Uploaded January 2025 | Updated September 2026, 1 week ago
Mojdeh Mostafavi, MD shares her journey as a legal guardian, caregiver, and advocate for a loved one with profound autism, offering invaluable insights and personal experiences.
Free certificates of participation are available upon successful completion of a brief knowledge quiz at: autism.org/perspective-adult-sibling-with-profound-asd
Mojdeh Mostafavi, MD is a dual-trained internist and pediatrician currently pursuing a pediatric fellowship in gastroenterology at Mass General Hospital for Children. With a profound personal connection to autism through her brother, Dr. Mostafavi’s dedication to advancing autism care is driven by her commitment to equitable healthcare and her expertise in integrating behavioral theory. Her passion lies in providing care across the lifespan, reflecting her belief in how today’s actions shape future experiences. Her work exemplifies a deep commitment to enhancing access and quality of care for all individuals, particularly those affected by autism.
In this webinar:
2:00 - Introduction
4:30 - Early life, diagnosis, and family response
9:00 - The role of siblings and at home care
14:05 - Behavioral challenges during adolescence
17:00 - Adulthood milestones and medical crises
21:30 - Ongoing care and the unknown future
23:00 - Welcome to Holland - a sibling’s perspective
27:00 - Ten reflections from an adult sibling of someone with profound autism
34:00 - Communication challenges and triumphs
43:00 - Family, community, care teams -- the importance of support
47:40 - Q&A
Mojdeh Mostafavi, MD shares her journey as a legal guardian, caregiver, and advocate for a loved one with profound autism, offering invaluable insights and personal experiences.
Free certificates of participation are available upon successful completion of a brief knowledge quiz at: autism.org/perspective-adult-sibling-with-profound-asd
Mojdeh Mostafavi, MD is a dual-trained internist and pediatrician currently pursuing a pediatric fellowship in gastroenterology at Mass General Hospital for Children. With a profound personal connection to autism through her brother, Dr. Mostafavi’s dedication to advancing autism care is driven by her commitment to equitable healthcare and her expertise in integrating behavioral theory. Her passion lies in providing care across the lifespan, reflecting her belief in how today’s actions shape future experiences. Her work exemplifies a deep commitment to enhancing access and quality of care for all individuals, particularly those affected by autism.
In this webinar:
2:00 - Introduction
4:30 - Early life, diagnosis, and family response
9:00 - The role of siblings and at home care
14:05 - Behavioral challenges during adolescence
17:00 - Adulthood milestones and medical crises
21:30 - Ongoing care and the unknown future
23:00 - Welcome to Holland - a sibling’s perspective
27:00 - Ten reflections from an adult sibling of someone with profound autism
34:00 - Communication challenges and triumphs
43:00 - Family, community, care teams -- the importance of support
47:40 - Q&A
