as though you are your child's voice? Why/why not? 04:49 - Do you experience people telling you they know more about what your child needs than you do? 07:05 - What do you think about the conversation around who gets to speak or advocate for non-speaking autistic people? 09:04 - Do you have any other thoughts you'd like to share?
*Some links in this description box are affiliate links, which will give me a small commission should you purchase something through them at no extra cost to you. Thank you for supporting the channel!Mom of Autistic Non-Speaker Shares About Advocacy & Finding the Right People | Full InterviewStephanie Bethany2022-11-03 | Nikki shares her perspective as a mother of a non-speaking autistic child, from navigating healthcare and other related professionals, advocating for her child and others within the school system, and finding an autism mom crew.
This interview was conducted as part of a video project on the conversation around who is "allowed" to "speak for" non-speaking autistic people. You can find the overall video here: youtu.be/Gep2opzHyG8
00:00 - Can you tell me a bit about you and your family? 00:15 - How well do you feel like you understand your child? 00:50 - How do you communicate with each other? 01:45 - Do you experience people telling you that they know more about what your child needs than you do? 11:51 - What resources have you found the most useful over time in learning about autism and your child? 19:41 - Do you feel as though you are your child's voice and why or why not? 24:06 - How do you feel regarding the role of autistic advocates in the world of autism? 38:16 - What do you think about the conversation around who gets to speak or advocate for non-speaking autistic people? 47:35 - Did you have any other thoughts or anything that you'd like to share?
Support my channel and become a Patron!: patreon.com/stephaniebethany Or give once at ko-fi.com/stephaniebethanyNon-speaking Autistic Author Ido Kedar Gives Tips to Non-Speakers & Their Families | Full InterviewStephanie Bethany2022-10-20 | Non-speaking autistic author, Ido Kedar, was kind enough to agree to interview and share his perspective as a non-speaking autistic person, including giving important tips for autistic non-speakers and their families and commenting on representation.
This interview was conducted as part of a video project on the conversation around who is "allowed" to "speak for" non-speaking autistic people. You can find the overall video here: youtu.be/Gep2opzHyG8
00:00 - Explanation 01:24 - What was your life like before communication was unlocked for you? 02:46 - When you were small, did you ever think you would be able to express yourself as you do now? 03:30 - Do you feel understood and represented by speaking, lower supports-needs autism advocates who tend to dominate autism spaces? 09:18 - What are your three most important tips for young people with autism today? 10:53 - Why did you decide to write your novel, "In Two Worlds," and how did you come up with the idea for your character, Anthony? 13:43 - How was the book's title chosen and what does it signify for you? 14:37 - How does the experience of writing fiction and non-fiction compare for you? 16:00 - What do you hope readers take away from "In Two Worlds?" 17:18 - How would you describe non-speaking autism to others?
*Some links in this description box are affiliate links, which will give me a small commission should you purchase something through them at no extra cost to you. Thank you for supporting the channel!Autistic Non-Speaker Ben on Representation & Barriers Faced by Non-Speakers | Full InterviewStephanie Bethany2022-10-06 | Ben shares his thoughts and perspective as a non-speaking autistic adult. Note that this interview has been significantly edited down for the convenience of the viewer. Ben uses letterboard in this interview to communicate, and Sarah, his Communication and Regulation Partner (CRP) helps. I left in some snippets to help the audience understand a little about how Ben uses letterboard. Please don't get confused thinking that Ben gave a long answer with just a few points at the board! He spent a lot of time and effort to be able to share his thoughts in a real-time conversation with me, and I am so, so appreciative of his perspective and willingness to participate.
This interview was conducted as part of a video project on the conversation around who is "allowed" to "speak for" non-speaking autistic people. You can find the overall video here: youtu.be/Gep2opzHyG8
00:20 - Do you feel understood and represented by speaking or lower support needs autistic advocates who tend to dominate autistic spaces? 01:52 - At any point in life, have you felt it was accurate to say that a parent, family member, or autistic advocate was your voice? 02:43 - What are your thoughts and feelings regarding autism parents and autistic advocates? 04:04 - What do you think about the conversation around who gets to speak or advocate for non-speaking autistic people? 04:33 - Do you have any other thoughts that you'd like to share?
Support my channel and become a Patron!: patreon.com/stephaniebethany Or give once at ko-fi.com/stephaniebethanyJennifer Msumba Shares Her Thoughts as an Autistic Adult | Full InterviewStephanie Bethany2022-09-22 | Jennifer Msumba shares her perspective on the conversation around autism parents, autistic advocates, and non-speaking autistic people.
This interview was conducted as part of a video project on the conversation around who is "allowed" to "speak for" non-speaking autistic people. You can find the overall video here: youtu.be/Gep2opzHyG8
Timestamps: 00:00 Can you tell me a bit about yourself and your upbringing? 01:19 How well do you feel your family/parents understand you (and you them)? 02:52 What kind of role has your parents/family played in your life/upbringing especially in regard to autism? 05:15 Do you typically feel a strong understanding for other autistic people who are non-speaking or may have higher support needs than you? Why/why not? 07:10 How do you feel about, in general, parents/family of autistic children in the world of autism? 11:10 Do you think that parents/family tend to be accurate in the idea that they are their child's voice? 14:23 What do you think about the conversation around who gets to speak or advocate for nonspeaking autistic people? 18:19 Do you have any other thoughts you'd like to share?
