Living with PNH: Tamirs Story @AAMDSIF

Living with PNH: Tamirs Story @AAMDSIF

Uploaded September 2023 | Updated September 2026, 13 hours ago

Patient advocate Tamir Orbach discusses how he managed his health care and his work life after he was diagnosed with PNH. He offers suggestions for patients to consider as they navigate their PNH journey.

To find out more about treating PNH, please visit aamds.org/diseases/pnh/treatments

Living with PNH: Tamirs Story

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