Uploaded October 2025 | Updated September 2026, 2 weeks ago
For this Expert Talk, we were honored to host Jennifer Roggenbuck, MS, CGC, a licensed genetic counselor and associate professor at The Ohio State University. Jennifer broke down the genetics of ALS, including:
* Recent discoveries shaping our understanding of the disease
* The role and implications of genetic testing
* Key differences between familial and sporadic ALS
She also explored the progress being made in gene-targeted therapies and highlighted the vital role genetic counselors play in helping families navigate testing and results.
This session also included personal stories from community members living with ALS, as well as discussions about ongoing research efforts and global initiatives advancing therapy development.
📢 If you find this video helpful, please like, share, and subscribe to support ALS awareness and research.
Related links:
Speech Study: everythingals.org/speechproject
The ALS Gene Carrier Study: everythingals.org/asymptomatic-study
About EverythingALS:
EverythingALS is a patient-focused nonprofit organization dedicated to accelerating the discovery of treatments and a cure for ALS through collaboration, innovation, and empowering patients and researchers.
Stay Connected:
â–ş Website: everythingals.org
â–ş LinkedIn: /everythingals
â–ş Facebook: /everythingals
â–ş Subscribe for more Expert Talks: /everythingals
đź”” Subscribe to EverythingALS for expert discussions, research updates, and community support for ALS.
#ALS #Nutrition #EverythingALS #ALSResearch #Neuroscience #PatientCare
For this Expert Talk, we were honored to host Jennifer Roggenbuck, MS, CGC, a licensed genetic counselor and associate professor at The Ohio State University. Jennifer broke down the genetics of ALS, including:
* Recent discoveries shaping our understanding of the disease
* The role and implications of genetic testing
* Key differences between familial and sporadic ALS
She also explored the progress being made in gene-targeted therapies and highlighted the vital role genetic counselors play in helping families navigate testing and results.
This session also included personal stories from community members living with ALS, as well as discussions about ongoing research efforts and global initiatives advancing therapy development.
📢 If you find this video helpful, please like, share, and subscribe to support ALS awareness and research.
Related links:
Speech Study: everythingals.org/speechproject
The ALS Gene Carrier Study: everythingals.org/asymptomatic-study
About EverythingALS:
EverythingALS is a patient-focused nonprofit organization dedicated to accelerating the discovery of treatments and a cure for ALS through collaboration, innovation, and empowering patients and researchers.
Stay Connected:
â–ş Website: everythingals.org
â–ş LinkedIn: /everythingals
â–ş Facebook: /everythingals
â–ş Subscribe for more Expert Talks: /everythingals
đź”” Subscribe to EverythingALS for expert discussions, research updates, and community support for ALS.
#ALS #Nutrition #EverythingALS #ALSResearch #Neuroscience #PatientCare