*Some links in this description box are affiliate links, which will give me a small commission should you purchase something through them at no extra cost to you. Thank you for supporting the channel!Apraxia & Autism (& Non-speakers!)Stephanie Bethany2022-09-15 | While we have discussed dyspraxia, we haven't gone into specifically apraxia, the difference between those two, and why understanding different types of apraxia is so important for understanding why non-speakers may seem to not understand when they actually do. Anyone working with autistic people should be at least somewhat familiar with apraxia.
References: Apraxia a Common Occurrence in Autism, Study Finds (world). (2018, 42-12 03:42:51). [Research-article]. The ASHA Leader; American Speech-Language-Hearing Association. doi.org/10.1044/leader.RIB1.20092015.18
Jo, S., Oh, J. S., Cheong, E.-N., Kim, H. J., Lee, S., Oh, M., Kim, J. S., Chung, S. J., Lee, C. S., Kwon, M., Kang, D., & Lee, J.-H. (2021). FDG-PET patterns associated with ideomotor apraxia and imitation apraxia in patients with corticobasal syndrome. Parkinsonism & Related Disorders, 88, 96–101. doi.org/10.1016/j.parkreldis.2021.06.006
Joswig, H., Surbeck, W., Scholtes, F., Bratelj, D., & Hildebrandt, G. (2021). The debate on apraxia and the supplementary motor area in the twentieth century. Acta Neurochirurgica, 163(5), 1247–1255. doi.org/10.1007/s00701-020-04509-0
MacDonald, M., Ross, S., McIntyre, L. L., & Tepfer, A. (2017). Relations of Early Motor Skills on Age and Socialization, Communication, and Daily Living in Young Children With Developmental Disabilities. Adapted Physical Activity Quarterly, 34(2), 179–194. doi.org/10.1123/apaq.2015-0091
Parakh, R., Roy, E., Koo, E., & Black, S. (2004). Pantomime and imitation of limb gestures in relation to the severity of Alzheimer’s disease. Brain and Cognition, 55(2), 272–274. doi.org/10.1016/j.bandc.2004.02.049
Philadelphia, T. C. H. of. (2014, April 8). Childhood Apraxia of Speech Causes, Symptoms and Treatment [Text]. The Children’s Hospital of Philadelphia. https://www.chop.edu/conditions-diseases/childhood-apraxia-speech
Poole, J. L., Gallagher, J., & Qualls, C. (1997). The Mechanisms for Adult-Onset Apraxia and Developmental Dyspraxia: An. 51(5), 8.
Stoll, H., de Wit, M. M., Middleton, E. L., & Buxbaum, L. J. (2021). Treating limb apraxia via action semantics: A preliminary study. Neuropsychological Rehabilitation, 31(7), 1145–1162. doi.org/10.1080/09602011.2020.1762672
Wu, A. J., Radel, J., & Hanna-Pladdy, B. (2011). Improved Function After Combined Physical and Mental Practice After Stroke: A Case of Hemiparesis and Apraxia. The American Journal of Occupational Therapy, 65(2), 161–168. doi.org/10.5014/ajot.2011.000786
Support my channel and become a Patron!: patreon.com/stephaniebethany Or give once at ko-fi.com/stephaniebethanyFrancesca of Neurodivergent Franchfries Shares Her Perspective as an Autistic Adult | Full InterviewStephanie Bethany2022-09-08 | Francesca of Neurodivergent Franchfries on YouTube shares her perspective on the issue of non-speaking autistic individuals and who gets to speak for them, with thoughts about autistic advocates and parents.
This interview was conducted as part of a video project on the conversation around who is "allowed" to "speak for" non-speaking autistic people. You can find the overall video here: youtube.com/watch?v=Gep2opzHyG8
Timestamps: 00:00 Can you tell me a bit about yourself and your upbringing? 19:42 How well do you feel your family/parents understand you (and you them) & What role have they played in your life regarding autism? 34:46 Do you typically feel a strong understanding for other autistic people who are non-speaking or may have higher support needs than you? Why/why not? 51:53 Feelings About Parents in Autism World & Do you think that parents/family are their child's voice? 59:24 What do you think about the conversation around who gets to speak or advocate for nonspeaking autistic people? 01:06:18 Do you have any other thoughts you'd like to share?
Support my channel and become a Patron!: patreon.com/stephaniebethanyDiagnostic Manuals (DSM & ICD)Stephanie Bethany2022-09-01 | I wanted to share in a quick video about the main diagnostic manuals used to diagnose autism and other conditions. The United States and much of the rest of the world use different manuals from each other, which can affect terms and diagnostic criteria.
References: Brunier, A. (2022, February 11). ICD-11 2022 release. World Health Organization. https://www.who.int/news/item/11-02-2022-icd-11-2022-release
Lindmeier, C. (2018, June 18). WHO releases new International Classification of Diseases (ICD 11). Word Health Organization. https://www.who.int/news/item/18-06-2018-who-releases-new-international-classification-of-diseases-(icd-11)
Stein, D. J., & Reed, G. M. (2019). Global mental health and psychiatric nosology: DSM-5, ICD-11, and RDoC. Revista Brasileira de Psiquiatria, 41(1), 3–4. doi.org/10.1590/1516-4446-2018-4101
Support my channel and become a Patron!: patreon.com/stephaniebethany Or give once at ko-fi.com/stephaniebethanyMom of Non-Speaking Autistic Teens Shares Her Perspective | Full InterviewStephanie Bethany2022-08-25 | Stephanie of Autism Mom Plans on YouTube shares her perspective on the issue of non-speaking autistic individuals and who gets to speak for them as a parent of two autistic non-speakers. She shares about listening, parent perspective, and advocacy.
