Uploaded June 2025 | Updated September 2026, 3 weeks ago
When Kristen and Mike were searching for answers for their son, Vincent, they turned to St. Louis Children’s Hospital. His care team confirmed that Vincent had Shwachman-Diamond syndrome (SDS), an extremely rare and inherited disorder that affects multiple body systems.
After weeks in the hospital and daily transfusions, 6-month-old Vincent received a bone marrow transplant at Siteman Kids at St. Louis Children’s Hospital. Although the transplant was successful, Vincent continued to face significant challenges due to complications related to his medical conditions. Tragically, Vincent passed away in April 2025. Vincent’s courage and resilience left a lasting impact on his care team, inspiring them to advance research in pediatric rare diseases.
Thanks to support from programs like KIDstruction Week 2025, families like Vincent’s are hopeful for medical discoveries to reshape treatments and help families like theirs. His journey highlights the power of expert care, family support, and donor generosity, and honors his legacy as his family wished.
When Kristen and Mike were searching for answers for their son, Vincent, they turned to St. Louis Children’s Hospital. His care team confirmed that Vincent had Shwachman-Diamond syndrome (SDS), an extremely rare and inherited disorder that affects multiple body systems.
After weeks in the hospital and daily transfusions, 6-month-old Vincent received a bone marrow transplant at Siteman Kids at St. Louis Children’s Hospital. Although the transplant was successful, Vincent continued to face significant challenges due to complications related to his medical conditions. Tragically, Vincent passed away in April 2025. Vincent’s courage and resilience left a lasting impact on his care team, inspiring them to advance research in pediatric rare diseases.
Thanks to support from programs like KIDstruction Week 2025, families like Vincent’s are hopeful for medical discoveries to reshape treatments and help families like theirs. His journey highlights the power of expert care, family support, and donor generosity, and honors his legacy as his family wished.
