Ehlers-Danlos Syndrome: The brutal death and tragic legacy of Ruby Hill | RNZ @rnznewzealand
Ehlers-Danlos Syndrome: The brutal death and tragic legacy of Ruby Hill | RNZ  @rnznewzealand
Uploaded August 2026 | Updated September 2026, 1 week ago
Ruby Hill died aged 23 after years of being told her debilitating illness was all in her head. Subscribe: youtube.com/RNZVideo?subscribe

Days before her death she was diagnosed with hypermobile Ehlers-Danlos Syndrome, a complex connective tissue disorder. Her family believes this diagnosis could have saved her life if she had known, and been treated earlier.

In this RNZ investigation, Ruby's mother tells the heartbreaking story of her daughter's fight to be believed, and why she says too many New Zealanders with complex illnesses are still facing the same battle today.

Listen to the podcast: rnz.co.nz/podcast/all-in-her-head

Read more: rnz.co.nz/programmes/in-depth-special-projects/story/2019045681/sent-home-to-die
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Ehlers-Danlos Syndrome: The brutal death and tragic legacy of Ruby Hill | RNZ

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