This interview was conducted as part of a video project on the conversation around who is "allowed" to "speak for" non-speaking autistic people. You can find the overall video here: youtu.be/Gep2opzHyG8
Timestamps: 00:00 Can you tell me a bit about you and your family? 01:29 How well do you feel like you understand your child(ren)? 03:20 How do you communicate? 04:31 Do you experience people telling you they know more about what your child needs than you do? 07:31 How does that make you feel/what is your response to [previous question]? 09:34 What resources have you found most useful over time in learning about autism and your child? 12:19 Do you feel as though you are your child's voice? Why/why not? 14:01 How do you feel regarding the role of autistic advocates in the world of autism? 16:41 What do you think about the conversation around who gets to speak or advocate for nonspeaking autistic people? 20:24 Do you have any other thoughts you'd like to share?
Support my channel and become a Patron!: patreon.com/stephaniebethanySupports For Parents of Neurodivergent Children (ft. Karla Pretorious)Stephanie Bethany2022-08-18 | Karla and I discuss some of the supports available to parents of neurodivergent children and some of the limits as well as introduce a free app that can help parents keep track of appointments, medicine, sleep, and more. Karla also introduces us to the concept of group coaching and invites parents to apply for a new group coaching program designed for parents of neurodivergent children!
Karla Pretorius has over 15 years of experience in working with neurodivergent individuals and their families. She is Co-Founder of AIMS Global, has a MA Psychology, and is a Registered Counselor for Plumm Health, Contributor for Autism Parenting Magazine and Moshi.
Support my channel and become a Patron!: patreon.comWho Speaks for Autistic Non-Speakers? (2022)Stephanie Bethany2022-08-11 | Who Speaks for Autistic Non-Speakers? (2022)
Non-speaking autistic people often get left out of the conversation when it comes to autism advocacy online. Parents often claim to be their non-speaking child's voice. Autistic advocates often claim to know more about autistic non-speakers due to shared neurotype. There's a divide between parents/family of autistic non-speakers and speaking autistic advocates online. Rarely does anyone consult autistic non-speakers due to so few having gained access to communication and gained visibility online. In this video, we seek to begin to bridge the gap and listen to different points of view, with the hope of building bridges and starting conversations to best help autistic non-speakers and those who love and care about them.
Support my channel and become a Patron!: patreon.com/stephaniebethany Or give once at ko-fi.com/stephaniebethany[TRAILER] Who Speaks for Autistic Non-Speakers?Stephanie Bethany2022-08-08 | Get ready for the premiere of Who Speaks for Autistic Non-Speakers?, a video project nearly 3 years in the making where we begin to bridge the gap between many important perspectives to promote listening and collaboration.
Thank you to Stephanie, Jennifer, Eileen, Iouri, Ido, Nikki, Ben, and Francesca!
See the video project: youtu.be/Gep2opzHyG8ABAI Angers ABA Community Over JRC & Skin ShockStephanie Bethany2022-08-04 | This is the second video in the miniseries JRC, ABAI, & A Reckoning, where we pick up after the online publication of the cease and desist letter and look at the controversy that got more heated in the ABA (applied behavior analysis) community. The Association for Behavior Analysis International chose to continue hosting Judge Rotenberg Center at their 48th Annual Boston Convention, a decision that included employees resigning publicly.
Support my channel and become a Patron!: patreon.com/stephaniebethany Or give once at ko-fi.com/stephaniebethanyAutistic Persons Thoughts on Extraordinary Attorney WooStephanie Bethany2022-07-28 | Extraordinary Attorney Woo is a K-drama centered around an autistic lawyer named Woo Young-woo. The series is still airing/being released, but these are my thoughts as an autistic person from seeing the first several episodes.
Support my channel and become a Patron!: patreon.com/stephaniebethany Or give once at ko-fi.com/stephaniebethanyHighly Sensitive Person or Autism?Stephanie Bethany2022-07-21 | Highly Sensitive Person (HSP) or Sensory Processing Sensitivity (SPS) has a lot of descriptive overlap with autism, more prominently in traits noted in plain-language autism (especially female) checklists. So, I thought we would go over what Highly Sensitive Person is and bring some understanding as to the differences.
References:
Aron, E., Allen-Williams, B., & Strickland, J. (n.d.). FAQ: Is Sensory Processing (or Integration) Disorder (SPD) the same as Sensory Processing Sensitivity (SPS)? Retrieved January 12, 2022, from hsperson.com/faq/spd-vs-sps
FAQ: How does sensitivity differ from Autistic spectrum disorders (Asperger’s Syndrome, etc.)? – The Highly Sensitive Person. (n.d.). Retrieved January 12, 2022, from hsperson.com/faq/hs-or-asd
Karaca Dinç, P., Oktay, S., & Durak Batıgün, A. (2021). Mediation role of alexithymia, sensory processing sensitivity and emotional-mental processes between childhood trauma and adult psychopathology: A self-report study. BMC Psychiatry, 21(1), 1–10. doi.org/10.1186/s12888-021-03532-4
Liss, M., Mailloux, J., & Erchull, M. J. (2008). The relationships between sensory processing sensitivity, alexithymia, autism, depression, and anxiety. Personality and Individual Differences, 45(3), 255–259. doi.org/10.1016/j.paid.2008.04.009
Rinn, A. N., Mullet, D. R., Jett, N., & Nyikos, T. (2018). Sensory Processing Sensitivity Among High-Ability Individuals: A Psychometric Evaluation of the Highly Sensitive Person Scale. Roeper Review, 40(3), 166–175. doi.org/10.1080/02783193.2018.1466840
Smith, H. L., Sriken, J., & Erford, B. T. (2019). Clinical and Research Utility of the Highly Sensitive Person Scale. Journal of Mental Health Counseling, 41(3), 221–241. doi.org/10.17744/mehc.41.3.03
Support my channel and become a Patron!: patreon.com/stephaniebethany Or give once at ko-fi.com/stephaniebethanyFaking Autism (& Other Disorders)Stephanie Bethany2022-07-01 | In this video, I'm going to share my thoughts and perspective regarding the increasing phenomena of people faking or mimicking disorders online for popularity or other reasons. I also cover some of my updated thoughts surrounding self-diagnosis.
