Ember Green | EDS & Why We Misunderstand Disability @Ember_Green | Uploaded January 2024 | Updated October 2024, 1 week ago.
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I'm autistic & didn't know it until I was 32, I have Hypermobile Ehlers Danlos Syndrome & didn't know it until I was 36. Both of these are lifelong disabilities, so why didn't I know I was disabled for so long? Why was I so wrong about disability?
Discussing the trauma & medical gaslighting that can occur for EDS sufferers, why did doctors fail for so long to take me seriously? Why did I fail for so long to take myself seriously? Ehlers Danlos Syndromes and other hypermobility conditions can appear heterogeneous & can manifest in different ways. I explore my experience & tell my story of discovering & coming to terms with my new diagnoses. From hyper-mobile joints, to digestive issues, to chronic pain & fatigue, how could i have so much wrong with me for so long & not even realize?
Thanks to Caelan Conrad for the set design!
Sources: docs.google.com/document/d/1sqTiY0QfRyBrsszgTGvwQSdenEbIa3S4Usn0xkhtaIc/edit?usp=sharing
News Theme 1 by Audionautix is licensed under a Creative Commons Attribution 4.0 license. creativecommons.org/licenses/by/4.0
Artist: audionautix.com
Compare coverage and stay informed on breaking news by subscribing through my link https://ground.news/ponderful for 30% off the Vantage Subscription which is about $5/month for unlimited access to every feature such as the Blindspot Feed.
PATREON: patreon.com/EmberGreen
KO-FI: ko-fi.com/embergreen#
LINKTREE: https://linktr.ee/Ember_Green
I'm autistic & didn't know it until I was 32, I have Hypermobile Ehlers Danlos Syndrome & didn't know it until I was 36. Both of these are lifelong disabilities, so why didn't I know I was disabled for so long? Why was I so wrong about disability?
Discussing the trauma & medical gaslighting that can occur for EDS sufferers, why did doctors fail for so long to take me seriously? Why did I fail for so long to take myself seriously? Ehlers Danlos Syndromes and other hypermobility conditions can appear heterogeneous & can manifest in different ways. I explore my experience & tell my story of discovering & coming to terms with my new diagnoses. From hyper-mobile joints, to digestive issues, to chronic pain & fatigue, how could i have so much wrong with me for so long & not even realize?
Thanks to Caelan Conrad for the set design!
Sources: docs.google.com/document/d/1sqTiY0QfRyBrsszgTGvwQSdenEbIa3S4Usn0xkhtaIc/edit?usp=sharing
News Theme 1 by Audionautix is licensed under a Creative Commons Attribution 4.0 license. creativecommons.org/licenses/by/4.0
Artist: audionautix.com
