Stories and Innovation in ALS Episode #21:  Pursuit of Happiness with Mayuri and Mayank Saxena @EverythingALS
Stories and Innovation in ALS Episode #21:  Pursuit of Happiness with Mayuri and Mayank Saxena  @EverythingALS
Uploaded December 2021 | Updated September 2026, 2 weeks ago
Episode #21: Pursuit of Happiness with Mayuri and Mayank Saxena

Welcome to Stories and Innovations in ALS.

In this episode, Lisa and McFinn are joined by Mayuri and Mayank Saxena. Mayuri was diagnosed with ALS 2.5 years after the onset of symptoms, at the young age of 32. Mayuri is joined by her brother Mayank, who has been instrumental throughout her journey even though they are bi-coastal.
We will take you through Mayanks journey and role as a caregiver for his sister, and also Mayuri’s advocacy efforts of standing up for others and herself. Through eye gaze technology to share her voice, Mauri tells us of the amazing advocacy efforts she has accomplished while also fighting ALS.

McFinn and Lisa are part of EverythingALS.org, whose mission is to accelerate treatments for ALS through citizen-driven research.

To learn more about EverythingALS, please visit: everythingals.org

Get Involved in ALS Research: everythingals.org/research

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Stories and Innovation in ALS Episode #21:  Pursuit of Happiness with Mayuri and Mayank SaxenaFindings from Everything ALS StudiesHEALEY ALS Platform Trial Updates by Dr. Merit Cudkowicz and Dr. PaganoniThe Amydis Eye Test to Detect ALSRAPA Therapeutics - ALS Trials, Expanded Access and TreatmentsDeveloping a Robust Diagnostic Test for ALS by Dr. Sandra Banack from Brain Chemistry Labs.Protein Aggregation and the Development of NU-9 (aka AKV9) for ALS by Dr. Richard SilvermanAugmentative Communications Program for ALSTherapies in ALS - Symptomatic & Pre-symptomatic Biomarkers for ALS Therapy DevelopmentGut-Brain and Neural Inflammation in ALSBehind the scenes with EverythingALS teamBreathing in ALS: Insights from a Clinical Research Program for Respiratory Care in ALS
Everything ALS |

Stories and Innovation in ALS Episode #21: Pursuit of Happiness with Mayuri and Mayank Saxena

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