References: [trigger warning for r-word] Dr Dacious. (2020, October 21). TikToker FAKES Having Autism For Clout And Money🤢| (MilezJJ EXPOSED!). youtube.com/watch?v=WlQJeAmvOwQ
King, R. B. (2020). Mindsets are contagious: The social contagion of implicit theories of intelligence among classmates. British Journal of Educational Psychology, 90(2), 349–363. doi.org/10.1111/bjep.12285
Müller-Vahl, K. R., Pisarenko, A., Jakubovski, E., & Fremer, C. (2022). Stop that! It’s not Tourette’s but a new type of mass sociogenic illness. Brain, 145(2), 476–480. doi.org/10.1093/brain/awab316
Olvera, C., Stebbins, G. T., Goetz, C. G., & Kompoliti, K. (2021). Tics: A Pandemic Within a Pandemic. Movement Disorders Clinical Practice, 8(8), 1200–1205. doi.org/10.1002/mdc3.13316
Support my channel and become a Patron!: patreon.com/stephaniebethany Or give once at ko-fi.com/stephaniebethanyJudge Rotenberg Center Tries to Silence Autistic OrganizationStephanie Bethany2022-06-23 | The infamous Judge Rotenberg Center (JRC) has recently sent a cease and desist letter to NeuroClastic, and autistic-run non-profit, accusing them of making false and defamatory statements about them. We're going to look into JRC's accusations and NeuroClastic's response. In later episodes of this mini-series, we will look into the effect this had on not only the autistic community, but the Applied Behavior Analysis (ABA) community.
#stoptheshock
This is episode one of the miniseries "JRC, ABAI, and a Reckoning."
Support my channel and become a Patron!: patreon.com/stephaniebethany Or give once at ko-fi.com/stephaniebethanyWhat is it like to have autism / be autistic?Stephanie Bethany2022-04-02 | Happy World Autism Awareness/Acceptance Day! Today, I want to share with you, the best I can, what it's like for me being autistic or having autism. Everyone's experience is different and this is a pretty non-traditional way of answering.
Support my channel and become a Patron!: patreon.com/stephaniebethany Or give once at ko-fi.com/stephaniebethanyDifferent Types of Autism? & Other Q&AsStephanie Bethany2022-04-01 | Welcome to April, which is Autism Awareness/Acceptance Month! I wanted to answer some common questions people have concerning autism and autistic people honestly and try to avoid shaming people for having questions or just parroting popular narrative. While I have an overall neurodiversity viewpoint, I don't want to tell people how to think or make them feel bad for having questions or being curious. Hope this helps some!
#WAAW22 #WAAW2022
Timestamps: 00:00 - Intro 00:06 - What IS autism? 00:41 - How does someone get autism? / What causes autism? 01:18 - Are there different types of autism? 02:23 - What does "autism is a spectrum" mean? 03:18 - Are there treatments or a cure for autism? 03:55 - How do people cope with having autism? 04:56 - Are there supports out there for autistic people and their families? 05:54 - How should I act around an autistic person?
Bai, D., Yip, B. H. K., Windham, G. C., Sourander, A., Francis, R., Yoffe, R., Glasson, E., Mahjani, B., Suominen, A., Leonard, H., Gissler, M., Buxbaum, J. D., Wong, K., Schendel, D., Kodesh, A., Breshnahan, M., Levine, S. Z., Parner, E. T., Hansen, S. N., … Sandin, S. (2019). Association of Genetic and Environmental Factors With Autism in a 5-Country Cohort. JAMA Psychiatry, 76(10), 1035–1043. doi.org/10.1001/jamapsychiatry.2019.1411
Tick, B., Bolton, P., Happé, F., Rutter, M., & Rijsdijk, F. (2016). Heritability of autism spectrum disorders: A meta-analysis of twin studies. Journal of Child Psychology and Psychiatry, 57(5), 585–595. doi.org/10.1111/jcpp.12499
Support my channel and become a Patron!: patreon.com/stephaniebethany Or give once at ko-fi.com/stephaniebethanyWhat About SEVERE or Nonverbal Autism?Stephanie Bethany2022-03-30 | As part of World Autism Awareness/Acceptance Week, I want to share with you about what some may call "severe" or "nonverbal" autism. A large part of the autistic community is unable to use speech as a reliable form of communication.
