Uploaded November 2022 | Updated September 2026, 2 weeks ago
Nikki shares her perspective as a mother of a non-speaking autistic child, from navigating healthcare and other related professionals, advocating for her child and others within the school system, and finding an autism mom crew.
This interview was conducted as part of a video project on the conversation around who is "allowed" to "speak for" non-speaking autistic people. You can find the overall video here: youtu.be/Gep2opzHyG8
00:00 - Can you tell me a bit about you and your family?
00:15 - How well do you feel like you understand your child?
00:50 - How do you communicate with each other?
01:45 - Do you experience people telling you that they know more about what your child needs than you do?
11:51 - What resources have you found the most useful over time in learning about autism and your child?
19:41 - Do you feel as though you are your child's voice and why or why not?
24:06 - How do you feel regarding the role of autistic advocates in the world of autism?
38:16 - What do you think about the conversation around who gets to speak or advocate for non-speaking autistic people?
47:35 - Did you have any other thoughts or anything that you'd like to share?
MERCH: stephanie-bethany.creator-spring.com
Become a channel member!: youtube.com/channel/UCpSxFn3gz2xMbof_EDumN3A/join
Follow me on Facebook: facebook.com/stephaniebethanyyt
Follow me on Instagram: instagram.com/stephanie_bethany
My website: stephaniebethany.com
Support my channel and become a Patron!: patreon.com/stephaniebethany
Or give once at ko-fi.com/stephaniebethany
Nikki shares her perspective as a mother of a non-speaking autistic child, from navigating healthcare and other related professionals, advocating for her child and others within the school system, and finding an autism mom crew.
This interview was conducted as part of a video project on the conversation around who is "allowed" to "speak for" non-speaking autistic people. You can find the overall video here: youtu.be/Gep2opzHyG8
00:00 - Can you tell me a bit about you and your family?
00:15 - How well do you feel like you understand your child?
00:50 - How do you communicate with each other?
01:45 - Do you experience people telling you that they know more about what your child needs than you do?
11:51 - What resources have you found the most useful over time in learning about autism and your child?
19:41 - Do you feel as though you are your child's voice and why or why not?
24:06 - How do you feel regarding the role of autistic advocates in the world of autism?
38:16 - What do you think about the conversation around who gets to speak or advocate for non-speaking autistic people?
47:35 - Did you have any other thoughts or anything that you'd like to share?
MERCH: stephanie-bethany.creator-spring.com
Become a channel member!: youtube.com/channel/UCpSxFn3gz2xMbof_EDumN3A/join
Follow me on Facebook: facebook.com/stephaniebethanyyt
Follow me on Instagram: instagram.com/stephanie_bethany
My website: stephaniebethany.com
Support my channel and become a Patron!: patreon.com/stephaniebethany
Or give once at ko-fi.com/stephaniebethany