#WAAW22 #WAAW2022
References: Brignell, A., Chenausky, K. V., Song, H., Zhu, J., Suo, C., & Morgan, A. T. (2018). Communication interventions for autism spectrum disorder in minimally verbal children. Cochrane Database of Systematic Reviews, 11. doi.org/10.1002/14651858.CD012324.pub2
Support my channel and become a Patron!: patreon.com/stephaniebethany Or give once at ko-fi.com/stephaniebethanyYOU Could Be Autistic If You Have THESE TraitsStephanie Bethany2022-03-28 | #WAAW22 #WAAW2022 It's World Autism Awareness/Acceptance Week! I thought I would share a trait list based off of the DSM-5 criteria for people who find it harder to follow the criteria language. This CANNOT diagnose you and is not exhaustive.
This heavily referenced The Expanded Examples for the DSM-5 Criteria by Dr. Laura Carpenter, PhD, found here: https://depts.washington.edu/dbpeds/Screening%20Tools/DSM-5%28ASD.Guidelines%29Feb2013.pdf
Support my channel and become a Patron!: patreon.com/stephaniebethany Or give once at ko-fi.com/stephaniebethanyAutism Criteria Change?! | DSM-5-TR Updates to ASD, ARFID, ID + MoreStephanie Bethany2022-03-19 | Yesterday, the DSM-5-TR was released, which is a text revision update to the DSM-5, which is the diagnostic manual followed by the United States and some other countries when diagnosing mental health conditions and neurodevelopmental disorders such as autism. Included in the update are changes to autism spectrum disorder, avoidant/restrictive food intake disorder, intellectual disability, and more.
Support my channel and become a Patron!: patreon.com/stephaniebethany Or give once at ko-fi.com/stephaniebethanyAutism in TV/Movies, OTA School, Personality Types, & Comfy Clothes | Chill LivestreamStephanie Bethany2022-02-26 | We're just chillin. Always some interesting topics brought up and fun conversations during livestreams!
Support my channel and become a Patron!: patreon.com/stephaniebethany Or give once at ko-fi.com/stephaniebethanyAn Autistic Persons Thoughts on As We See ItStephanie Bethany2022-02-11 | Somewhat recently, Amazon Prime released a series called "As We See It," centered around three autistic people. The name implied that viewers would get to see how autistic people see things, whatever "it" is. I'm not so sure it lives entirely up to it's name. What do you think about this show?
Support my channel and become a Patron!: patreon.com/stephaniebethany Or give once at ko-fi.com/stephaniebethanyAutism & Processing Big Emotions | My Experience/ThoughtsStephanie Bethany2022-02-03 | This is my experience with processing big emotions, trying to walk through things changing, disruptions in life, etc., and a simple piece of advice or two for you if you're like me and seem to take a longer time to process these things.
Support my channel and become a Patron!: patreon.com/stephaniebethany Or give once at ko-fi.com/stephaniebethanyHow Non-Speaking/Nonverbal Autistic People CommunicateStephanie Bethany2022-01-07 | A large portion of diagnosed autistic people are considered to be nonverbal or non-speaking. So, how do they communicate if they don't speak? We'll be looking over some of the ways non-speakers communicate in today's video.
Support my channel and become a Patron!: patreon.com/stephaniebethany Or give once at ko-fi.com/stephaniebethanyReasoning | Executive FunctionsStephanie Bethany2021-12-30 | Reasoning is another executive function that can be a bit hard to pin down when it comes to proper explanation. For our purposes, we'll look at two types of reasoning: verbal and nonverbal.
Carriedo, N., Corral, A., Montoro, P. R., Herrero, L., Ballestrino, P., & Sebastián, I. (2016). The Development of Metaphor Comprehension and Its Relationship with Relational Verbal Reasoning and Executive Function. PLoS ONE, 11(3), 1–20. doi.org/10.1371/journal.pone.0150289
Cognitive Functioning & Psychological Processing. (2020). Idaho State Department of Education - Special Education, 57.
Marcotte, K., McSween, M.-P., Pouliot, M., Martineau, S., Pauzé, A.-M., Wiseman-Hakes, C., & MacDonald, S. (2017). Normative Study of the Functional Assessment of Verbal Reasoning and Executive Strategies (FAVRES) Test in the French-Canadian Population. Journal of Speech, Language & Hearing Research, 60(8), 2217–2227. doi.org/10.1044/2017_JSLHR-L-17-0012
Takesaki, N., Kikuchi, M., Yoshimura, Y., Hiraishi, H., Hasegawa, C., Kaneda, R., Nakatani, H., Takahashi, T., Mottron, L., & Minabe, Y. (2016). The Contribution of Increased Gamma Band Connectivity to Visual Non-Verbal Reasoning in Autistic Children: A MEG Study. PLoS ONE, 11(9), 1–17. doi.org/10.1371/journal.pone.0163133
Support my channel and become a Patron!: patreon.com/stephaniebethany Or give once at ko-fi.com/stephaniebethanyAutism, Dyspraxia, or Both? (Developmental Coordination Disorder)Stephanie Bethany2021-12-23 | There's been some interest in whether the motor deficits commonly seen in autism are due to dyspraxia co-morbidity or whether autism has its own specific motor deficits. We'll be looking into developmental coordination disorder, which is the actual DSM-5 diagnosis for what many simply call "dyspraxia" and its relation with autism. We will go into apraxia or developmental dyspraxia in a different video.
Hannant, P., Cassidy, S., Van de Weyer, R., & Mooncey, S. (2018). Sensory and motor differences in Autism Spectrum Conditions and developmental coordination disorder in children: A cross-syndrome study. Human Movement Science, 58, 108–118. doi.org/10.1016/j.humov.2018.01.010
Kilroy, E., Cermak, S. A., & Aziz-Zadeh, L. (2019). A Review of Functional and Structural Neurobiology of the Action Observation Network in Autism Spectrum Disorder and Developmental Coordination Disorder. Brain Sciences, 9(4), 75. doi.org/10.3390/brainsci9040075
Kilroy, E., Harrison, L., Butera, C., Jayashankar, A., Cermak, S., Kaplan, J., Williams, M., Haranin, E., Bookheimer, S., Dapretto, M., & Aziz-Zadeh, L. (2021). Unique deficit in embodied simulation in autism: An fMRI study comparing autism and developmental coordination disorder. Human Brain Mapping, 42(5), 1532–1546. doi.org/10.1002/hbm.25312
Miller, H. L., Caçola, P. M., Sherrod, G. M., Patterson, R. M., & Bugnariu, N. L. (2019). Children with Autism Spectrum Disorder, Developmental Coordination Disorder, and typical development differ in characteristics of dynamic postural control: A preliminary study. Gait & Posture, 67, 9–11. doi.org/10.1016/j.gaitpost.2018.08.038
Miller, H. L., Sherrod, G. M., Mauk, J. E., Fears, N. E., Hynan, L. S., & Tamplain, P. M. (2021). Shared Features or Co-occurrence? Evaluating Symptoms of Developmental Coordination Disorder in Children and Adolescents with Autism Spectrum Disorder. Journal of Autism & Developmental Disorders, 51(10), 3443–3455. doi.org/10.1007/s10803-020-04766-z
Paquet, A., Olliac, B., Golse, B., & Vaivre-Douret, L. (2019). Nature of motor impairments in autism spectrum disorder: A comparison with developmental coordination disorder. Journal of Clinical & Experimental Neuropsychology, 41(1), 1–14. doi.org/10.1080/13803395.2018.1483486
Support my channel and become a Patron!: patreon.com/stephaniebethany Or give once at ko-fi.com/stephaniebethanyWhat is a Sensory Diet?Stephanie Bethany2021-12-16 | Occupational therapy can offer autistic people (and others) something called a sensory diet as a way of helping them regulate. But, what is it, and is there evidence that it works? That's what we'll be looking at today.
Fenech, A., & Baker, M. (2008). Casual leisure and the sensory diet: A concept for improving quality of life in neuropalliative conditions. NeuroRehabilitation, 23(4), 369–376. doi.org/10.3233/nre-2008-23411
Gawlas, C., & Blaskowitz, M. (2020). The Impact of Sensory Diets on Adults With Intellectual and Developmental Disabilities (IDD). The American Journal of Occupational Therapy, 74(4_Supplement_1), 7411515429p1. doi.org/10.5014/ajot.2020.74S1-PO6801
Pingale, V., Fletcher, T., & Candler, C. (2021). Effect of Sensory Diets on Children’s Classroom Behaviors. The American Journal of Occupational Therapy, 75(Supplement_2), 7512520398p1. doi.org/10.5014/ajot.2021.75S2-RP398
Pingale, V., Fletcher, T., Candler, C., & Dunlap, K. (2021). Sensory Diets: Do They Work? The American Journal of Occupational Therapy, 75(Supplement_2), 7512520373p1. doi.org/10.5014/ajot.2021.75S2-RP373
Shoener, R. F., Kinnealey, M., & Koenig, K. P. (2008). You Can Know Me Now If You Listen: Sensory, Motor, and Communication Issues in a Nonverbal Person With Autism. The American Journal of Occupational Therapy, 62(5), 547–553. doi.org/10.5014/ajot.62.5.547
Thompson-Hodgetts, S., & Magill-Evans, J. (2018). Sensory-Based Approaches in Intervention for Children With Autism Spectrum Disorder: Influences on Occupational Therapists’ Recommendations and Perceived Benefits. The American Journal of Occupational Therapy, 72(3), 7203205020p1-7203205020p8. doi.org/10.5014/ajot.2018.024729
Support my channel and become a Patron!: patreon.com/stephaniebethany Or give once at ko-fi.com/stephaniebethanyNon-verbal Learning Disorder (NVLD) and/or Autism?Stephanie Bethany2021-12-02 | We're looking at something called non-verbal learning disorder or NVLD (also abbreviated as NLD), and the questions regarding it in the research field. It overlaps significantly with ASD and ADHD, and some argue it's just autism while others say it's a distinct disorder.
References: Broitman, J., & Davis, J. (n.d.). Frequently Asked Questions. The NVLD Project | Non-Verbal Learning Disability. Retrieved November 5, 2021, from nvld.org/faqs
Cervino, M., Castrillo, P., & Guijarro, R. (2017). Non-verbal learning disorder: Neuropsychological profile and neural correlates. A structural magnetic resonance imaging study. European Psychiatry, 41(S1), S344–S344. doi.org/10.1016/j.eurpsy.2017.02.310
Fine, J. G., Musielak, K. A., & Semrud-Clikeman, M. (2014). Smaller splenium in children with nonverbal learning disability compared to controls, high-functioning autism and ADHD. Child Neuropsychology, 20(6), 641–661. doi.org/10.1080/09297049.2013.854763
Fine, J., Semrud-Clikeman, M., Bledsoe, JesseC., & Musielak, KaylaA. (2013). A critical review of the literature on NLD as a developmental disorder. Child Neuropsychology, 19(2), 190–223. doi.org/10.1080/09297049.2011.648923
Meyer, B. (2020, February 26). NVLD: What is it and Why is it Not in the DSM? The NVLD Project | Non-Verbal Learning Disability. nvld.org/nvld-what-is-it-why-not-in-dsm
Rosenblum, S., Piran, M., Meyer, S., & Sachs, D. (2018). Normative or Heavy Clouds? Early Indicators of Nonverbal Learning Disability Based on Mothers’ Reports. Open Journal of Occupational Therapy, 6(2). doi.org/10.15453/2168-6408.1395
Semrud-Clikeman, M., Fine, J., Bledsoe, J., & Zhu, DavidC. (2013). Magnetic resonance imaging volumetric findings in children with Asperger syndrome, nonverbal learning disability, or healthy controls. Journal of Clinical & Experimental Neuropsychology, 35(5), 540–550. doi.org/10.1080/13803395.2013.795528
Semrud-Clikeman, M., Fine, J. G., & Bledsoe, J. (2016). Social functioning using direct and indirect measures with children with High Functioning Autism, nonverbal learning disability, and typically developing children. Child Neuropsychology, 22(3), 318–335. doi.org/10.1080/09297049.2014.994487
Semrud-Clikeman, M., Walkowiak, J., Wilkinson, A., & Christopher, G. (2010). Neuropsychological Differences Among Children With Asperger Syndrome, Nonverbal Learning Disabilities, Attention Deficit Disorder, and Controls. Developmental Neuropsychology, 35(5), 582–600. doi.org/10.1080/87565641.2010.494747
Support my channel and become a Patron!: patreon.com/stephaniebethany Or give once at ko-fi.com/stephaniebethanyAn Autistic Persons Thoughts on The Good DoctorStephanie Bethany2021-11-25 | Yes, I'm rather late to the party. But I finally began watching it and I can finally tell you what I think so far of The Good Doctor. I'm on season 3 right now, so please no spoilers! I'll do my best to keep it the same :)
Support my channel and become a Patron!: patreon.com/stephaniebethany Or give once at ko-fi.com/stephaniebethanyAutism & CompartmentalizationStephanie Bethany2021-11-18 | I've heard that autistic people are "able to compartmentalize" or that we naturally do this, etc. I feel like it seems to be a pretty commonly accepted trait of autism, yet I wasn't finding much specifically going over/looking at this aspect, and thought we could have a conversation about it.
Woods, A. G., Mahdavi, E., & Ryan, J. P. (2013). Treating clients with Asperger’s syndrome and autism. Child and Adolescent Psychiatry and Mental Health, 7, 32. doi.org/10.1186/1753-2000-7-32
Support my channel and become a Patron!: patreon.com/stephaniebethany Or give once at ko-fi.com/stephaniebethanyAvoidant/Restrictive Food Intake Disorder | ARFID & AutismStephanie Bethany2021-11-11 | We've talked before about selective eating/picky eating and autism as well as same food, but we didn't get into the real community that the term "safe food" is used for - those with ARFID or Avoidant/Restrictive Food Intake Disorder.
*Note: This is NOT glorifying or promoting an eating disorder. This is an educational video on the topic.*
Kambanis, P. E., Kuhnle, M. C., Wons, O. B., Jo, J. H., Keshishian, A. C., Hauser, K., Becker, K. R., Franko, D. L., Misra, M., Micali, N., Lawson, E. A., Eddy, K. T., & Thomas, J. J. (2020). Prevalence and correlates of psychiatric comorbidities in children and adolescents with full and subthreshold avoidant/restrictive food intake disorder. International Journal of Eating Disorders, 53(2), 256–265. doi.org/10.1002/eat.23191
Shimshoni, Y., Silverman, W. K., & Lebowitz, E. R. (2020). SPACE‐ARFID: A pilot trial of a novel parent‐based treatment for avoidant/restrictive food intake disorder. International Journal of Eating Disorders, 53(10), 1623–1635. doi.org/10.1002/eat.23341
Tsai, K., Singh, D., & Pinkhasov, A. (2017). Pudendal nerve entrapment leading to avoidant/restrictive food intake disorder (ARFID): A case report. International Journal of Eating Disorders, 50(1), 84–87. doi.org/10.1002/eat.22601
We're talking about autism, autistic characters, eyes and eye contact, different languages (including Japanese), anime, perspectives on autism, Halloween, and literally wherever else the conversation takes us.
Support my channel and become a Patron!: patreon.com/stephaniebethany Or give once at ko-fi.com/stephaniebethanyA Quick Guide to Autism & Neurodiversity LingoStephanie Bethany2021-10-14 | When I first began to learn about autism and neurodiversity and the community overall, there were a lot of terms and abbreviations I didn't understand. I hope this video will help those who may not be familiar with all the lingo yet.
Support my channel and become a Patron!: patreon.com/stephaniebethany Or give once at ko-fi.com/stephaniebethanyA Musical Birthday Party Learning About VertebraeStephanie Bethany2021-10-08 | You all indicated you'd rather switch the stream over to this week to be able to hear about the research thing first. So, come hang out with me on my birthday live! (We're just going to hang out like normal, it's not like a stream of a party or anything lol. Just want to make sure that made sense.)
Support my channel and become a Patron!: patreon.com/stephaniebethany Or give once at ko-fi.com/stephaniebethanyDoes Infant Therapy Prevent Autism? | Reviewing New ResearchStephanie Bethany2021-09-30 | News outlets like The Telegraph, BBC News, and more shared recently about a pre-diagnosis intervention therapy that supposedly prevents autism or lowers the risk by 2/3rds. I decided to look into this research to help bring understanding to what is actually being shown in the study and push past sensationalized headlines.
Roxby, P. (2021, September 20). Early baby therapy could reduce autism diagnoses. BBC News. bbc.com/news/health-58626945
Sher-Censor, E., Dolev, S., Said, M., Baransi, N., & Amara, K. (2017). Coherence of Representations Regarding the Child, Resolution of the Child’s Diagnosis and Emotional Availability: A Study of Arab-Israeli Mothers of Children with ASD. Journal of Autism & Developmental Disorders, 47(10), 3139–3149. doi.org/10.1007/s10803-017-3228-8
van ’t Hof, M., Tisseur, C., van Berckelear-Onnes, I., van Nieuwenhuyzen, A., Daniels, A. M., Deen, M., Hoek, H. W., & Ester, W. A. (2021). Age at autism spectrum disorder diagnosis: A systematic review and meta-analysis from 2012 to 2019. Autism, 25(4), 862–873. doi.org/10.1177/1362361320971107
Whitehouse, A. J. O., Varcin, K. J., Pillar, S., Billingham, W., Alvares, G. A., Barbaro, J., Bent, C. A., Blenkley, D., Boutrus, M., Chee, A., Chetcuti, L., Clark, A., Davidson, E., Dimov, S., Dissanayake, C., Doyle, J., Grant, M., Green, C. C., Harrap, M., … Hudry, K. (2021). Effect of Preemptive Intervention on Developmental Outcomes Among Infants Showing Early Signs of Autism: A Randomized Clinical Trial of Outcomes to Diagnosis. JAMA Pediatrics, e213298. doi.org/10.1001/jamapediatrics.2021.3298
Sensory Tiles: cobyandbam.com/?ref=stephanie [be sure to use code stephanie783 at checkout for 20% off!] -Please note that if you do buy through the link and use my code, I will receive a small commission at no cost to you. Thank you for supporting the channel!-Planning | Executive FunctionsStephanie Bethany2021-09-23 | Planning is often considered a higher-order executive function because of how many of the other executive functions are required for it to go well. Learn more about the executive function of planning in this video.
References: Boccia, M., Marin, D., D’Antuono, G., Ciurli, P., Incoccia, C., Antonucci, G., Guariglia, C., & Piccardi, L. (2017). The Tower of London (ToL) in Italy: Standardization of the ToL test in an Italian population. Neurological Sciences, 38(7), 1263–1270. doi.org/10.1007/s10072-017-2957-y
Sensory Tiles: cobyandbam.com/?ref=stephanie [be sure to use code stephanie783 at checkout for 20% off!] -Please note that if you do buy through the link and use my code, I will receive a small commission at no cost to you. Thank you for supporting the channel!-Why Do Autistic People Stim?Stephanie Bethany2021-09-16 | Why do autistic people stim? It's one of the most obvious things that autistic people do, from hand flapping to jumping to spinning. Find out why in today's video.
References: Dellapiazza, F., Michelon, C., Oreve, M.-J., Robel, L., Schoenberger, M., Chatel, C., Vesperini, S., Maffre, T., Schmidt, R., Blanc, N., Vernhet, C., Picot, M.-C., Baghdadli, A., ELENA study group, Chabaux, C., Cohen, D., Damville, E., Geoffray, M.-M., Gicquel, L., & Jardri, R. (2020). The Impact of Atypical Sensory Processing on Adaptive Functioning and Maladaptive Behaviors in Autism Spectrum Disorder During Childhood: Results From the ELENA Cohort. Journal of Autism & Developmental Disorders, 50(6), 2142–2152. doi.org/10.1007/s10803-019-03970-w
Mayer, J. (2017). The Relationship Between Autistic Traits and Atypical Sensory Functioning in Neurotypical and ASD Adults: A Spectrum Approach. Journal of Autism & Developmental Disorders, 47(2), 316–327. doi.org/10.1007/s10803-016-2948-5
Sensory Tiles: cobyandbam.com/?ref=stephanie [be sure to use code stephanie783 at checkout for 20% off!] -Please note that if you do buy through the link and use my code, I will receive a small commission at no cost to you. Thank you for supporting the channel!-Aspergers vs Autism DebateStephanie Bethany2021-09-09 | You may experience backlash for using "Asperger's syndrome" online. Why? We're going to cover the Asperger vs Autism debate and why each side feels the way they do - and why this shouldn't be a reason to divide the community.
References: Baron-Cohen, S. (2018). The truth about Hans Asperger’s Nazi collusion. Nature, 557(7705), 305–306. doi.org/10.1038/d41586-018-05112-1
Furfaro, H. (2018, April 19). New evidence ties Hans Asperger to Nazi eugenics program. Spectrum | Autism Research News. spectrumnews.org/news/new-evidence-ties-hans-asperger-nazi-eugenics-program Lindmeier, C. (2018, June 18). WHO releases new International Classification of Diseases (ICD 11). Word Health Organization. https://www.who.int/news/item/18-06-2018-who-releases-new-international-classification-of-diseases-(icd-11)
Sensory Tiles: cobyandbam.com/?ref=stephanie [be sure to use code stephanie783 at checkout for 20% off!] -Please note that if you do buy through the link and use my code, I will receive a small commission at no cost to you. Thank you for supporting the channel!-